u/woohoocrew

Very vivid dreams lately

All my life, I have had periods of having vivid dreams. When I was a kid, I would have those hallucinations upon waking that would scare me and I would scream.

Lately, I have been having some of those. Just seeing mostly bizarre spindly shapes. But also, I am having extremely vivid dreams that are so detailed, I am carrying out very specific actions in my dreams and dreaming about people I know. During the day, I can fall asleep so easily. I know this is sounding like narcolepsy. I have to schedule a sleep study to be tested for that too.

The thing is, before I go to sleep, I am having very strong auras of impending doom. Thankfully, my dreams are mostly not bad. I am wondering if this could be a sign of focal seizures in my sleep.

Has anyone experienced clusters of vivid dreams ?

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u/woohoocrew — 1 day ago
▲ 4 r/focalawareepilepsy+1 crossposts

Staring and while aware

I find myself staring. I am aware during the entire thing. I sometimes will try to stop staring but, when I try to move my head it feels a heavy like I’m under water. Then I have a myoclonic jerk of my torso and I am able to stop staring. If I have clusters, this could happen every single time and leads to a myoclonic jerk. Is this odd?

I know that is a crazy question to ask with neurological stuff.

One time, I was sitting at the table eating with my family and my husband said, “uh oh, you’re having a problem”. I said, “No, I feel fine” then I had a myoclonic jerk. A lot of times after the jerks I will have dysphasia too. I was surprised that he knew beforehand, but he said I had this blank look on my face. I was listening to him talk the entire time. Never lost awareness.

If I’m walking around doing things and I have one of these moments, suddenly my thoughts feel like I can’t really “capture” them if that makes sense. If I’m standing, I will feel slightly weak. This will usually lead to a jerk. But, sometimes it doesn’t. Sometimes the staring thing and head pressure with dysplasia (stuttering and unable to pronounce words correctly) are all I get.

I have only heard one other person on the internet say they have this combo of things and they are also undiagnosed like me.

These are basically the typical seizures I have now. I feel like they have “organized” themselves and are pretty much the same every time.

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u/woohoocrew — 12 days ago
▲ 3 r/focalawareepilepsy+1 crossposts

I have had myoclonic jerks at the dentist before. I have a dental appointment coming up and I’m trying to see what I can do to avoid seizures. Any tips? Also anyone have this problem with getting overstimulated at the doctor?

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u/woohoocrew — 17 days ago