Myositis is negative (tested last year when the rashes were even worse).
Weirdest part is the knuckle rashes are transient. Like ill feel them come on occasionally bc itll feel like a slight zap or itch then its gone.
Anyone else ger these?
Hi all,
Im not diagnosed with anything but i do have homogenous 1:2560 and every winter I hop on this thread and post an update on stuff bc it seems like every winter something happens. God i hate winter. Recently i started getting random zaps in my body accompanied by…drumroll…lower back pain that feels like an injury..? It switches sides too sometimes its the weirdest thing ever. Mind u at one point i smelt metal in my nostril and the pain shot right up my eye and it went blurry for an hour. LOL? And the tongue too half of it just goes bzzzzt and the chest too its crazy
Was just wondering if anyone else has experienced this for the purpose of literally just knowing if anyone has experienced this not bc i want a diagnosis
I’ve honestly never heard of random zaps or neuropathy causing pain that resembles si joint pain or vice versa.
Edit: thought id add some more of my symptoms see if anyone relates.
- Sparks flashing in vision
- Occasional blind spots in vision in the middle
- Cold hands and feet
- Fluctuating tsh and wbc but anti tpo negative t3 t4 neg
- Word recall? Oof.
- Left eye pain and feeling like its abit uh cloudy its very slight. Feels almost like ive got a thin layer of vaseline but retinas were checked
- Ive noticed a slight tremor in my right hand when doing things like opening a bottle. Very slight and i cant tell if its constant.
- had nystagmus during the worst flares of said zaps now im better and its gone
- not going to lie i feel good in summer. Shit in winter. Sun nor hear are a problem.
- high protein to creatine ratio and albumin to creatine ratio. Havent seen a nephro yet. Idk how my doc sees positive ana and something with the kidney and decides its not autoimmune not even UCTD🙂
But brain and spine mri completely clear
Edit: ppl feel free to join in on the thread even if stuff has been said before or if u just relate haha :)
Not seeking medical advice, but what Im going through is a mystery neither I or the doctors are not figuring out (yet). It would be helpful to know if someones going through this and what it was.
Last I checked maybe around April ANA was 1:2560 homogenous, negative ena antidsdna, everything else is negative. Also had a myositis panel, thats negative. Do have proteinuria and high albumin to creatinine ratio for a few months now. TSH occasionally comes back positive or negative but t3 t4 never positive and thyroid antibodies arent positive either.
Started having pain in my lower back after some bedroom concert dancing. It went down my foot so I thought it was sciatic. But then the pain stopped being like connected from my back to my foot and became lower back pain and an incredibly stabbing pain on the sole of my foot and outer toes (same side).
Then it started radiating to my mouth especially the left side of my tongue, shoulder and Id feel random zaps everywhere so I went to the ER out of concern for my spinal cord.
They found diplopia (vision crossing at certain angles) and abit of nystagmus when I would look to the side or look from side to side. They did a CT for spine and brain and it was clear.
They kept me in because though this could be MS but MRI brain and spine also came clear. So not MS.
Anyway its been a week since ive been out of the hospital these symptoms have persisted. At the end of my hospital stay I got better now Im worse again. Its the random zaps especially on the face. I dont know if this is mechanical like cervical spine or maybe lumbar but I figured it could be something autoimmune and worth asking if someone has had similar symptoms.
Other symptoms are crappy short term memory, I’ll have a “what was i doing?” Moment many times a day. Im in my 20s. Word recall problem like its at the tip of my tongue but i don’t remember the word. Happens nearly daily as well. Uh left eye is blurring gradually but no pain. It feels like its got Vaseline on it mind of like its hazy.
Again not seeking medical advice on here and do plan to go back to the doctors but if anyone has experienced this or known someone who has this would be incredibly helpful.