Hey Bresties! I had my first one today, besides a pit in my stomach and no appetite, I am ok, anyone have any advice on what to expect , I feeel like my anxiety is killing me, I am still anxious of what is to come… 😩😩😩
Hey All, so I have Breast cancer and I been cold capping and although I finished my first phase of chemo 12 weekly chemos I know have graduated to four stronger chemos that will probably wipe more of my hair, I lost about 15-20 percent and have some bald spots and I have def less density. I have gone to get some consultation at some wig places and I don’t want to spend $2k plus for a hair topper and she said at the time like a month ago I had to much hair for a wig, which I don’t get because I thought yiu can wear a hair net or something and wear a wig, Anyhow I don’t want to spend a lot on a wig but if anyone hear can send me some options of some wigs I have a bob right now and all my hair coloring I had like a balayage is basically gone, so any options of reasonable pricing would be great! Thank you all in advance!
Hey everyone! I’m starting AC chemo soon, and I’m honestly terrified. I’m sure many of you felt the same way before starting it, I did pretty ok with the T&C part.
I have a major fear of vomiting, so the nausea and vomiting side effects are making me especially nervous. My oncology team has suggested a medication plan to help prevent it, but I wanted to check in here and hear about your experiences.
Which anti-nausea medications were you given during the infusion, and which medications were you prescribed to take at home? What combination worked best for preventing or controlling nausea and vomiting during AC?
Thank you so much for sharing. Hearing what helped others would make me feel a little more prepared. Any insight would be great.
Hey! So besides the awful sideeffects that come with cancer and chemo, I now have acne or rosacea or both, my derm isn’t really helpful she gave me some rosacea cream and now since I am of darker skin, I have all these dark marks where I had some pimples, they are all very small like pimples. Anyway anyone here experience this and did it go away after chemo , and what helped subside these pimples or rosacea from getting worse ? Anyway, anyone have any advice or insight , what helped with the acne and hyperpigmentation, any advice would be great. Thank you! 🙏
Hey everyone! I’m hoping someone has gone through something similar because I’m getting so frustrated.
Around infusion #4 I got a terrible rash and my team thought it was the Taxol, so they switched me to Abraxane. They even did a skin biopsy. Thankfully the rash eventually went away.
Then I had my next Keytruda infusion…and the rash came right back. It’s not as bad as the first time, but it’s still all over my legs and other areas, super itchy, and honestly embarrassing. I can’t even wear shorts or a dress in this heat because of how it looks.
The only thing they’ve given me is a steroid spray. I’m seeing the dermatologist again on Thursday, but I’m worried it’ll be the same story. By the time I see her, the rash will probably have mostly faded, she’ll tell me to keep using the spray, and then next week I’ll get Keytruda again and it’ll flare right back up.
Has anyone else had this happen during KEYNOTE-522? If so, did anything actually help? A different steroid cream, another topical medication, antihistamines…anything? I honestly don’t think this spray is doing much. It seems like the rash just settles down on its own with time, and it definitely isn’t helping the itching.
I’d love to hear what worked for you because I really don’t want this to be my life every three weeks. 😩
Adding pictures of the rash and the steroid spray for reference. ❤️
Hey everyone, I just need some advice or reassurance as I am on my 6th T&C chemo, on the Keynote 522, and I went from not shedding any hair to last week after 5 chemo shedding hair every time I pass my hand to my head any one have any advice or gone thru the same thing and didn’t go completely bald by the end of this, I know this just another thing we can’t control because cancer takes these choices from us ? but I am just having a day , and any advice or opinions would be great and thank you all…. I have some pics of what this has been looking like daily.. 😩 Those pics are of me passing my hand or brushing my hair just hair constantly comes out..
hey everyone! need some advice I been on Tacol and Carbo and on my 5 th infusion I didn’t get taxol because I had a rash all over my body from the 4th Infusion, they had me see a derm and she is suggesting I switch to Abraxane , any one gone thru this so far with Taxol and carbo I know my symptoms are fatigue and constipation. Anyone have a similar story switch to Abraxane and symptoms remained the same or did they have other symptoms to worry about? Thank you all!!
Hey everyone, happy monday starting chemo in a week, Keynote 522, any advice on fasting before it I been reading that some people fast before chemo but trying to see if it makes sense or anyone has had success. Any advice would be appreciated!
hey all, any insight after each week anyone feel better like just seems like weekly do you ever feel normal before next infusion? Appreciate any insight.
hey guys my start date was going be May 11 but because my stupid tooth had to be fixed and I have to take antibiotics they are delaying me a week, I have 4 cm tumor was diagnosed April7 , but I have two or three lymph nodes involved anyone else has had a similar experience, a 41 day between diagnosis and treatment!? My MO gave my dentist the green light I have all the tests already done I am sure she seen them so I am just scared it spreads, Asking for any advice or anyone that has been in my boat?
Hey all, I kno I should stop googling I start chemo soon and trying to get my low VITAMIN D up because read online said if you have low V-D you have more chemo side effects, anyone went into chemo low Vitamin D, and was able control symptoms with the meds given etc, I know regardless Chemo comes with side effects but I saw it’s worse when it’s so low’, any insight would be great to calm my anxious mind. Thank you.
Hey everyone, any advice on which cold cap to use starting process of a fitting before my chemo date and wanted any advice if I should go with Penguin or Paxman, I am doing treatment at MSK in NYC and o think they offer both, but wanted to check and see which had more success. I can’t control anything at the moment and I know I am taking a gamble and might still lose my hair, but here is to trying. Thank you all in advance… 🙌🏼