r/mctd

Has anyone else experienced their ankle randomly buckle?
I’m over 50 and not sure if this is MCTD related or just old age

Hi! I was just prescribed Mycophenolate mofetil for my MCTD. I have muscle weakness, neuropathy and joint pain.. anyone had success with this? I’m hopeful.. so far prednisone has been my only relief.

I'm tired. 13 years post dx. Ready to quit. Not hurt myself, just don't try anymore. EXCEPT for 2 little people I want to remember me as the best Grandma. They aren't old enough How do I keep going when I just want to cry?

I was recently diagnosed with MCTD. For the past few weeks, Ive been experiencing a pretty bad burning sensation of the scalp. It feels like an open would. It initially started with a feeling of tightness almost like I had on a tight headband. The burning seems to be getting more intense. Has anyone experienced this? If so any advice or can you tell me what helped you?