r/BrainAneurysm

Hi, did anyone had an experience in additional treatment such as having spiritual experience or energeticly changing to beat the aneursyms?

I know google search just points to cliping arteries but it's 7 billion people, there must be a way to reverse.. how we say for things that they come and go.. how come this can develop but not go outside of the body...

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I had my aneurysm clipped on Monday. Today I had the last of my lines unhooked and I'm feeling pretty good. On one hand I'm very overwhelmed at the thought of looking after the wound on my head (I have curly hair) and on the other, I'm feeling optimistic. The pain has been pretty bad but is subsiding, and to be honest, is a lot better than I thought it would be.

Girls - when could you brush your hair? Any tips? 😬

Although I feel tired and lazy, my mind still feels like my own. I've been taking it easy with screens and I seem to be fine!

I had a right posterior communicating artery (PCOM) aneurysm 2.5mm x 2mm.

Looking for similar stories / experiences after a severe ruptured brain aneurysm
My dad (59yo) suffered a ruptured brain aneurysm with extensive subarachnoid bleeding almost 5.5 weeks ago. He initially underwent open-brain clipping, during which the artery ruptured again but was controlled. He subsequently developed severe brain swelling + large secondary stroke (left side), and required a decompressive craniectomy.
He remained unconscious after sedation was stopped, with very limited movement (GCS 3). He only responds to pain in what they call ‘extension’ which is apparently the worst type of response to have. Prior to the swelling he was actually showing meaningful movement in the left side of his body (localisation). The doctors have described the neurological damage as severe and his prognosis as extremely poor. They wanted us to remove his breathing tube as they thought there is no hope for him but we declined.
He eventually had a tracheostomy and was successfully weaned off the ventilator. He is now in the ward, but remains in a coma/unresponsive state.
They believe he will likely die in hospital from secondary complications.
Has anyone had a family member with a similarly severe aneurysm/brain injury who remained unconscious for weeks after surgery and later showed meaningful recovery? I know every brain injury is different and I’m not looking for medical predictions, I’d just really like to hear from people who’ve actually been through something similar. At this point I cant tell if we are delusional in hoping for a miracle ❤️

I survived a subarachnoid hemorrhage + iih In December 37yo/f

Since then I’m struggling with severe bouts of random anxiety

Anyone else? Tips to help? It’s really bad

Everyone says I’m so luck I survived but I’m suffering

Some history, my dad died relatively young (44) from a large aneurysm. His dad, my grandfather was hospitalised years before that with something brain related. But the details on that are sketchy at best. Sone say small aneurysm whilst other family members say migraine related. Though, I do remember my grandfather wearing what was weird types of glasses (they were yellow and grey lensed) at all times during the 80’s. So that kinda backs up the migraine theory. But the simple truth is, people of my grandfather’s generation hid illnesses and never spoke about them. They were treated as dirty little secrets.

About a month ago i (m 50) was blue lighted to hospital with what was later diagnosed as a thunderclap headache. Horrific experience. After a CT it was deemed benign. I have suffered from migraine with aura since my 20’s and I know this wasn’t a migraine.

At A&E I was given a referral to a neurologist as I was told the cause needed further examination with an MRI etc and because of my family history.

Got in with a neurologist and I have never felt so brushed off in my life. The conversation basically boiled down to “migraine. NEXT!!!” Zero other investigations.

A week later my gp received a letter from the neurologist stating “chronic migraine” and a list of meds were suggested. It touched up the aneurysm likelihood by stating as I had only one confirmed close relative, they weren’t going to look further into it. Which is fair enough as what happened to my granddad is an unknown.

My main concern here, though, even if there was a direct family trend, it was stated they don’t tend go looking for them as many are inoperable or in very dangerous and high risk areas. Has anyone else been refused screening? I do get why it’s better people don’t know they have an inoperable time bomb.

On Monday August 10th I had a craniotomy to clip an aneurysm on my right ophthalmic nerve.

Now I’m back at home and going slightly crazy. My hair is matted and disgusting, the headaches while expected and not nearly as bad as I thought fluctuate in location, intensity, and type, no way I arrange my body feels comfortable, and my default activity, reading, just makes the headaches worse.

I’ve got five weeks left of forced recuperation and FMLA, how do I stay sane?

Any and all advice greatly appreciated.

Today is the 8 year anniversary of my ruptured aneurysm. It was caught on the MRI during my radiation screening and had surgery booked but it ruptured just as the surgery began. I am very lucky to have been in the hospital when it happened. Even though I’m not the same person I was before, I’m trying my best and still getting used to all the changes. I would like to thank this community for being so supportive and validating because I’ve heard the words ‘you look fine, there’s nothing wrong with you’ too many times when I haven’t been able to get my concerns addressed. To everyone going through this, the little things matter and need to be celebrated. I hope you all have a wonderful day.

