u/Lula_1997

Hi,

In September 2024, I underwent a tonsillectomy and a frenectomy under general anesthesia performed by an ENT surgeon.

The reason for this was that I had been struggling with articulating certain letters and syllables for years, and I felt this might be related to reduced tongue mobility. After doing some research myself, I came across the possibility of a tongue tie.

After examination, the surgeon confirmed that I did indeed have a tongue tie, but also enlarged tonsils that could be pushing against my tongue and contributing to the reduced mobility. He therefore recommended doing both procedures at once so everything could be addressed in a single surgery. Myo therapy was never mentioned.

Now, more than 1.5 years later, I still experience a numb, swollen sensation in the tip of my tongue and the floor of my mouth. Touching the floor of my mouth causes tingling sensations, and I experience a pulling/tight/crampy feeling while speaking. Overall, the entire right side of my tongue feels different, almost as if I permanently have something sitting inside my mouth. The left side is completely normal.

Recently, I sought a second opinion from a maxillofacial surgeon and a third opinion from another ENT specialist to review my MRI results. They told me the MRI was completely clear and that this is most likely neuropathy, and essentially something I would need to learn to accept and live with. The maxillofacial surgeon also mentioned that I had developed significant scar tissue (see photo - unfortunately I never took a before picture) and that another intervention could potentially cause a real speech problem.

It was very difficult to hear this after months of follow-up with the original surgeon, who had completely ruled out nerve damage.

During those months, I’ve tried many different things: vitamins B and C, valaciclovir, Diflucan, topical Rivotril, and more recently magnesium, omega-3 supplements, and Diclofenac. I’ve also recently started physiotherapy because the stress and anxiety surrounding this situation have caused me to clench my jaw excessively.

I was wondering if anyone might have any idea what else I could possibly do, because I genuinely feel desperate at this point.