r/BrainAneurysm

Thank you, best wishes and a simple goodnight x

Today marks one week since my brain aneurysm clipping.

It's been a strange week. In some ways it's gone incredibly quickly. In others it feels like months ago that I was lying in pre op waiting to be wheeled into theatre.

The first couple of days were mostly a blur. Pain. Nausea. Intravenous anti nausea medication. Some fairly serious painkillers. Neurological observations every couple of hours. Blood tests. Blood sugar checks because of the steroids. Then trying to get whatever sleep I could before someone gently woke me again to shine a light in my eyes and ask me where I was.

I was discharged on Friday, but unfortunately I was sent home a little too early and on the wrong dose of steroids. By that evening my brain had started swelling again. The headache became unbearable and I ended up back in hospital by ambulance early Saturday morning.

Thankfully everyone recognised what was happening almost immediately. The steroids were increased, IV fluids were started, the pain medication was adjusted, and over the next day or so things settled back down. I was discharged again today, exactly one week after surgery. They even removed my staples.

Oddly enough, washing my hair afterwards felt like one of the great luxuries of modern civilisation.

There are some experiences nobody really prepares you for. Vomiting after brain surgery is one of them. You know, rationally, that everything is secure. You trust your surgeon completely. Yet there's still that ancient little part of your brain quietly whispering, "Are you sure this is okay?"

The constipation from the opioids brings on its own equally irrational panic. You find yourself thinking that somehow using too much effort might undo everything. Looking back it's almost funny. At the time it absolutely wasn't.

What surprised me most wasn't the surgery.

It was the ward.

Compared with so many of the people around me, I was incredibly lucky.

There were people recovering from ruptured aneurysms. Brain tumours. Severe head injuries. Patients whose skulls had been temporarily removed because the swelling simply had nowhere else to go. Some couldn't speak. Others couldn't remember conversations they'd had five minutes earlier.

One gentleman kept saying he needed to go and check on the cars. Over and over again. I have no idea what his life looked like before he came into hospital, but whatever responsibility he carried before all of this was still sitting somewhere deep inside him. The nurses would patiently ring his son, who would reassure him until he relaxed again.

Across from me was an older couple. I assume they were husband and wife. He barely left her side. For hours he'd simply sit there rubbing her feet. No speeches. No grand gestures. Just quiet devotion.

To my left was another family who seemed to fill the room with warmth. They brought music. They laughed with him. They talked to him constantly, whether he could answer or not. At one point someone jokingly broke the news that LeBron had left the Lakers. It was probably the biggest reaction anyone had managed to get out of him. He slowly lifted his hand, gave the camera the middle finger, and the whole room burst into laughter.

For thirty seconds everyone forgot they were in a neurosurgical ward.

Those are the moments I keep thinking about.

People often describe illness as a fight.

I don't think that's how it felt.

For most of this experience I wasn't fighting anything. I was a passenger.

When you're under a general anaesthetic you surrender completely. You're trusting people you've only just met to breathe for you, monitor every heartbeat, watch every number on every screen, and quite literally hold your brain in their hands.

It made me realise something that I probably should have understood long ago.

Real progress often comes from accepting help.

Not resisting it.

Not pretending you're stronger than you are.

Just accepting that none of us gets through life entirely on our own.

Over the past week I've heard from people I haven't spoken to in years. Friends. Family. Old workmates. People I barely expected to remember me. Complete strangers on Reddit who took the time to share their own stories and reassure someone they'd never met.

Every single message mattered.

Hospitals are extraordinary places.

Not because they're filled with heroes, although there are certainly plenty of them, but because they're full of ordinary people quietly doing extraordinary things together. Surgeons. Nurses. Cleaners. Orderlies. Pharmacists. Ward clerks. Kitchen staff. Occupational therapists. Physios. Paramedics. People who refill water jugs, empty bins, clean bathrooms and change bedsheets.

None of them are the centre of the story.

Every one of them is essential.

This week has made me feel incredibly small.

Oddly, that's been comforting.

It reminded me that underneath everything else, people overwhelmingly want to care for each other. You see it in families who refuse to leave a bedside. In nurses explaining the same thing for the tenth time with exactly the same patience as the first. In someone rubbing their wife's feet for an entire afternoon because that's all they can do. In a son answering yet another phone call. In a cleaner quietly making the room feel human again.

