u/Meg-A-Lo-Maniac

Hi, this is NOT fungal. My derm team believes this is from "repeated Mastocytosis flares." These were words from the department "nail expert." I am always in a "flare,' it seems. In the grand scheme of things, this is technically the least of my major concerns. But, damn it..I just want to know what's going on and to have my normal feet back! Earlier, I was told this was not due to my Systemic Mastocytosis, so now I am having g to talk to my Onc/Hem about it..and him speak with the dermatology dept. Anyways, anybody else dealing with something like this? They just keep growing and cracking over each other. One is even lifting one of the cracks up. Sorry about your eyes having to witness this atrocity..thank you for reading!

Hi, I have been sick for a long time..particularly the past six years have been the worst. I am at a teaching hospital and got diagnosed last year, after seeing specialist after specialist..still am. I have currently been in a clinical trial since the beginning of this year. I am my Dr.s most physically symptomatic patient, especially with my skin. Nearly every doctor I have seen, whether a specialist or in the ER, believes I have Lupus. I have been tested, but it was a "low positive," and this was years ago, around the beginning..I also did not like this rheum. I have a daily painful, hot malar rash, spots, etc. My shoulders and chest, too..and, of course, mastocytosis spots all over my body. There are just SO many symptoms going on at the moment, and I feel lost. I was wondering if anyone has dealt with low iron/ferritin issues? I keep having to get ron infusions every so often because my reserves get so low. As well as multiple diagnoses..and how were they approached/figured out? Thank you for reading!!!

Anyone Have Toenail Issues? It's Only My Two Large Toes. I Am Extremeley Embarrassed To Post, But Want Any Info If Other's Are Dealing With This. I Have Systemic Mastocytosis, In A Clinical Trial, Female, 38.

I Have Systemic Mastocytosis, Currently In A Clinical Trial. Does Anyone Have Low Iron Issues/Iron Infusions? My Onc/Hem Believes There Is Some Other Involvement. I Have Dysautonomia, A Lot of Neuro and Rheum Symptoms Going On. Female, 38 Yrs.