
🙌 ADHD UK have posted a new tool helping us track the RTC changes in each local area
https://adhduk.co.uk/nhs-area/
If it was there on the website already, I must have missed it, but I think its new.
Coincidental timing for me, as this week I actually started having a deep dive into this to try and be seen faster, so THANK YOU to whoever has been working on this, because the information out there right now is so vague.
Early days and obviously based on sparse info but the effort that has gone into this will help a lot of people, because the national Right to Choose info they had about waiting times is becoming less relevant as more local health boards adopt funding changes.
If anyone is unfamiliar, many local NHS authorities (Integrated Care Boards - ICBs) have introduced IAPs (Indicative Activity Plans) for the Right To Choose providers- which are effectively quotas/limits on how many patients each provider can see each year. In some cases I'm seeing evidence of them being set so low it amounts to a de facto block on referrals.
Aside from the Right to Choose issues, one interesting stat it's showing me is that in my area, Manchester, our local NHS ADHD service has been seeing less than two people per day on average. That's for the last two years that we have data for. LESS THAN TWO PATIENTS PER DAY. In those two years the amount of people waiting has roughly doubled and was already in the thousands.
The picture I'm getting (my opinion, we don't have enough facts yet) is that ADHD care isn't just lagging, struggling, or even forgotten about. I believe it's being intentionally obstructed in some areas.
The new ADHD UK tool is including advice on how to complain about this and exert pressure, something I will be trying to do as much as I can.