My wife survived a brain aneurysm bursting in April and was hospitalized for 38 days. Home recovering now but clearly not able to go back to work yet. I'm assuming she's not eligible for disability as she will get well (and is)? Also, should we file for unemployment since she can't work at her old job now?
I recently found out by chance that I have a 1.9 mm saccular aneurysm. My doctor said it’s not an emergency, but he recommended a flow diverter stent procedure. I’m 29 years old and honestly very scared of the possible risks and complications.
Do you think waiting around 3 months would be risky? I really want to have a nice summer before going through the procedure. Since I discovered this incidentally, it still feels unreal to me.
Hey there all entering wk 7 pipeline stent install into a giant unruptured in posterior fossa. I still have a ton of dizziness 24/7, vision issues etc. I’m reading in here many of you have your illness symptoms eventually go away and that is encouraging since mine are so awful I can’t wait!!! Please comment and share I could use the encouragement and a dose of patience it staking a long time for any improvement for me because my aneurysm was so large.
Hi everyone,
I was recently diagnosed with a very small intracranial aneurysm:
Location: left ICA distal / MCA bifurcation area
Size: approximately 1.9 mm, saccular aneurysm
Right vertebral artery is dominant
I have no hypertension, I don’t smoke regularly, and there is no family history.
My doctor has suggested a flow diverter treatment. He said we would do a DSA and potentially proceed with the procedure in the same session, but ultimately the decision is up to me.
I also heard from him that he has seen even 1 mm aneurysms in this region that have ruptured, which is influencing his recommendation toward treatment.
I wanted to ask:
Has anyone here had a similar very small (around 1–3 mm) MCA/ICA bifurcation aneurysm and was treated with a flow diverter?
Or did anyone choose observation instead? What was your experience and outcome?
I’m trying to understand real-life experiences in addition to medical recommendations, especially for such a small aneurysm size.
Thank you in advance.
My dad suffered a brain aneurysm rapture last night after days with headache.Since then we were transported to a different hospital,he can communicate fine he makes jokes even.They monitor him and he is sleeping constantly.The surgeon told me we have to wait until tomorrow to know how to approach this(what kind of surgery)but its already been 24 hours since he had it,shouldn’t the surgeon act immediately?Please help me.
A family member had a massive aneurysm rupture. The surgeon said it was 30x the size of the average aneurysm.
He has been unconscious since it ruptured a week and a half ago. There are some movements, but none that we can call consistent or purposeful yet. They do seem to be improving though.
I'm wondering if the size of the aneurysm matters for prognosis or recovery? The doctor said he's behind where they'd like him to be, but is that perhaps due to the size? And if so, what does recovery look like? Is he more likely to have significant impairments down the road? Has anyone recovered from a very large ruptured aneurysm and can give a personal account?
After my flow diverter stent surgery for my 22mm unruptured aneurysm, I was referred to follow up with a neurologist in the neuroscience dept of the hospital. I never saw him in the hospital. Because I live in Hawaii and not on Oahu where the medical center is, both of my visits with him have been via telehealth. I have not enjoyed him either time. I feel he is dismissive, lacking empathy, generally just unlikable, and now rude.
I saw him via telehealth today and told him I think I am struggling with my memory, forgetting things constantly and within seconds. He said “okay… how would you like me to address that?” I was shocked! Perhaps I gravely misunderstand his role in my care, but it seems all he is interested in discussing is my steroid taper. I have had a fever for 8 days. All of my labs are clear and do not show signs of infection. I asked him what he thought about it and he said “I have no idea why you have a fever. It’s not related to what I’m seeing you for. You’re allowed to have other things.” Again, I was shocked. How would I know if a fever is related to any of the 9 drugs I’m on, or having a foreign body in my brain, or being on steroids? Is there no better way he could think to respond?
On top of his baffling communication, he has repeatedly answered questions by saying “well I don’t know because I don’t really see people with giant aneurysms.” Then why the hell am I on your service! How do I go about requesting to be transferred to a different provider? This is the only Neuro center on Oahu, and I really do like my neurosurgeon and his fellow.
Did anyone else experience this post procedure? I am 33, and have spent the last 8 years as an executive assistant for an international organization, managing multiple projects and events at once. To forget things constantly is not my norm.
Edited to add: I am not stupid, so I understand that if my knee hurts it’s probably not because of my aneurysm. However, I’m just so frustrated that this doctor can’t seem to access any empathy for the huge anxiety that comes after having a medical event like this. Worrying about every headache, and neck pain, etc. having a fever for over a week with no explanation is not normal, and I don’t think it was an unreasonable question. 😔
My father (54M) had a ruptured ACOM aneurysm with WFNS Grade III SAH. He underwent left pterional craniotomy and clipping about 2 months ago. He is in recovery stage now and he is getting irritated easily and he is tired most of the times .
I may sound a bit selfish here, but this has been weighing on my mind deeply.
When my father was admitted with a ruptured ACOM aneurysm, the doctors gave us two options — clipping or coiling. Clipping had to be done immediately. Coiling would take around 3 days because of logistics, and the doctors explained there was a significant risk of re-rupture during that waiting period, especially since his BP was unstable at that time.
So I chose clipping.
Today, seeing his struggles during recovery — especially the emotional changes, irritation, and the impact on our family — a part of me keeps wondering whether coiling would have made things easier for him. I’m truly grateful that he survived and is still with us, but deep down I sometimes replay that decision and question myself.
