Hallo ich hab vor paar Tagen gefragt wie ich wohl einen Arzt finden könnte der mir LDN verschreibt. (Mein Hausarzt will sich damit nicht befassen) Hab darauf den Rat bekommen bei der City Apotheke Göttingen nachzufragen, die haben mir auch 3 Ärzte vermittelt. Die nehmen leider alle keinerlei neu Patienten und die City Apotheke sagt mir jetzt es gibt sonst keine in meiner Region. Hat noch jemand andere Ideen?
Ich war bei meinem Hausarzt und der möchte leider mit LDN nichts zu tun haben. Gibt es vielleicht irgendwo eine Liste von Ärzten die sich mit ME/CFS auskennen und bei denen man zur Sprechstunde kann? Oder persönliche Erfahrungen aus der Region? Lebe zwischen Hamburg und Bremen.
Please only bother if you have the spoons to spare. tl;dr at the bottom.
My doctors told me I might have POTS when I was in a mandatory improvement/assessment facility for my benefits. They only told me about it in passing after I crashed and tested my pulse and BP standing and lying down. My GP also got that note in my report at the end but basically passed over it as well.
Since they both didn’t really mention it or dive into it I figured it was a minor thing, but reading on this subreddit makes me think I might have been very wrong?
I finally got myself something to track my vitals with and noticed that my pulse is around 45 while lying down and shoots up to 100 as soon as I stand and stays there.(stood in place for 10 minutes) It also goes back down to 45 in less than 20 seconds after I lay back down.
How important do you think treating/ getting this diagnosed is? Should I not have dismissed this so easily like my doctors?
Tl;dr: I might have POTS and ignored it because my doctors also pretty much ignored it.
Met a doctor for another reason and he told me I should try modafinil and prescribed them to me. Anyone have any experience? The only other person with ME/CFS I know went from moderate to very severe after some doctor pushed for him to take some sort of uppers in the morning and sleeping medicine for the evening so I am worried.