u/Lumpy-Creme-6398

▲ 4 r/askCardiology+1 crossposts

POTS with COVID

i am so stressed i am on day 7 of covid and all my symptoms are gone other than increased heart rate. i have MVP and MR along with POT. my heart rate increases when im walking around and standing up and im so stressed because i need to go on holidays today with my family and they’re very “covid is just a cold” but im so scared its going to make my heart condition worse. idk what to do im so anxious

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u/Lumpy-Creme-6398 — 3 days ago

off balance all the time

i’m not great at explaining things so i will try my best.

around two years ago while i was working at kmart i started noticing when i was walking in open areas it would feel like i was going to fall backwards, so to counteract that i would speed walk to an aisle with my head down almost leaning forward, once i got to an aisle i was fine, no issues at all. that slowly started to transition into my driving, when i was driving it felt like my car was going to flip backwards so i would lean almost over the steering wheel because my body physically felt as if it was going backwards.

fast forward a few months, it took over my whole life. i wasn’t able to work anymore, i wasn’t able to drive, and walking anywhere i had to hold onto someone to stop the sensation of me falling over. i ended up going to doctors and having CT scans of my head and going to hospital because i was convinced something was wrong with me, but after they did all their tests they all said, "i have no idea”. the only form of an answer i ever got was that i have a SLIGHT enlarged vestibular, but after going to an ENT he said it wouldn’t cause my symptoms, it would cause vertigo which i don’t have.

slowly over the years i was able to drive again short distances without feeling like the car was going to flip and i was able to walk outside without feeling like falling over… fast forward to now, i am able to drive most places if the roads aren’t wide and able to walk outside/ in very small aisle, but as soon as i enter a shop that is open and there is nothing around me, i freeze. i physically cannot walk, as soon as i take a step it’s like my eyes go black and my brain shuts off and im falling. i am so lost and im so frustrated because i want my independence back, i want to be able to go back to shopping by myself and not needing to hold onto someone 24/7.. does anyone have any ideas?? please!

TLDR; i’ve had balance issues for the past two years that got worse then slowly better, no explanation for any of it, want my independence back ASAP need advice.

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u/Lumpy-Creme-6398 — 9 days ago