Helping people close to you understand HSD
hi everyone!
i’ve had HSD for as long as I can remember, but it’s recently gotten much much worse and has brought an awful lot of fatigue with it, to the degree that I have a “working diagnosis” of ME/CFS.
this has meant i’m way more limited in what I’m physically and mentally able to do, and includes a lot of pain.
how do you explain to people close to you in a way that they can understand that this isn’t a “you should exercise more and then you’ll be fine” or a “well you wouldn’t be able to run 5 miles with that kind of thinking“ issue…. Like put a full stop to that in a way that isn’t to telling them to shut up lol.
I’m finding it really exhausting to be continually met with comments that very clearly suggest that this is a personal failure and I need some help with effective wording to stand up for myself and suggest how they can educate themselves