4 month post flow diversion angiogram results, feeling anxious
I’m four months out from flow diverter #1 and three months from flow diverter #2 for my 23mm fusiform ica terminus aneurysm. I had been on triple therapy (aspirin, brillinta, eliquis) due ongoing issues with decreased vision on the affected side as well as headaches.
Although there was foreshortening of the second flow diverter, I had complete coverage of my aneurysm neck still which was good news. However, I had moderate stenosis in parts of my FD so I’m to remain on eliquis for another three months until I can get another angiogram. My aneurysm remains the same size, still with brisk inflow and contrast stasis. My neurosurgeon said everything looked good.
My left vision is dim/hazy and likely to remain this way permanently. My headaches are evolving, they started off at the top of my head right after the second FD and now it’s concentrated around my left ear and back of head. I feel tightness and pressure most of the time and my neurosurgeon said it’s from the aneurysm thrombosing. I know I’m lucky to be alive and still be able to see somewhat out of my left eye. But..
I feel frustration with my neurosurgery team. I don’t know what I don’t know and I’m finding out more about my aneurysm as complications arrive. I didn’t know FDs can migrate, occlude, fail especially in large/giant aneurysms. I thought I was safe from catastrophic complications like delayed rupture but am realizing how arduous this healing process will be, assuming no further complications arise. I don’t know what to think about my situation, if this is common and if I’m going to live a normal life someday. I haven’t been able to go back to work. My toddler loves going to this museum that’s an hr away but I get nervous traveling too far by myself should something happen.