I don't think I'd ever really seen that before.

Or perhaps I'd just never slowed down enough to notice it.

I'm still swollen. My hair is doing whatever it wants. I probably look a little strange.

But I'm still here.

Still me.

And I suspect this week has changed me in ways I'll only understand months or years from now.

To everyone who checked in, sent a message, made a phone call, visited, or simply thought of me, thank you.

To the people I shared that ward with, although we'll almost certainly never meet again outside those walls, thank you.

And to every person who helped carry me through one of the most vulnerable weeks of my life, whether you were holding a scalpel, serving a meal, cleaning a floor or simply sitting beside someone you loved...

thank you.

Ps i wouldnt have usually let AI play with my words but in my current state I don't think I could have gotten them out any other way.

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u/Intrepid_Wonder_8551 — 15 hours ago

Title: 25M — Incidental 2 mm left cavernous ICA aneurysm on CTA. Prior CTA said no aneurysm. True aneurysm vs normal contour?

First 3 images are Jan 3rd
Last 3 images are June 30th

Age: 25
Sex: Male
Height: 5’9”
Weight: ~247 lb
Location: Utah, USA
Smoking/vaping: I vape/use nicotine. Previously used a lot of caffeine/energy drinks but have mostly stopped/reduced.
Relevant medical history: Juvenile nasopharyngeal angiofibroma/JNA as a teenager, treated in 2017 with right-sided sinonasal/skull-base surgery and pre-op embolization. Mild obstructive sleep apnea.
Current issue: Incidental possible aneurysm found during a CTA head/neck done for right-sided numbness/altered sensation.

Main question:
On 6/30/2026, I had a CTA head/neck at University of Utah during a stroke-type workup for right-sided face/arm/foot altered sensation. The CTA report noted an incidental **2 mm broad-based left cavernous ICA aneurysm**, laterally directed. The same report said there was **no large-vessel occlusion, no intracranial stenosis, no extracranial stenosis, no carotid plaque/stenosis, and no dissection**.

The same day, I had an MRI brain that showed **no acute infarct, no hemorrhage, no mass, and no acute intracranial pathology**.

What makes me confused is that I also had a CTA head/neck on 1/3/2026 at Brigham City Community Hospital, and that report said **no aneurysm, no stenosis, and no occlusion**. When I look at the images myself, I can see a small contour/bulge in what looks like the same left cavernous ICA region, but I can’t tell whether it is a true aneurysm, a normal carotid siphon/cavernous ICA contour, or something borderline.

Relevant imaging/history:
- 2017 diagnostic cerebral angiogram/embolization for right JNA: as far as I understand, no aneurysm was reported at that time.
- 1/3/2026 CT brain: no acute intracranial abnormality.
- 1/3/2026 CTA head/neck: report said no aneurysm, stenosis, or occlusion.
- 6/30/2026 CTA head/neck: reported **2 mm broad-based left cavernous ICA aneurysm**, laterally directed. Otherwise no LVO, stenosis, carotid plaque, or dissection.
- 6/30/2026 MRI brain: no acute infarct, hemorrhage, mass, or acute intracranial pathology.

Blood pressure concern:
I regularly check my blood pressure. Because I’m having symptoms often, my BP readings are usually elevated unless I am completely at rest. During episodes, it tends to spike around **155/105**, then as the episode wears off and I’m resting, it comes down closer to **115/75**. I’m trying to understand whether these temporary spikes matter much for a tiny cavernous ICA aneurysm, or whether the main concern is long-term average BP and whether the aneurysm is truly cavernous/stable.

Symptoms:
My symptoms are mostly right-sided altered sensation in my face/hand/foot, but the aneurysm finding is on the **left** cavernous ICA. I’m assuming it may be incidental, but I’m not sure.

