u/LettuceOverall3662

I was diagnosed with DSPD and it’s ruining my life. I am chronic ill (endometriosis etc) so therefore I don’t work = don’t need to get up early everyday. Only when I have appointments etc.

But still it’s ruining my life and have been for years, even when I was working and going to school. No matter when I fall asleep I can’t get up. If I slept 6 hours or 13 hours it doesn’t matter. I can’t get up. I just slept 10 hours and I can hardly stay awake. Until it gets to nighttime and I’m finally awake.

I often sleep until 12-2 pm. I have 100 alarms and I just can’t get up. I see people saying their rhythm is 7 am - 2 pm. But my issue is I have to sleep so many hours and I still can’t get up. People are calling me lazy and it really affects me, but I can’t explain how tired I am.
I often am a zombie through the whole day even after sleeping 10 hours. Also if I sleep 5-6 hours. I often feel asleep during the day and when sitting I school.

I do not have narcolepsy or sleep apnea as I did a sleep study. But I do have PLMD too and am waiting to get my ADHD diagnosis.
What do I do? Accept that I’m tired all the fucking time? Sleep 12 hours a day?

Edit to add; I ofc have a hard time falling asleep, and without several things that makes me sleepy I will not sleep until maybe 5-7 am in the morning. My DSPD is severe.

I’m finding it hard to tell people that I don’t want kids. I do not have that instinct first of all, kids are not for me and I do not wish to get pregnant or have kids. Second of all I would never want to possibly pass down bad genes and the potential of them suffering.

My nearest family mostly respect it. But ofc there’s always someone who says “you’ll change your mind”. I find it hard to get people to actually respect my choice. Like my choice isn’t valid. I also find it hard to tell people, because it’s often seen as something bad and I have to defend myself and also make arguments about why I’m not gonna change my mind. Like they’re trying to change my mind. Or people make it seem like you’re a bad or weird person for not wanting kids. Do people not respect your choice about this too? It’s so frustrating and I just want to scream at them sometimes. I obviously would never do that, but the voice in my head does lol

I feel like shit today. I hate my life and my body extra much today. But I’m so good at being negative, and I know it never ever helps anything to be negative Nancy all day long. It’s ofc alright sometimes, I need to get the frustration out and it’s okay for things to feel unfair some days. But sometimes you also have to work with what you got and appreciate the good things.

But you can probably imagine that it’s hard to turn that mindset, as I’ve always been very negative. I’m keeping a diary where I’m noting things I’m grateful about today. But what else? Has anyone been through this process, and could you tell me how you handled it? What worked a great deal for you?

I’m also dealing with some horrible doctors and always crying and freaking out afterwards because I’m so frustrated. I feel sick because I get so frustrated and helpless. So I also need some advice on coping mechanisms from others that are going through the same, so I don’t let it ruin my entire week and so I can try to work through the frustration. Therapy didn’t really help with that 🫣

Did anyone in here find out that they have Eagle syndrome? And that it might be causing your pain from “TOS” which might actually be from the Eagle syndrome?

Does anyone with occipital pain have eagle syndrome? I know it’s a long shot, but I wanted to find out it anyone one here found out that they had eagle syndrome?

I don’t need advice on tests or things for try. I just need to vent and connect with my people on here.

I have confirmed chronic illnesses and some undefined. But the doctors don’t seem to take it seriously and understand that the pain is so severe that I feel like I can’t take one more moment. The they talk about depression, tf I’m depressed because of the pain. Treat the pain and I’m good mentally again. But they don’t seem to understand that part either. I feel stuck because of the struggle with my doctors. Not feeling like they help or want to help. Just being written off..

So now I’m crying and crying. It doesn’t do anything, but I needed a good cry. I am just so frustrated at the doctors and at my body. And in the end you can’t do shit when the doctors won’t listen, they always have the last say..

So I feel like life is slowly being sucked out of me, the spark is gone. I had so much potential and I was full of life, hope and dreams you know? Can anyone relate?