Anyone have these seizures lead to the feeling of doom never lifting? I have suffered for 30 years of this and was improperly diagnosed with panic attacks. I’m surprised I’m alive. I self medicated because docs and therapist never thought about sending me to a neurologist. Please tell me someone
Else has lived this hell of nobody believing you and resorting to treating yourself.
I'm not diagnosed, but my neurologist is thinks I may be having seizures. Would you be willing to see what you think?
I have episodes of profound confusion, a distorted sense of time, feeling disconnected or unlike myself, in a dreamlike state, experience paranoia, difficulty with planning and multi step processes, and difficulty solving problems.
Time perception is off. Two hours feels like ten minutes.
Familiar people can feel like strangers or seem unlike themselves. I have had deep feelings that people are being impersonated and they don't feel like the people I know. I'll even look for clues that they aren't the person I know them to be.
I have trouble remembering recent actions or conversations, planning, understanding things, solving simple math problems, and accessing information I know. I'm not sure if memories are real, or a story I heard. I can't tell if what happened this morning was today or yesterday. I have forgotten to follow up on lots of tasks or daily responsibilities like feeding my dogs.
I just generally feel like I don't know things. Like the feeling of the certainty of knowing is gone.
My emotions feel flat, and I have difficulty reading facial expressions. Difficulty understanding what someone is implying or trying to get me to understand. Difficulty understanding if they are upset or not.
The symptoms fluctuate. For example, my memory could be slightly better earlier in the morning and worse later on.
I'll have profound exhaustion and a very “out of it” feeling. I have episodes of pressure behind my eyes, sluggish eye movement, and trouble focusing, especially in dim light; it feels like being drunk. It improved, though some pressure and sluggishness remained. I also don't feel confident judging timing and braking while driving.
I also feel fatigued and like I need to sleep most of the day even though I don't.
What do you think?
I was hooked up in a padded bed and monitored 24/7 without meds and intentionally stressed to induce a seizure so they'd have proper information to treat
It worked! I had a seizure. The Neurologist said it was a Gran Mal Seizure and lasted only a few minutes, yet I wasn't coherent for almost 45 minutes
She said they now know where in occured in my brain and now know which meds will better work in that area of the brain.
We're now planning extensive cognitive testing and more to determine exactly what THAT part of my brain actually controls. If it's determined to not be vital or important, then surgical removal of that grape sized part of my brain will be removed....
Has anyone experienced this? Success? Failure? Cautions I should look into?