What I’m hoping to understand:
- Does a **2 mm broad-based left cavernous ICA aneurysm** generally sound low risk if it is fully cavernous/extradural?
- How often can a tiny cavernous ICA “aneurysm” actually be normal vessel contour/carotid siphon anatomy?
- Could the January CTA have missed it or just not reported it?
- Should I ask for a neurovascular radiologist to compare the actual January and June CTA source images/MIPs/3D reconstructions side-by-side?
- Would MRA surveillance be enough, or would DSA/catheter angiogram ever be used to clarify true aneurysm vs contour?
- Do temporary BP spikes during symptoms make this more concerning, or is sustained hypertension the bigger issue?
- What follow-up interval is usually recommended for something this small if confirmed?

u/Suspicious_Yam685 — 1 day ago

Has anyone had someone who didnt wake up after surgery, if so, what did u do?

My dad, 75, had surgery for a ruptured aneurysm little over 2 weeks ago. He still hasnt woke up yet, without any sedation. His vitals are good. They started giving him Ritalin yesterday morning hoping that would help him, but it hasn't so far. Has anyone experienced anything like this, if so could u give some details or advice on what to expect. Is there still a chance that he may come out of this okay? Been so stressful, hoping and praying for him to wake.

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u/DB80023 — 3 days ago

Husband is currently having cerebral angiogram for 2 aneurysms

He has 2 aneurysms in his basilar artery. I’m really just looking for support while waiting in the waiting room. I’m very anxious but hopefully they’ll be done soon.

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u/UnstableTable- — 5 days ago

Feelings after Subarachnoid Haemorrhage

I (27M) had an SAH last Monday whilst in the gym and have been in hospital for the last 10 days whilst the doctors try to work out what happened. I have just had a second angiogram to to confirm that no aneurysm was present and they seem to think it was just a random thing and that I over exerted myself in the heatwave we’ve just had in the UK.

I’m feeling a lot of different emotions right now, obviously there’s a huge amount of relief as I know I’ve been so lucky to come out of this with no obvious physical or mental effects, I realise this is very rare and I know I’ll never take that for granted. The people I have met in the brain injury ward have all been so lovely and many have not been as lucky as me in terms of long term effects. Brain injuries are so cruel in their suddenness and what they take away from people.

Although I feel extremely blessed, I’m also extremely nervous about going back to real life knowing that this could happen again, the doctors are saying that I have just as much risk as anyone else of that being the case, but the anxiety is going to be very hard to get past I think. Does anyone have any tips of how they were able to get back to a normal life?

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u/hodge1999 — 5 days ago

My mother won’t stop behaviors that make it worse

To give a little back story my mom had a brain aneurysm in November 2024 in the bathroom of our apartment. I found her on the toilet foam coming out the side of her mouth I called the ambulance, The doctors told her she was very lucky to make it out of surgery alive. She has had a stroke in the hospital and almost lost her life in surgery . The doctors told her not to smoke or drink due to the fact she has another aneurysm lying on the part where your brain and nerves connect, and at anytime due to those activities causing irritation it can burst. As a result she can end up dead or paralyzed. Ever since my mom got out of the hospital she has been back to partying smoking and drinking. She has had several seizures, 3 including the one she had tonight with me and I don’t even know how many when she is outside with her “friends”.
I guess I’m writing this to ask any advice on how to deal with someone you love that won’t stop hurting themselves even when knowing the things they do is bad for them. I am emotionally tired and traumatized seeing my mom in that state. I am terrified thinking about the possibility that she will end up dead just because she won’t stop drinking/smoking

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u/Octopusinajar — 5 days ago

So all done!

I had my clipping procedure on Monday morning.

My doctor smashed it out in 2 hours and 15 minutes.

He was a pretty proud of this and how good the incision was.

The first 48 hours were the worst for pain and vomiting. The vomiting then also made the pain so much worse.

I didnt eat or drink essentially anything for those two days, getting all fluids via IV and lots and lots of oxycodone.

Not that I have ever used these for non medical reasons, I noticed almost no "high" from my 10mg every 4 hour dose. Just noticed the pain was dimmed. Tapentadol weirdly enough worker better for the pain, something to keep in mind.

So my face is super puffy (couldn't open my right eye for over day) but I am taking a turn for the better.

The team here is incredible.

So much good in the world; just the idea that dozens of strangers drop everything to save your life.

Best of luck wherever you may be on your journey.

Much love,

P

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u/Intrepid_Wonder_8551 — 6 days ago

Hello from 10 years post clipped aneurysm

I'm about to go through another surgery (knee), and spending time on the reddit boards over there made me realize that it's always useful to see a post with a completely successful outcome when you're stressing out, so I thought I would post here.