Hello everyone! I’m a 37 year old female and mother of 2 who was diagnosed with a SVAD march of 2024. Unlike so many others I’ve read about, I have no idea when it happened. I started having headaches 6-7 mths postpartum and my symptoms where a burning sensation to my forehead/sinus area, frequent debilitating headaches (they are still frequent but not as severe) and trouble with vision/ability to focus during a headache, and weakness in my arms/upper body when I had a migraine. This was severe enough to affect my ability to pick up my son. I got an appt with my primary and asked him if he could order an Mra on me. I’ve had them in the past due to severe migraines but they were always noted to be normal. I have several family members (paternal grandmother paternal great aunts/uncles, and a paternal 1st cousin who have had strokes and aneurysms. The MRA showed what at the time was thought to be a possible congenital block and I was assured I was probably born with it. I was sent to a neuro interventionalist and Further tests where ordered (MRI, CT, and CTA) It was determined that the dissection was new and no cause could be determined. I had a few neck adjustments prior to the symptoms but didn’t note any significant changes after the adjustment that would lead us to believe it happened from that. The first time I remember noticing symptoms I was at work charting on a computer and got my first headache/burning/vision blurred. I was told to take a baby aspirin daily after my results and sent on my way with a prescription for nurtec for headaches. I trusted the doctor and went about my business. I recently restarted medication for adhd and after a month realized it might be smart to touch base with my neuro interventionalist doctor and see if that med was ok with my history of dissection (I mentioned the med at my visits with him but due to breastfeeding was not currently taking at that time) I don’t remember any concerns being voiced at that time. When I called to get an appt they informed me that he had moved to a diff state (I was never notified) his office gave me information on a new interventionist and they worked me in. A few days before my appt I bent down and had a near syncope episode and lost vision for ab 30 seconds I’m glad things happened the way that they did bc after reviewing all my records he noted other areas of concern that my old doctor hadn’t mentioned. Apparently I hav at least one other area that shows some signs of narrowing or kinked appearance in my carotid artery on my left side up under my eye. My SVAD was on the right side. (These where on my cta scans my other doctor performed and my new doctor plans to do a repeat mra for any changes) He also mentioned that he’s not sure why they didn’t start me on a medicine that would have possibly helped regenerate blood flow or help heal the dissection which was never mentioned by my other doctor. He said with my age and health history (no history prior to my dissection other then ADHD) he suspected some sort of genetic component and recommended I see a geneticist. He also stated I should get established with a neurologist and referred me to one that he said was good with managing headaches post SVAD. I don’t know why my last interventionist didn’t see the need to have me followed by a regular neurologist. When I got home, I started reading cases of other people who had had a spontaneous, VAD and the link between connective tissue disorders and FMD and it appears that a lot of of them got their diagnosis not from a geneticist, but through their CTA results. My current interventionist didn’t mention my CTA having a FMD appearance, but he also recommended I see a geneticist and from what I read, they can’t diagnose tissue disorders anyway. Correct me if I’m wrong. But now I’m wondering if he would’ve been able to see a FMD appearance on my CTA even if it was there. Is this something my regular neurologist can look out and determined for me? If you have had a spontaneous Vad and it was determined it was from a genetic cause please let me know your experience. Tests ordered, what specialist you saw, how you got your diagnosis, and plan of care post diagnosis. I would love to hear other people’s experiences on their journey from start to finish. Any symptoms you had, how it was found, what they determined caused yours ect. I’ve also read if it’s a genetic component that it can also affect the renal arteries but no one has mentioned checking those areas for me. Have any of y’all that have a history of spontaneous dissection had any other test throughout your body to make sure you didn’t have areas anywhere else? Who would be the doctor to order that if so.

Update: i forgot to add they also done a cerebral angiogram during all of this. I was thinking that test was called a cta but it was more invasive than that. I did have a mra, mri, and cta but they also did the angiogram that showed the dissection was a recent injury

I hope this all makes sense. I had this typed up and tried to save it and it erased part of it and I had to start over lol! Hoping I didn’t repeat myself or leave out any important parts

First and foremost I know this is a rant, if it's not allowed I'm sorry, just delete it. I don't know where else to turn.

It's been nearly 11 months since my aneurysm ruptured. My daughter was 18 months old when it happened, she's now nearly two and half. I'm fucking TIRED.

