u/Minimum-Ant5926

Hey yall. 27 M in Tennessee looking for a second opinion for my new TMS diagnosis. Has anyone ventured down to Mayo Clinic in Jacksonville? Was it worth it?

Hey yall. Im 27 (M) in the US. went to the hospital june 6th of this year. Spent 3 weeks there and got diagnosed with TMS on July 2nd. Started BRIUMVI a few weeks later and did the last half of it Tuesday.

So last Wednesday, the day after BRIUMVI pt. 2, i had MRIs to do so my neuro could get her own. I met with her the next day, so Thursday, and she told my i had 2 brain lesions active.

I has new symptoms like really bad jaw pain and she started me on IV steroids this past Friday.

I say all this to ask if anyone has had a flare this quick into diagnosis or treatment.

That you in advance!!

Hey everyone. 27 (M) went to the hospital june 6 2026 and got diagnosed with TMS on July 2nd.

Started Briumvi 15 days ago. Awful flu like symptoms the night of the first infusion. Did the second half of it yesterday snd it went great! No reaction whatsoever.

Today i had MRI of my C-spine and brain with contrast. I got home like 2 hours ago and i honestly feel like crap. I have a headache and it feels like cold sweats or something.

Has anyone experienced this kind of situation??

EDIT: i have felt fine all day at work until after i got out of MRI

27(M) in Tennessee with a pretty small fed agency. I was diagnosed with Multiple Sclerosis and will probably be getting medically separated since my agency is so small, they won’t be able to find a similar job i can do with similar play and blah blah blah.

Ive been in the national guard for the last 6 years and with this agency for 1 year.

I guess my question is what the hell should i do?

Do i need to get a Nexus letter to “prove” my MS is service connected or since its “presumptive” am I okay to not provide one?

I completed my first infusion about 3 hours ago.

Ate before showing up to the appointment.

Brought coffee. Gatorade. And a protein bar with me.

They gave the Pre-meds which made me a little sleepy. Especially that early in the morning but it wore off quick.

The infusion took roughly 4-5 hours and after it was done they had to monitor me for an hour.

Its now 4 pm local time for me and i have a slighttttt headache but nothing crazy. Ive been drinking a lot of water since i got home.

This is just my experience and hopefully it can help someone out. And DEFINITELY have someone drive you to and from if you can. It definitely helps.

Does anyone know if taking creatine while having MS is okay?

Has anyone been on Briumvi? That’s scheduled to be my first treatment and im curious how it affected you?

Does anyone have or know a MS i guess wellness coach. Someone to talk about supplements and work outs with?

So i (26M)got diagnosed with Tumofactive MS (IDK how to spell it) about a week and a half ago.

My neuroinunologist wants to put me on Briumvi. Anyone have any experience with that?

Also for work my agency is going to force me to retire/leave them. And the army also already started my Medical review board for the National Guard. Anyone go through this?

Did anyone feel like they just don’t know what to do after getting diagnosed. I know im new to this and im sorry. Im just frustrated.

So i got diagnosed with M.S. a week ago and my unit initiated a Medical Review Board so im still figuring that out. I have been in the army for 6 years and hadn’t claimed anything before. Any recommendations on where to go from here?