It’s 3am and the joint pain won’t let me sleep..
It’s after 3 AM and I haven’t slept at all tonight because my joints hurt too much. I’m exhausted, frustrated, and honestly at the point where I don’t know what I’m supposed to do anymore. The frustrating part is that because RA (Rheumatoid Arthritis) or what the doctor suspects I have hasn’t shown up in my bloodwork.
For context I’ve been dealing with joint pain, stiffness, swelling and flares for a long time and new symptoms of weird nerve pain, numbness, muscle weakness and severe headaches. I spoke with my doctor recently and he is considering Lupus and even Multiple Sclerosis, but no official diagnosis yet 😩
Some days are more manageable than others, but during a flare I’m in pain for the majority of the day, and nights like tonight I can’t even sleep through it.
I feel like I’m stuck. I’ve been told essentially that the tests don’t support rheumatoid arthritis, despite continuing to have symptoms. I previously saw a rheumatologist in the Lower Mainland, but I really want another opinion from someone willing to investigate the possibility of seronegative rheumatoid arthritis or another autoimmune disease rather than stopping at negative bloodwork. Are there any Rheumatologists here in town? I know we are pretty short on specialists.
And in the meantime…how do you actually live like this? What helped you sleep? What helped the pain enough to function? Because this is hell sometimes..
Any advice is appreciated 😔