It's embarrassing listening to other parents talking about how they get so much done and are just as tired as I am. I need to nap for minimum one hour a day or I am a zombie, but often I'll drop her off at daycare and come home and just sleep for 4 hours until I need to pick her up again. My house is rarely put together, and when it is my partner and toddler just rip it apart again. I'm not working. I've started an online course to help myself feel productive and give me a starting point to work again but I am struggling SO badly. My short term memory is shot. I never look put together. I've gained 30kg because everything tasted bitter after my aneurysm so I'd add so much sugar to everything (this resolved itself but my weight hasn't). I only weaned my daughter a couple of months ago so I don't know if that's contributing to it, but it's definitely thrown off my hormones and now my hair and eyelashes are falling out. I want to join the gym but I'm already exhausted, and my partner is scared that working out will put me at risk of another aneurysm (I don't think so but it's been an ongoing disagreement).

I'm just so embarrassed and ashamed. I didn't want my daughter to think of me as lazy or untidy, I wanted to play with her and cook and clean and give her the childhood I never had, but now I feel like at this point she'd be better off if I'd not been so "lucky". I don't know how to get back to how I was before all of this, I know it could take years but my baby won't wait for me, she won't be a baby anymore by then and this version of me will be all she gets until then. I don't know how to cope with any of this, and no one around me does either. How the fuck do I get through this????

I have posted here before, I went unconscious 1/15/2026 and lost feeling on the left side of my body. After a CT they found my 2 cm aneurysm. They coiled it, and a 3 weeks later it grew to 2.5 cm, and they coiled more and added a stent. 3 weeks after that it started to fill rapidly again, and they added a flow diverter.. THEN it happened again 3 weeks later. They put me in an ambulance and sent me to Cleveland clinic for further treatment of my unstable (uncooperative) giant aneurysm. They treated me with meds and sent me home to wait it out. On May of this year I finally got good news that my aneurysm went from 2.5 cm to 1.7cm. I spent June and July COMPLETELY hospital free since JANUARY! Until this week. This week I got news that my aneurysm is FILLING again. Even more than in April. I had an Angiogram on Monday to figure out next steps but it looks like they plan on clipping the "branch" that doesnt have the stents but is feeding the aneurysm. The other option is bypass. I am looking for any tips or tricks that you loved or needed during recovery after a craniotomy

Hi! My wife is 37, and has a diagnosis of cEDS (classical Ehlers-Danlos surgery). After months of double vision and migraines, it was discovered she had a giant (28mm) right cavernous ICA aneurysm. On Tuesday she had a flow diverted with coils placed via femoral artery and all the CT scans and everything are fine, and she was discharged on Wednesday. We ended up returning to the ER on Thursday because the pain was so unmanageable. Between Tuesday and Friday, she was mostly at an 8 on the pain scale, which for her is a pretty big deal because she has a chronic pain disorder and a high pain tolerance. Since then she’s gone down some but she’s usually hovering around a 6. Most people’s experiences seem to be relatively free of pain but I’d just love some reassurance that maybe she isn’t doomed to be in pain for the rest of all time. What were your experiences like if they were at all similar?

Hi everyone,

I’m the caregiver for my mother who had a brain aneurysm (and subsequent stroke) in 1985.

She was put on plavix about 5 years ago for prevention.

I’m just worried because her balance isn’t great and she is a fall risk.

I’m wondering if she really should be on the plavix or if there is something “safer”?

Thanks for any advice.

My mom survived a ruptured aneurysm 7 years ago. She recovered fairly quickly, was awake and talking after 2 days, able to walk with assistance after a week or 2, was eating solid foods without choking after a month and a bit. And finally released from the hospital after 2-3 months. She really is doing so good. But for all intents and purposes I lost my mother that day.
Her personality has shifted? Or maybe it’s more like she reverted to a child, though she has grown to be more like a teenager at this point. Anyway, she doesn’t like us, her children, we are adults but we used to be so close prior to the rupture. She is so angry and full of rage and how she expresses herself is to be mean, to say hateful things. She is very selfish and hates when we distance ourselves but hates when we are with her. We are all emotionally exhausted, tired of being verbally abused at her whim.
I don’t know if I’m looking for advice, or if I just need to get it out. I just miss my mom so much.

I went to the ER today following a thunderclap headache. They discovered a (potentially incidental) 2mm “blister aneurysm arising from the inferior aspect of the distal right cavernous carotid artery”, whatever that means. As it’s so small, low risk for rupture, so I need to follow up with neurologist and most likely monitoring. Scared because blister aneurysms sound very risky and can change rapidly, per my research. I’m usually a very joyful person with lots of gratitude for a blessed life, but this is giving me such anxiety. I feel like a ticking time bomb. How do you live with this?
Oh - 52y/o female, in relatively good shape, but I do vape (I know I need to stop asap).