u/MartiniPlusOlive

Advanced stage of Parkinson's. I have been promoted. A useful graphic.

Age 68(M). Diagnosed 26 years ago. DBS 11 years ago. 6 Sinemet Plus (100/25) per day plus 50mg Opicapone. Madopar dispersible for severe OFF times.

I recently stopped taking Amantadine and found that my voice is stronger and I am more articulate.

The Sinemet is both too much and too little. Gut motility is poor, so drug absorption is variable.

I am being assessed for Produodopa(Vyalev).

https://www.researchgate.net/figure/Motor-complications-in-PD-associated-with-levodopa-During-the-honeymoon-period-patients_fig1_323615454

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u/MartiniPlusOlive — 2 days ago

DBS installed and you need an ECG. Be aware.

In preparation for the installation of Produodopa, my neurologist sent me to have an ECG and a chest X-ray. The lady who did my ECG was very confused by some of the readings she was getting. She asked her manager for help. They concluded that the DBS gadget embedded in my upper-left chest was interfering with the ECG and asked me if I could. switch it off. I did not have my DBS controller with me so I had to say no. They made the best of what readings they could get, and had to call it a day.

So if you know, or suspect, you are going to have an ECG, take your DBS controller. 8-)

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u/MartiniPlusOlive — 10 days ago