Newly diagnosed
Hi everyone, I'm from the UK. I just got
diagnosed with MCTD yesterday by my rheumatologist.
I've been seeing my specialist for three years regarding Sjogren's, but
she wanted to wait for consistently elevated RNP antibodies before officialy changing my diagnosis to MCTD with secondary Sjogren's.
She explained that will now need frequent lung and heart monitoring, and will likely need to start immunosuppressants soon.
There is a strong genetic component in my family. My gran had Sjogren's
and lupus, my aunt had lupus, and my mum and other aunt had/have
Sjogren's (my gran and aunts are sadly no longer with us). Despite knowing
this history, it still feels incredibly overwhelming today as I try to process
everything.
I thought I'd join this group for some support and to connect with others who understand.
Thanks for reading.