Ten years ago, I had a large middle cerebral artery (MCA) aneurysm clipped. It was asymptomatic and found incidentally by a stroke of very good luck. Despite everything being absolutely terrifying, the clipping and recovery went perfectly. I was in the hospital for five days, home in my third-floor walk up apartment and on anti-seizure meds for six weeks, and then back to normal. The worst part was the anti-seizure medication--slowing down my thoughts for six weeks.

I had clear scans at 1- 2- 5- 7- and now 10-years, and I'm now on a 5-year scan schedule, and the least interesting thing my surgeon experiences every few years. So. This is just me here, telling you a very boring story about a very ordinary and successful outcome, in the hope that it can give you a little comfort if you're feeling nervous.

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u/Ploughmanslunch1 — 7 days ago

Post flow diverter procedure for Ica aneurysm

Mostly to share my experience in a slow but positive outcome after my flow diverter procedure. I was diagnosed with an ica aneurysm fairly big size. It was a worrisome time but I took trust in neurosurgeon. They recommended the option of a flow diverter due to the wide neck. It’s been a year and the diverter is working, there has been change slowly and it’s at a very small point from when the procedure was first done but I’m not rushing the process mostly grateful it was diagnosed in time. I will have a check up in a year from now to see if it has fully healed. I’m not on blood thinners which was a new thing to get used to but currently on aspirin low dose every other day. How’s everyone’s experience? I’ve read some procedure’s require aspirin for life, every other day and some are fully off aspirin . Is this the case for someone in a similar experience?

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u/Extension-Ad2919 — 7 days ago

fenestration v aneurysm

Hey everyone,
Just wanted to post here to see if anyone can give me a bit of peace of mind while I play the ultimate NHS waiting game.
To give you the quick backstory, over the last 9 months, my left pupil has randomly dilated about 28 times. It always goes back to normal after a few hours. My neurologist did a full physical exam, said it was completely normal, and told me it’s just a harmless migraine glitch affecting my eye. My regular MRI and CT scans were totally clear and showed absolutely nothing pressing on my eye nerves.
But on my recent MRA, they found a 4mm spot at the front of my brain on the ACom artery. The report says it could just be a fenestration, which is a harmless split in the blood vessel I was born with, or a small aneurysm. To figure out exactly what it is, I went in for a CT angiogram a whole month ago.
That brings me to why I'm losing my mind and so stressed tonight. It’s been a full month and there is literally zero sign of the scan on my NHS app. It hasn’t been uploaded, and the neuro department hasn't replied to my emails, so it feels like it's just vanished into a black hole.
From what I've read, that specific artery is way at the front of the brain, and the nerves that actually control the pupil are further back. Am I right in thinking that even if this 4mm spot does turn out to be a tiny aneurysm and not just a harmless split vessel, it physically cannot be the thing causing my eye to blow up?
It’s so incredibly stressful sitting in administrative limbo waiting on a head scan report, even though I keep trying to tell myself the hospital would have called me straight away if it were an actual emergency. Just looking for a bit of reassurance on the anatomy and how long these app updates usually take. Thank you so much.

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u/natils — 8 days ago

Ongoing fatigue after unruptured aneurysm clipping

I had an 8mm unruptured ICA aneurysm clipped back in April 2025. For the most part, I have most of my energy back. I no longer need to nap in the middle of the day -- and just need to close my eyes for a bit at the end of the day after my 8-9 hours at my computer. But I still have issues where I get completely wiped out from something as simple as meeting an old friend for lunch. When this happens I feel like crap and like I have a major hangover. Is this normal? I don't go out with friends too often because of it. Sometimes when I go out I have no issue. But other times I feel like I am physically and mentally trashed. I know that I used to feel this way a lot more frequently, so it IS better, but I really want to know that someday I won't have to feel this way ever.

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u/Bitter-Raise4889 — 8 days ago

Had my clipping yesterday

Just wanted to provide a quick update and some reassurance. Had my clipping surgery yesterday afternoon (it’s now next morning). I have pain in my temple, ear and jaw on that side but other than that I am sentient and thinking relatively normally, just dizzy from the drugs. My op was delayed for 5-6 hours but that was probably the worst bit. Honestly, this is way more manageable than I thought it’d be so please try not to panic if you’re starting out on your journey.

