One EMU they assume PNES
Kinda rant kinda question…. So basically I’ve had diagnosed epilepsy with many on EEGs and such for many years ok.
So I have an emu because I’ve had uptick in seizures and im not photo sensitive I’ve never had really a direct trigger they’ve always just been random. Only time I think I’ve gotten one to trigger was maybe sleep deprivation at a emu but it took like 10 days and I was exhausted and that was debatable if it was the sleep deprivation or just random….
Anyway. I was there 5 days, no seizures, no incidents at all. For the record I haven’t been having them every week or every other week or anything like that really they’re just random. The big reason they wanted the emu is I haven’t been having them kinda random and I had a pretty bad injury from one that needed like 20 or 21 stitched because of it and they wanted to get medication right to prevent okay, fair..
Anyway, no seizures, no nonepileptic. Never have I had a documented case of nonepileptic. I again have a long time of epilepsy, loooooooong history. I see a epileptologist which is why this shocks me even more. So I have it no seizures incidents go home. No med changes. I didn’t get anything from my epileptologist other than we will just keep following up.
But on his report he put complex case of likely epileptic and pnes and then my pcp put pnes on his thing so I’m like wtf how do we have one’s diagnosis with no incident even captured ever??????? How does this make sense??? What kind of malpractice is this? And from epileptologist? I am literally shocked, and I can’t go anywhere else because I work for the company I have to be seen by because my insurance… so yea basically rant over but if anyone has suggestions or similar experience I’d really appreciate it, thank you.