u/New_Sea_6680

It would be cool if either happened. It’s too difficult waking up to do nothing all the time. Getting treated like I have chosen being ill or that somehow I have imagined this disability. My GP seems to switch from grave concern to; never mind, try to live a happy life.

Being in constant pain is such a chore and having my stomach hurt with sounds means that my appetite is often low. Gaining weight feels uncomfortable and makes me feel bloated but losing weight makes me feel bony and weak.

Sometimes I look normal and then other times I get a shaving rash or my eyes are bloodshot with red eyelids. Having a beard seems easier with shaving rash and spots.

I feel like an old man but I am in my mid 40s. At least if I was in my 60s I’d know it might not go on for too long. This seems like too much time spent just being ill (18 months).

Got tested for lymphoma today, but nothing will probably show up (again).

It would be cool if either happened. It’s too difficult waking up to do nothing all the time. Getting treated like I have chosen being ill or that somehow I have imagined this disability. My GP seems to switch from grave concern to; never mind, try to live a happy life.

Being in constant pain is such a chore and having my stomach hurt with sounds means that my appetite is often low. Gaining weight feels uncomfortable and makes me feel bloated but losing weight makes me feel bony and weak.

Sometimes I look normal and then other times I get a shaving rash or my eyes are bloodshot with red eyelids. Having a beard seems easier with shaving rash and spots.

I feel like an old man but I am in my mid 40s. At least if I was in my 60s I’d know it might not go on for too long. This seems like too much time spent just being ill (18 months).

Got tested for lymphoma today, but nothing will probably show up (again).

I’m in bed all the time with a stomach pain and have constant gurgling. It sounds like liquid bubbling. I get spots and have had extensive hair loss on my crown and temples. My teeth have yellowed and my skin goes purple when cold. Either shivering or feeling clammy and hot. This is very tough to live with.