r/Parkinsons

My husband's neurologist agreed taking an anti-inflammatory supplement could be beneficial--not Advid or RX anti-inflammatory but something like Fish Oil or others supplement.
Any recommendations from those who use daily supplements?
Also any recommendations for any other supplements?
He takes a sublingual B vitamin and a daily senior vitamin.
There are so many different brands marketing similar products it is very difficult to know what are reliably produced.

I didn’t know that the creator of ESPN had pd. RIP Bill🫡

Hi

Mu dad is 73 and in hospital after a fall. They now suspect he has Parkinson’s. Over the past 3 years we have seen a steady decline in dad’s mobility.
With things progressing more recently after the passing of my mum.
He used a walker, needs assistance with most things, is now having a lot of trouble feeding himself. Since the fall he cant walk, has stood a couple of times. But is now in the rehab with the hospital.
He also has sever emphysema which makes things even more difficult.

Reading on here i can see he has had symptoms for 20+ years but were mild and put down to other things.

Not sure i have a question. But just trying wrap my head around whats to come. And if he is now going to be bed bound.

My husband 73 y/o was diagnosed with Parkinson recently after 8 years of tremors, weakness (on one side of the body). His diagnosis were opioids taking or conversion disorder. He is still taking oxycodone and clonidine. He has severe constipation. He is low on B12, Zinc, D (taking supplements). Now neurologist wants to give him Sinemet. I've read you can't stop it.

Anyone experiencing tremors, weakness and was misdiagnosed with Parkinson? I am new to this subreddit and doing my research as it seems my husband is giving up. Any help would be greatly appreciated.

I was talking with a traveling nurse who mentioned it. So I'm curious....n

Specifically I'm referring to all those SPARX studies/results that show that intense exercise leads to slow progression of PD. Unless you're an athlete or in very good shape, how realistic is it to expect at 50-70 yr old to sustain such intensity for half an hour? (I'm 59) The discouraging aspect is when you read the results that show that "moderate" exercise doesn't seem to affect symptoms. Am I reading the results wrong? I'm asking coz the real question is: How do you get beyond the mindset that, if I can't reach an intense level, what's the point? And yes, I know there are other benefits to ANY kind of exercise, but I feel like I'm spinning my wheels (pun intended) here, with questionable benefits awaiting. I won't stop cardio & weight training & stretching, but any added input will probably help my motivation. I feel like I'm trying to get a picture of Bigfoot. I want someone to tell me he's not real so stop trying haha.

[For reference, I'm physically able to jog slowly, was doing a Run/Walk/Run program till I sprained my back, now am trying incline treadmill walking, I do strength training 2-3 times a week, & am trying to force myself to do more stretching. I also do Nintendo Switch boxing. But running/walking til I am "unable to talk in complete sentences...?" Not so much.]

I've gotten several emotional boosts from reddit (surprisingly!) so that's what I'm hoping for here!! TIA!

I have been affected by double-vision. Nearly always when using a laptop, also often while watching tv. Even in a car. In moving car my eyes have trouble with the scenery flying bad. Rain on the windshield? Makes to close my eyes.

I walk at 3am a lot. I was along at the side of a road surrounded forest., In the distance there was a kind lamppost light. A stationary light. Yet as I looked at it while continuing on the road, the light moved. It moved right and left as though it was a flashlight light held by someone running side to side. It also moved up and down. I stopped walking and continued to stare at it and it behaved the same way. It can be tested by staring at bright star. Anyone else have this strange PD symptom?

Hi - my dad (75M) seems to be near the end of his fight with PD. Looking for anyone with similar experiences to chime in on how you dealt with situation.

My dad was diagnosed with PD 12 years ago. He’s been on a slow decline since. We moved him into memory care facility early 2025, he was hospitalized for 10 days in Nov 2025 from aspiration pneumonia and was discharged barely able to swallow. Subsequently we entered him into hospice back at his memory care facility thinking he only had days left, then he miraculously rebounded back to pre-hospitalization.

Unfortunately he’s been really struggling over past month. He sleeps for much of the day, but when he’s not sleeping he is restless and agitated. As result he tries to get up often (including at night) but is falling 5-6 times a day, and is bruised all over his body which is clearly causing him a lot of pain. He suffers from delusions and hallucinations non stop and my mom can barely understand him now.

He is on a lot of rytary (147.5/585 5x a day) and seroquel (200mg 3x a day). He just finished a round of antibiotics for suspected UTI.

Two days ago, The hospice nurse suggested putting him on morphine (0.5 ml 3x per day) to deal with the pain, and start to taper off both the seroquel and rytary until cessation. I read this as a way to let his disease take over and let him pass with as little pain as possible.

We think adding morphine and tapering off the seroquel makes sense and will likely move forward with that. The reducing Rytary part gives me some pause. Does anyone have experience with this with their late stage PD loved ones? How did your loved ok experience it? Would appreciate any perspective!!

Hey everyone, I’m hoping someone here can help us put into words what my mom is experiencing so we can better explain it to her doctors. We’ve searched and searched, but we’re having a really hard time finding descriptions that sound like what she is experiencing.

Some background: my mom was diagnosed with Parkinson’s in June 2025. She has always been extremely active. She’s a fitness and yoga instructor who teaches 15+ classes a week and works out almost every day.

Her first noticeable symptom was that, during our daily walks, her right arm suddenly stopped swinging. Shortly after her diagnosis, one of her biggest symptoms became what she describes as an internal vibration/tremor. Other than that, she was able to continue living her life pretty normally.

Recently, she started having these episodes that are very difficult for her to describe.

It starts with a very specific sensation in her left upper thigh/leg. She describes it as feeling like the muscle desperately needs to be "released" or "unlocked." However, when we actually touch the area, the muscle does not feel tight, cramped, or locked up.

