30yo male, Mom is beginning hospice and has fought Parkinson’s 15 years
Decided to post here since this new change with my Mom. It’s been really tough on my family and I. I’m sure some of you can relate a lot. 2 years ago she came very close to the end during a hospital stay but surprisingly bounced back a bit and has since been requiring 24/7 care which my dad is the primary caregiver for her. It’s taken such a toll on everyone and the switch to hospice hasn’t provided any timeline for us but is more to make my Mom as comfortable as possible, which is my biggest wish for her. I believe she has continued to fight and push through this shitty disease for her kids (3 of us, I’m the oldest). We hadn’t been mentally ready for her to go but in the last couple years just don’t want her to suffer. I think she is more prepared to leave us now and has commented a little on it when her speech allows.
I’m finding that through all of this I have grown a bit numb to all the negative emotions and feelings I once had daily. Although this start to hospice has brought back all the heavy feelings again. I don’t want to regret anything so have been spending as much time as possible with my Mom/family. I hope that on the other side of this we can all push through and be there for one another. I’m just really scared for this transition. Any advice would be appreciated