u/LobsterLagoon17

Does anyone else have endometriosis symptoms that randomly flare up every few months? I’ll have periods of feeling mostly normal, then suddenly my symptoms will return for a few months until they subside again.

Is this common with endo, or do most people experience symptoms more consistently?

Note: my symptoms usually occur around ovulation, but can also show up at any part of my cycle. My gynecologist said I "likely have endo" but I have no formal diagnosis.

Hi everyone! For those with endometriosis, what symptoms do you experience and how frequently?

I’m curious about your more severe symptoms/flare-ups, how often they happen, how long they last, and whether they occur around your period, ovulation, or randomly throughout the month.

I’d especially love to hear about symptoms that you experience outside of your period and how often your more severe pain occurs.

Thanks!

Does anyone else with confirmed endometriosis have pain that’s worse during ovulation and the luteal phase than during their actual period?

I usually get the most pain around ovulation and then throughout the luteal phase. Once my period starts, I actually get relief. From reading posts here, it seems like many people have the opposite experience. I also think I may have milder symptoms compared to most people, but that may be due to my Mirena IUD.

I’m wondering if this pattern is still common with endometriosis or if it sounds more like pelvic congestion syndrome (or something else).

Would love to hear your experiences. I’m not looking for a diagnosis, just curious if anyone else has a similar symptom pattern.

I think I may have endo, but I’m not sure if I’m overreacting, if my symptoms are normal, or if they could be linked to something else. Before I went on birth control at 19, I remember my periods being particularly heavy, but not especially painful (although I do have a pretty high pain tolerance).

After starting birth control (first the pill, then an IUD), my periods lightened. But for the last few years I’ve had the following symptoms that make me wonder if it could be endo:

TMI:

• pain with sex (during penetration and after orgasm)
• Pain after sex (around 30 minutes after sex, severe cramping)
• painful ovulation
• random points in my cycle where I get severe cramping that makes me nauseous / unable to walk
• cramping and pain after working out
• tenderness in my abdomen and butt/rectal area, especially with movement or sitting (this is pretty frequent)

Are these symptoms linked to endo? Could they point to something else?

I feel like most of the endo stories I hear involve extremely severe pain, and I’m not sure I experience it to that level, so I keep second-guessing myself.