u/LegHaunting9949

Hey Everyone, I posted over a week ago about my experience as a Type1 working with a dietitian/ nutritionist for Disorded eating/ possibly Afrid. Today I had a virtual visit with my endocrinologist and it was CRAZY how he spoke to me.lol. in a good way…Brief recap: During the post: I expressed my concerns about my Nutritionist/ Dietian not understanding my type1 and others “stuff” to my Therapist and they suggested I schedule an appointment with my endocrinologist and discuss everything with him. So my blood test get back yesterday A1c 6.7 not under weight. My appointment was just now and he suggested…….I KEEP LOOKING FOR A DIETITIAN THAT UNDERSTANDS ME. HE SAID MY DIET HAS TO WORK FOR ME BECAUSE IM THE ONE THAT HAS TO FOLLOW IT. He smiled and assured me we are god and on the right track. Honestly I’m so relieved ( I couldn’t sleep overthinking,what if’s,worried about judgement) He so positive, my Insulin resistance is down/ my sensitivity is down ( using less insulin over all) 91% Time in rangeon G7,my Omni Carb ratio is 1:7.75 and I consume 140-160 grams of carb a day and he added, yes we are going to address the eating disorder. But as of right now medically the is no “rush” to get in patient treatment. He said I should feel comfortable with who helps me and he added that my honesty is what will help them all work as a team. He explained that it’s complicated with our type of disease because , being healthy is part of a fine line with food, and it’s understandable that sometimes those lines get blurred. So we will keep looking for the right fit. Atleast he didn’t reprimand me or make me feel I was doing something wrong.So I guess it’s a small win in an otherwise very grim place.

I just wanted to say Thank you to all that answered and helped me keep going.I don’t have a huge support system, so that post was really me reaching out from a sad place. This disease can make us feel so alone, and groups like this are always helping someone,somewhere in a rough spot.

How would you feel if a nutritionist made suggestions for treating your low blood sugars?
A little more context. I’m seeing a nutritionist for Disordered eating and possibly an eating disorder. The nutritionist wants to included nutrient rich foods during my hypos because she feels it is a great opportunity to get food in . (agree) First she suggested a small fruit apple/orange. But I will die …..nope to much food…not wht I want... too slow to react to my low, and too fast to burn thru. And besides who keeps a bowl of fruit by their bedside table ( for those 3 am). Now last week she suggested honey sticks…I bought them…..at 5 gr carb each I need 5 just to treat the low to start(15g carb). that’s disgusting. I couldn’t get past the 2nd honey stick and grabbed a handful of skittles. So yesterday I have my appointment and explained that the honey was not appetizing and a lot of work during an emergency. She suggested I dilute honey in water and drink that. All I can think is if I’m 55 with arrow down how am I doing this? it’s dumb. My sugar pixel will go off and I will die trying to shut that mother fu@#$ off in the other room and with all the other alarms what@#$%&.She said I should attempt to eat one honey stick when I begin to go low……ummm sometimes I’m at 110 for 3 hrs straight an out of nowhere I drop. I feel a low is the only time I allow myself to eat. ( candy is my go too not chocolate)

TO BE CLEAR I have tried every suggestion so far and I’m open to change I’m not arguing back part of me feels she might not be a good fit, and I’m trying to get some feedback. She has swapped out my coffee creamer yay healthier, sad it’s not Starbucks oat milk Lavender. (I partake 3-4 a day ) She swapped out alkaline water for mineral water. and Added nutritional shakes that are ridiculous price (fyi purchased will not buy again ) She often says things that don’t sound right to me as a type1. “Dont focus on the carb” “ when you want a carb swap it for a protein” I have a big problem trusting white coats and I fear judgement ( years of bad endo)so I’m worried she doesn’t get type 1 and I’m also trying to say it is in my head. I have seen her 4 times now and we have not yet approached adding a full meal to my intake while I bolus throughout the day as if I am eating. Looking for insight, Thanks in advance