r/TongueTies

Very unusual tongue tie. Not a tongue tie at all?

Very unusual tongue tie. Not a tongue tie at all?

Hi, I have a tongue tie. I saw the dentist about it and it has musculature and veins inside of it. He said he had never seen anything like it but said a frenectomy is not appropriate for a case like mine. What could this be? What should I do? I am very confused and concerned. It is causing me excrutiating neck pain and has for years. It is THICK. Very thick, muscular, and you can feel the veins inside of it and the muscle. Even the thin part of the tie has veins and muscle. The dentist was puzzled and referred me out to an oral surgeon in Seattle but said even then they may not do a surgery due to the anatomy of it. He was palpating it for a solid 15 minutes and even took photos to show future students.

u/Solid_Ad7070 — 2 days ago
▲ 3 r/TongueTies+1 crossposts

Tongue issues

Hi,37M.While talking ,I feel like my tongue is thick and somewords slur but can autocorrect.I clearly feel the difference that I cannot talk fast as how I used to talk before.It feels like my tongue (especially the front portion of tongue)does not allow me to speak

I have needles and pins/vibrationss/pulling sensation in the front of the tongue.

I get twitches on my cheeks several times in a day as well as my eyes also twiches.

My throat feels stiff and feels suffocated while talking.My voice has also reduced as I can’t talk like how I used to talk before.I feel like my throat narrows down and gets stiff while talking and feels breathing difficulty.I can’t speak or read 2 sentences continuously with out taking a break for breathing which is not the case befire.My vocal cords also pains sometimes even when I am talking slow.

all these symptoms point towards bulbar and I am scared

sometimes I feel like something is moving on my cheeks

I have twitches in shoulders,calf,hands,butt,back,chest ,palm and get jerks in hands,feet.I am scared

please let me know if anyone has faced the similar issues.Thanks

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u/Muted_Insect5033 — 12 days ago

is this a tongue tie?

thats as wide as i can open & as far as my tongue goes. i was trying to touch where your tongue would go if you were saying “n”. no can do. can’t touch anything unless i close my mouth about 50%.

i have TMJ, migraines, some malfunction of my jaw when im opening/closing (when opening, it slides forward. when closing, it reaches a point where it slides backwards in place). bruxism. i cracked 2 teeth last year in one night.

i have mandibular torii and another on my palate. STILL can’t touch it with my tongue.

u/Due_Student9136 — 13 days ago

Helping Nephew with Tongue Tie

Hello everyone, I have a question. I have a nephew who has a tongue tie, he's 9 years old and he's not in speech therapy. He was when he was younger, a toddler. Is there anyway I can help him pronounce words? For example, he pronounces 'chocolate' as "chacholitch". I tried to explain to him to pronounce it as just "chalk-lit" He doesn't seem to remember I think and reverts back to "chacholitch". He can say "chalk-lit" and it sounds completely normal. But he goes back to the first one. When we go places and he wants something chocolate flavor, nobody other than my family can understand him and he sometimes gets flustered. Does it get easier to pronounce words when he's older? Or is there anyway I can help while he's still young. He's going to be 10 next month. I'm also just a little nervous he's going to get bullied, or poked fun at. Kids are so mean in school and he's a sensitive one.

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u/Perfect_Cellist2358 — 14 days ago