For background: 34F, fit, 7mm ICA aneurysm, non uniform.

EDIT: Sorry I should have said, yes I have pain but it is easily manageable with meds. Nothing worse than a migraine so please don’t worry x

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u/StillUnit5976 — 10 days ago

Ruuptured brain aneurysm

Day I had a ruptured brain aneurysm in May and had coilling I am currently struggling with blurry vision in left eye went to hospital twice had MRI scan which doctor say it's okay. I also have this pressure between my breast that makes me feel very uncomfortable and worried.I also developed a UTI and doctor gave me Ciprofloxacin.

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u/Express-Raspberry433 — 9 days ago

Can I ask for a copy of my angiogram?

I’m due a follow up scan on my ventricular artery brain stent 8 months post operation, am I entitled to have a copy of the images from the NHS?

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u/CallMeJanners — 8 days ago

Had angiogram which revealed 1.2mm right internal carotid artery aneurysm - not sure what to do next given lifestyle.

Hello,

I recently had an angiogram done, which revealed a 1.2mm aneurysm. I know this to be small, but the doctor still gave me the option of preventative surgery or wait 6 months and get an mra.

The reason he thinks the surgery may be a good idea is given my lifestyle as a competitive level lifter. I'm training about 3 hours 6 days a week. I eat very clean, blood pressure sits at 115 over 60 about. So I'm pretty healthy in general. But the lifting can be risky with the aneurysm

I'm sure most of you have heard that it's hard to know what to do since they don't know if the aneurysm always been there or not.

What does reddit think? I know it's my call, but it would be nice to hear thoughts from people who've been through the similar process.

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u/corgispls — 11 days ago

4 month post flow diversion angiogram results, feeling anxious

I’m four months out from flow diverter #1 and three months from flow diverter #2 for my 23mm fusiform ica terminus aneurysm. I had been on triple therapy (aspirin, brillinta, eliquis) due ongoing issues with decreased vision on the affected side as well as headaches.

Although there was foreshortening of the second flow diverter, I had complete coverage of my aneurysm neck still which was good news. However, I had moderate stenosis in parts of my FD so I’m to remain on eliquis for another three months until I can get another angiogram. My aneurysm remains the same size, still with brisk inflow and contrast stasis. My neurosurgeon said everything looked good.

My left vision is dim/hazy and likely to remain this way permanently. My headaches are evolving, they started off at the top of my head right after the second FD and now it’s concentrated around my left ear and back of head. I feel tightness and pressure most of the time and my neurosurgeon said it’s from the aneurysm thrombosing. I know I’m lucky to be alive and still be able to see somewhat out of my left eye. But..

I feel frustration with my neurosurgery team. I don’t know what I don’t know and I’m finding out more about my aneurysm as complications arrive. I didn’t know FDs can migrate, occlude, fail especially in large/giant aneurysms. I thought I was safe from catastrophic complications like delayed rupture but am realizing how arduous this healing process will be, assuming no further complications arise. I don’t know what to think about my situation, if this is common and if I’m going to live a normal life someday. I haven’t been able to go back to work. My toddler loves going to this museum that’s an hr away but I get nervous traveling too far by myself should something happen.

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u/MyUnrupturedAneurysm — 10 days ago
▲ 2 r/BrainAneurysm+1 crossposts

Stable carotid artery dissection

Hi, I’ve had a staple carotid artery dissection for 3 1/2 years. I take baby aspirin. I don’t have high blood pressure and I don’t have high cholesterol yesterday, I got one of those massages at the mall. I asked them not to touch my neck and they generally did not but they touched my head a lot and my shoulders. I woke up like this today, but I feel absolutely fine and I have no loss of vision. I need to leave to a vacation within the hour with my family and it’s a 10 Hour Dr. do I need to go to the hospital?

u/firedfed22153 — 9 days ago

Brain Aneurysm

Hello my name is AL I have a brain aneurysm I’ve had several cerebral angiogram’s and almost passed away when my surgeon infiltrated my artery on my last procedure no I have neuropathy in both legs and feet. I have to get surgery again anything helps God bless You and may the force be with You!

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u/Lord-Have-Mery26 — 12 days ago