u/Least_Daikon_3176

▲ 10 r/mctd

Supplements for Joints/Connective Tissues?

Hello All!

Hope everyone is well.

Trying to get my ducks (or opossums in trench coats) in order as far as supplements and was wondering what you recommend to help support joints and connective tissues? Currently taking a really comprehensive multivitamin and Vit D+K but feel like I could be doing more for the MCTD bits. Thanks in advance!

Keep kicking butt!

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u/Least_Daikon_3176 — 10 days ago
▲ 3 r/mctd

Neuro Signs and Previous Surgical Sites

Hello All!

Hope everyone is doing well and enjoying the season.

Was wondering if you have experienced something similar to the following?:

- 2m on hydroxychloroquine, greatly improved arthralgia but severely progressive seemingly random neuralgia/paresthesia/hyperesthesia (anything from numbness, tingling, dead sensation, warmth, burning, tightness, weakness after minimal exertion, etc.). One of the weirdest sensations has been stabbing pain of/over old surgical scars. Very scurvy-esque!

- EMG of limbs are normal, so no obvious neuropathy/myopathy

- rheum suspects fibromyalgia, but sleep schedule/quality and joint discomfort have improved

- neuro referral in the works; already screened negative for MG and MS

So, any thoughts and/or similar experiences? Any always helps. Thank you!

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u/Least_Daikon_3176 — 2 months ago
▲ 27 r/mctd

Finally Diagnosed - Three Opossums in a Coat

Hello All!

Very long story, but short - I was finally diagnosed today! It's relieving and scary all at the same time. I feel a bit like three opossums in a coat. But I'm so glad you're here!

Pulmonary testing and echo scheduled soon. Meds (hydroxychloroquine) to start next week. Here we go!

u/Least_Daikon_3176 — 4 months ago
▲ 1 r/Endo

Hello All!

About me:

- grade IV endo

- down to just the left ovary

- deep into perimenopause for at least the past two years

- blood hormones apparently within normal ranges for age (34)

- trialed HRT (estradiol alone, estradiol + progesterone)

--> made me feel INCREDIBLE!!!

--> until endo symptoms flared again after about 1-2 months each

Questions:

- is/was anyone in the same leaky boat?

- if so, what HRT, herbal supplements, etc. helped with the perimenopause without aggravating the endo?

- any and all suggestions are greatly appreciated

Much love to all my fellow endo Ladies!

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u/Least_Daikon_3176 — 5 months ago