I'm deteriorating and have almost nobody to take care of me
My parents are very abusive, have been all my life and still are. They are publicly (amongst their friends) kinda advocating for ME/CFS but in the little contact I have with them they blame me for 'sleeping all day', not being able to sleep at night, spending my days in bed, 'not wanting to get better', complaining that my condition is not getting better and blaming me for it...and so on. really nasty things and basically everything which is stereotypically how ableist people treat people with ME/CFS.
I have no siblings, no cousins in my age, no uncle or aunts in my life, no other family members, no friends that are truly understanding, and my boyfriend and I are in a very toxic relationship. Yes he helps me once a day still (he moved out), but i kinda have to beg for it and it's always paired with complaining and forgetting a lot of things i ask him to do and outbursts of anger and blaming.
I'm getting worse day by day, been stable with mild until 2 years ago but now I'm moderate and it's getting worse and I'm scared shitless to become severe and actually die, because there is nobody to take care of me. How are so many ME patients so lucky and have families that take care of them? I have nobody, only my boyfriend, but I'm assuming he will be gone soon too.