I have pretty severe FND. Seizures, legs are useless, arm issues, hand issues etc.
What kind of exercises can I start doing to keep active, as running / walking is out of the question.
I have an exercise bike, so am willing to give that go lightly, but what other things can I be doing?
Hey there.
Based on the UK. I’m the type of person who understands that life happens and I don’t expect instantaneous replies. Just when you can. Looking for someone who thinks the same.
So, I am massive nerd. Into everything from Games, TV, Movies, love to read (Stephen King fan) and love all things like fantasy, dark fantasy, mysteries, etc.
I’m down to talk about anything and everything. I like to talk and snap, and someone who does the same would be ideal.
I’m open to everyone so send me a DM
Hey.
Looking for some nerdy friends to chat and snap with.
I’m the kind of person who understands life happens and I don’t expect instant replies, just when you can. Would like to chat with people with a similar philosophy.
I’m a nerd who loves to game, read, and watch movies. I’m a history geek and love to spit out random history facts.
I’m happy to talk about anything and everything. So come and say hi.
I’ve been on Duloxetine for about a month now, having been switched from Citalopram, in order to help ease the FND symptoms.
I’m at the point I just can’t function, the fatigue - which has always been bad - is now horrendous. I can’t keep awake. I have to work and I’m struggling to get through a day.
I know they say about 6 - 8 weeks for the best results but is there any way I can manage the fatigue symptoms in the meantime? Has anyone had it ease up?
Hey guys.
I’m from Wales, UK and looking to chat with some nerdy friends.
I’m into everything from Star Wars to LOTR. I game, read, write, love movies and TV. And am happy to talk about anything and everything.
Age is no bother to me, as long as you’re over 18.
Send me a message for my snap.
As a follow up from my post several weeks ago, I was awarded Standard Daily Living and Standard Mobility (based on how I am and my issues, I was definitely expecting to get Higher Mobility)
But, having just received the report, I feel I’m in a bit of a paradox.
One of the comments they made in the report was around my driving. They said as I wasn’t using an adapted mobility car, that some of my comments weren’t used in consideration- Well, yes, but you need to be receiving the higher mobility to get an adapted mobility vehicle. So, of course I’m not using one.
I stated in my assessment that I was currently using a cane to get around, but would need a second cane, a rollator, and most likely a mobility scooter or power chair to get around, and stated I would look at purchasing these if I was awarded PIP, as they were currently out of my affordability. They stated in the report that as I didn’t currently use these, they didn’t consider high tiers of the mobility portion.
Right… 🙃
I also lost points on getting in and out of the bath (because I don’t use an adapted bath / shower), nutrition (because I don’t use specialist equipment), and toilet needs (as I don’t rails or harnesses to assist me) - All of which I stated in the assessment I needed but couldn’t currently afford (hence attempting to claim PIP)
But god help me - I feel like it’s a paradox. I can’t get those things unless I get the PIP but I lose points on the assessment for not already having them. Please, explain to me how that works? 😂 isn’t that exactly what the PIP is for?
Being disabled is damned expensive.