u/Low_Variation1532

Hey everyone, I'm a 20yr old male and i've really just been suffering with this the last few years, though it's gotten progressively worse this last year (since my etd like symptoms started last june). Literally feels like the pressure's been building. I just want a diagnoses and I'm finally getting it looked into properly after learning it might be an intracranial pressure issue.

Symptoms (timeline + current):

• Acquired horizontal double vision (esotropia, both eyes) — started August 2022, surgery May 2023. Was worse at distance, worse when I relaxed my eyes, came and went a few times, then became permanent leading to my surgery. Surgery helped alignment but I still get occasional double vision when unfocusing my eyes or when really bad pressure.
• Constant head pressure / fullness behind my forehead and eyes — feels like pressure in the top front of my head, above my nose up to above my eyebrows, like it's just full. It's gotten worse over the years. Tylenol/advil doesn't touch it. Worse when lying flat, and this might not be relevant or might be just placebo but it gets worse when its raining/gross out.
• Blurry vision getting progressively worse over these few years
• Vertigo / swaying — a feeling of swaying when I'm still, like I'm tilting to one side, or like my eyes are swaying.
• Pulsatile tinnitus — mainly when I'm lying on either side. I'm gonna mention that i haven't kept track of this one as well but it seems it happens mostly when laying down on my pillow on my side.
• Ear fullness / clogged "ETD-like" feeling — started about a year ago. Also a squeak and outward pressure that briefly releases when I do a Valsalva. (ENT testing was normal — not obstructive ETD even though I was diagnosed with ETD for 7 months by another ent who did no proper sound testing) Started last june and got worse over time.
• Constant brain fog, literally won't go away.
• I often catch myself squinting, pushing my head back, or bulging my eyes to try to see more clearly.
• Drusen on my optic nerve since Iwas a little kid, so they might have missed if there was any swelling on my optic nerve.

Any opinions or advice would be great. I have my appointment with the first neuroopt monday and if there's any other conditions or questions I can ask about that anyone thinks of, I'd really appreciate it :)