Then something else happens: that sensation seems to trigger an almost immediate full-body feeling of panic/anxiety and an overwhelming urge to move.

During an episode, she feels an almost unbearable need to move or get away from the sensation in her leg. She describes the panic as being completely overwhelming, almost like her entire body and brain are screaming that something is wrong. The episodes can last anywhere from a few minutes to several hours.

Originally, these episodes were happening maybe once every few weeks.

About four days ago, she started a new medication, and since then the episodes have increased dramatically. She is now having them repeatedly throughout the day, sometimes with only a few hours of relief between episodes. She stopped taking the meds.

Obviously, that sudden change has us concerned.

We're also struggling with how to even describe this to her Parkinson’s team. Does this sound more like a Parkinson’s motor symptom, dystonia, akathisia/restlessness, a medication side effect, or something else? And how do you distinguish whether the panic/anxiety is causing the physical symptoms versus the physical sensation triggering the panic?

We are waiting for her next appointment with her Parkinson’s team, but the sudden increase in frequency has us worried that we’re missing something.

If anyone has experienced something similar, I would really appreciate hearing what you called it, how you described it to your neurologist, what you eventually learned was causing it, and what helped.

We’re not looking for a diagnosis from Reddit, just trying to find the right words and some experiences that might help us have a more productive conversation with her doctors.

I've been on c/l for a year and a half now. About a month ago I started vomiting. Assumed it was food issue, so I avoided the most likely culprits. Still happening, sometimes twice a week. No fun.

I'm happy to provide more info, but wondering if any of you have been through this? Mr. Google tells me this is not an uncommon occurrence, and it appears there are studies about it.

Anyone here experience this? Any solutions? And yes, I'm messaging my doctor as well.

Thanks folks!

Does anyone use a red light therapy device? It seemed like research showed promising results, but all the posts seem to be posted roughly 3 years ago. The red light helmet that is mentioned as being used in the trials is a Symbyx Biome helmet. I went to their website and it has ceased operations.

I’m so confused why the studies showed promising results yet they aren’t selling the red light helmet anymore. Anyone know more?

I want to get one for my husband, but I can’t figure out which one is best and questioning the therapy if they aren’t selling the helmet anymore!

my dad was diagnosed with Parkinson’s about a year ago. He was on Sinemet for about a year. The neurologist did a skin biopsy test, which came back negative for Parkinson’s so they told him to stop taking the Sinemet.

He was off of it roughly fall of 2025 and April 2026 he contracted Covid. He very quickly got worse. His tremor became worse. His shuffling became worse. He developed chronic insomnia, and impending sense of doom that he was not going to make it

In mid June 2026 the doctors decided to put him back on Sinemet. He has not improved in fact his tremor which started out as his left hand is now his left arm and into his lips. It is also starting to affect his throat he says.

His insomnia is chronic getting maybe four hours of sleep each night. He has no mood no tone in his voice. He is emotionally flatlined. He says he just can’t handle this and hopes that it doesn’t go on much longer.

As a daughter, this is heartbreaking to watch. I’m trying to learn as much as I can. Parkinson’s and reach out to any and all support that I can to help find assistance for my dad.

Anyone else restless? I don't mean Restless Leg Syndrome. I mean just like your mind makes you get to do something, frequently and so you can't just do nothing or remain focused on one thing.

my mom recently underwent DBS, 3 months post op. symptoms greatly improved! we have regular check ups with her MDS. from our latest check up, she was advised by her MDS to have a daily diary of whatever comes in her mind as well as to practice her motor skills in writing and for her memory to be active as well. may i ask if some of you also keep a diary? what are the usual entries do u write? tyia!

My father (58), was diagnosed with PD last October 2023.

I remember my dad started having tremors when he was in his 40s. At the time, I didn’t know much about Parkinson’s and didn’t realize that he should have been evaluated by a neurologist. I was only able to have him checked in 2023 when I became more familiar with the disease and finally had the means to do so.

Since then, his condition seems to have progressed very quickly, within just 3 years. I’ve read about many cases where progression took a decade or more, so it got me thinking.

2024, he could still walk on his own and do a few chores. Then by Nov of 2025, I noticed him having difficulty balancing his body to walk and his falls also became more frequent despite continuous and monitored medication.

We’ve had regular checkups with his neurologist this year, and they’ve prescribed some new medications for Parkinson’s, but the effects seem to be the same. His constant tremors on his right hand haven’t gone away.

He can still stand, but he can’t safely walk on his own now because his alarming tendency to fall out of balance. His posture has become asymmetrical, and his right side (his dominant side) is limping. We have to assist him when walking, going to the bathroom, everything. His speech has also become slurred.

His current prescription is Levodopa + Carbidopa 250 mg/25 mg, 1 tablet in the morning and half a tablet at lunch and dinner + 2 mg of Ropinirole per day.

I spoke with his doctor after his last checkup, and he said it’s possible that my father could develop dementia someday, and it pains me whenever I think about it.

I’m wondering if anyone here has had a similar experience, particularly with PD that seems resistant to medications like Levodopa, or if you were advised to undergo additional tests. Really difficult to see him progress this quickly. I’d really appreciate hearing about your stories, especially if your family member had rapid progression or didn’t seem to respond well to their meds.

Here's a webinar from my MDS at Cedars Sinai. I have personally received great relief from some of the treatments he describes in this presentation. https://davisphinneyfoundation.org/events/dystonia-in-parkinsons-what-it-is-and-how-its-treated/

I'm 73F diagnosed 1.5 years ago, Today I feel totally drained of energy and can hardly stay awake. No unusual activities, but do have my 10 year old granddaughter staying with us. She is. very low.key and a great helper. I want to do things with her but can't seem to find the energy.

Any suggestions to get me going?