Has anyone else felt this kind of guilt or second-guessing after choosing a treatment option for a loved one? Especially families dealing with ruptured aneurysm recovery?
I’m a 47y/o female who had a ruptured brain aneurysm with subarachnoid hemorrhage late Dec. Aneurysm was coiled and mris look good. Cognitively and physically I’m doing remarkably well. Back at work (from home) since March and generally living life like I did before. EXCEPT, I feel awful. Anxiety, jitters, jumpy, and I feel like I’m just going through the motions, not really “in” life. My dr. says my nervous system is dysregulated and it will take time to heal. I wake up gasping for air and feel anxiety all day. Some days I can shower and put on a brave face but it’s always a performance. I tried an SSRI for 16 days and the activation was intense/awful so my dr took me off it. I know I should be so grateful to be alive but this kind of life is torture. I never feel relaxed or at peace. I don’t know why I’m even posting this, but I’m kind of at my wits end and don’t know what to do/think. Wondering if anyone else can relate and I would appreciate any advice.
Has anyone survived vaspospasms with decrease consciousness? My mother is 6 days out from a ruptured aneurysm and hemorrhage stroke. She was doing beautifully until this evening! I am terrified
My mother suffered a ruptured aneurysm last week. Because of the location, they were unable to clip it. She went into surgery, and just as we were about to see her afterward, she was rushed back into emergency surgery to stop another bleed. They had to remove part of her skull to relieve the pressure, and at that point we were told to say our goodbyes.
Tomorrow will be one week post-op, and thankfully she definitely knows who we are. She can move her left side, nod yes and no appropriately, and last night she even wrote us messages.
I know recovery from this can be very unpredictable, but I was hoping for any insight on what we should expect moving forward and what we can do to help her recovery as much as possible.
hi! can someone tell me if I really am having a thunderclap headache??
just yesterday I had a really bad headache that lasted about a minute or two and it hurt so bad that I screamed pretty bad and for some reason I started feeling a bit sick a few hours later (im a bit confused about this part cause research says I should go to the doctors but they never specifically said if it was an onset fever or a fever that came later on) and I had a few vision changes too, I'm a bit more sensitive to light than usual and my vision blurred just a bit more than usual (I don't have 20/20 vision but it was something I noticed)
I am also a minor and I'm scared to tell my mother about it cause it also feels like I am just overreacting over a sudden headache.
Hi all
I have two aneurysms on my left carotid (ICA) that are close to a branch that may be the posterior communicating artery ( or choroidal unsure). One is irregular wide neck 6 mm and the other is next to it 2 mm noodle (?) like one. I have 50% narrowing of the artery right before the two aneurysms.
I have two opinions. One from a major teaching hospital and both agree bridge stent is the way to go.
Due to my ‘unusual’ anatomy of very tortuous arteries, narrowing and artery branch it is a complex case.
Have any of you made a decision with a complex case? Similar?
Trusted neurosurgeon says risk of rupture next 25 years is 25% and the risk of surgery is 10% complication. Of that 10% there is a 3% risk of life changing complications (death major stroke)
Any lived experience to share will be very appreciated.
I am 51 and my kids are 22 and 20.
I want to have courage to do the procedure but I am so scared for my family.
Thank you so reading
💗
Hi everyone,
I’ve been thinking a lot about this lately and wanted to get some advice.
My mom passed away from an aneurysm (cerebellum aneurysm) when she was 39, and it’s been on my mind more and more as I get older. I’m wondering if this is something that could be hereditary and if I might be at risk too.
Part of me wants to get checked just for peace of mind, but another part of me is worried about going down a rabbit hole and stressing over something that might never happen.
Has anyone here been in a similar situation?
Did you decide to get screened, or did you just move on without focusing too much on it?
I’d really appreciate hearing your experiences or any advice.
Thanks 🙏
I'll have my first catheter angiography with contrast in three weeks for further diagnosis of my brain aneurysm.
I have EDS so I'm ultra high risk for complications after Covid infections which is why I still have to be very careful including masking indoors without exception. I have read that my head will be fixated during the procedure and that the x-ray machine is close to my head too so I'm wondering if there is enough space to wear my regular headstrap kn100 or earloop kn95. I also have a readimask (you can stick that directly to your face) but would prefer one of the masks I always wear.
Should this be no problem and does anyone have experience doing this procedure masked? Maybe even from back when masks were mandatory? I'm very anxious of the procedure as is and knowing what safety measures will be possible would take away a big part of my nervousness.
21 F unruptured Fusiform Aneurysm + Thrombus on MRA 8 x 11.5 mm
hi! i am mostly making this post to ask for people's experiences with stents and such.
i have a rare type of aneurysm and have actually made a post in this thread two years back when it was originally found out about but last week i found out my aneurysm got bigger! and half of it thrombosed.
i am honestly scared down to my bones but the doctors told me since they only see a case like mine once a year they are stumped on what to do. i am going into surgery tomorrow for them to place a stent through my entire MRA (hopefully, they have to confirm with another angiogram if this is possible) but.. most of the time stents do not go through the entire artery but because mine is so 'unique' that is one out of two solutions (other is opening my skull). what is everyone's experiences with stents and were you able to go back to living a normal life?
what i am most terrified about is not being able to return back to uni or completing my degree when i am so close to being done especially since my doctors told me all the risks of a stent, my chances are tripled since itll go through my entire artery.
