Think I might have temporal lobe epilepsy
Would love to hear from people who have it and if they have had similar experiences! I’m booking a neuro appointment soon for this.
I recently turned 20 and for probably the last six months have been having weird unpredictable moments that feel like déjà vu but aren’t, sometimes multiple times a day, sometimes weeky, sometimes monthly. It’s the same vision every time but I can’t remember it at all after, just a vague idea that it involves something with building or breaking things down for a greater cause, and that it’s melancholy.
When these visions happen it’s like I’m being pulled out of my body as if I’m very high on something but I’m completely sober, and my whole body feels weird. I’m completely aware and can continue conversations as if nothing is wrong and no one notices anything, this even happened to me during intercourse.
I recently started looking into it because for a while I thought it was just some random thing and I couldn’t even describe what was going on but i immediately saw stuff about temporal epilepsy and the symptoms sound exactly like what I’ve been trying to describe.
Honestly part of me is doubtful and feels like I’m just being dramatic and it probably nothing but it’s so weird and every time I’ve described these visions to people they’ve never heard anything like it. I just find it hard to believe I have epilepsy it feels so random, and it’s only been happening for a few months and after the vision moment happens I’m completely fine and unaffected unlike a lot of stories I’ve seen.
If anyone could share, what was your experience getting diagnosed and treated, and is there anything I should know?
***I smoke weed occasionally if that’s relevant
update: I’m lowkey terrified to go in now that I know the meds are so awful and have such bad side effects, plus I might not be able to use weed anymore. Are my symptoms indicative of needing to go in or are they not that serious and I can go unmedicated bc my symptoms don’t affect my daily life?