u/Nervous-Nebula-2114

▲ 19 r/cfs

I'm deteriorating and have almost nobody to take care of me

My parents are very abusive, have been all my life and still are. They are publicly (amongst their friends) kinda advocating for ME/CFS but in the little contact I have with them they blame me for 'sleeping all day', not being able to sleep at night, spending my days in bed, 'not wanting to get better', complaining that my condition is not getting better and blaming me for it...and so on. really nasty things and basically everything which is stereotypically how ableist people treat people with ME/CFS.
I have no siblings, no cousins in my age, no uncle or aunts in my life, no other family members, no friends that are truly understanding, and my boyfriend and I are in a very toxic relationship. Yes he helps me once a day still (he moved out), but i kinda have to beg for it and it's always paired with complaining and forgetting a lot of things i ask him to do and outbursts of anger and blaming.

I'm getting worse day by day, been stable with mild until 2 years ago but now I'm moderate and it's getting worse and I'm scared shitless to become severe and actually die, because there is nobody to take care of me. How are so many ME patients so lucky and have families that take care of them? I have nobody, only my boyfriend, but I'm assuming he will be gone soon too.

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u/Nervous-Nebula-2114 — 3 hours ago

Desperately looking for non greasy body sunscreen SPF50

I tried many that have claimed that are non greasy and ultra lightweight. Even Eucerin Body Dry Touch, which many love, was very greasy on me.

So I' desperately looking for really light weight body sunscreen. Any tips?

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u/Nervous-Nebula-2114 — 1 day ago

My friend stole my best friend and ghosted me (one year and counting) to get rid of me.

A friend of many years (lets call her Alice), beginning in the studies, ghosts me now for one year, very deliberately. I thought we were really cose friends in a friend group consisting of my best friend and 2 more friends. I all introduced them. I now realized that she always wanted to get close to my best friend (she is indeed very cool), and took the first difficulty in our relationship and take it as an out and labeled me as dramatic and difficult. My best friend and her are closer than ever. Now I admit, that was a thought out plan of hers. But I wanna get some pretty revenge.

My plan: I know her current boyfriend, she doesn't know that. I want to post as if the boyfriend of hers was active on dating apps and post him in a group she's part of, where women share when man play them. I'll make a fake convo and profile and let that roll.

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u/Nervous-Nebula-2114 — 4 days ago
▲ 26 r/cfs

Completely depressed how my life turned out

I knew this moment would come, and now it has come. I've been sick since I was 19yo. Diagnosed when I was 24yo. Now I'm almost 33yo. I used to be mild, since a few years moderate. Gave it my all to keep fighting, now for 13 years. Now, Stuck in a not loving relationship with an avoidant, which is causing me a lot of stress. No way to have children, really bad health only getting worse.

My lifelong dream was to have 2 kids and a loving husband. A nice job as well, but the social aspects have always been the most important part to me. I grew up in an abusive household as well ( and next to ME also have CPTSD). This week I have heard about 4 people I knew from childhood, school, years ago, that they are now all new parents. And I'm happy for them, I really am. But I just broke down. Everything I have imagined for my life will never be real. I'm stuck in my home, in my bed often. If I at least had a partner, who would really be here for me, it would be more bearable. But like this my life feels completely wasted and pointless. I feel like in this tiny piece of normalcy I had, I made the wrong choices, even though I tried so hard to make the right choices, but obviously I didn't. Also friends, which I have deeply cherished, are distancing themselves, because being friends with someone who is chronically ill is so much, even though I already don't tell them about 70 percent of how hard it really is. I really feel, that people in my life, don't actually care about me or my future or what will happen to me.

I knew I would have to witness everyone becoming parents, building a life, because somewhere along those 13 years of being sick, I lost hope I will ever get better. I knew it would hit hard, still I wasn't prepared for this deep emotional pain. I feel so deeply sad, i cannot express in words how much.

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u/Nervous-Nebula-2114 — 12 days ago