u/NoFriendship8013

Hii guys I have mcas and im trying to figure out my root cause. I have lymph node swelling, throat pain, constant fatigue, body aches, random allergic reactions to food (mcas reactions), headaches, anxiety, gut dysbiosis and recurring vaginal problems.

Anyways I am trying to figure out what the underlying issue is and I’m thinking chronic Lyme bc I tested positive many times for it. I guess I’m just wondering if people found their root cause and what it was/how they cured it.

I am hopeful, we got this guys!!!! Just have to find what is happening underlying and hopefully if we solve that we can limit mcas symtoms??

I literally get severe nausea to the point where I think I’m gonna vomit everyday. Does anyone else experience this and what do you do it help it???

I just got diagnosed with MCAS. I’m on montelukast sodium and prednisone rn bc I recently was having a terrible flare. I usually take famotadine and Zyrtec but stopped because I felt like I was having weird reactions. I also tried quercitin but also stopped bc I was scared. WHAT ACTUALLY WORKS? Ik it’s diff for everyone but I like hearing my options so I can research!!

I feel seen in this chat FINALLY. Can I just safely say here that JUST BECAUSE SOMEONE DOESNT “LOOK SICK” DOESNT MEAN THEY DONT STRUGGLE EVERYDAY. I literally am expected to live the life of a normal college student except while having this huge MCAS weight tearing me down constantly. It is DEBILITATING. There is constantly something wrong with me that I am trying to just brush off and ignore so that I can just LIVE LIFE. and people don’t SEE THAT. So when I say I feel like shit, no one’s knows how bad it actually is BC I SUCK IT UP. I wish illnesses like mcas and autoimmune were taken more seriously. I am 20 and feel like an 80 year old at this rate. I have breakdowns weekly because it’s a struggle for me to get out of bed in the morning. I just want to be normal. No one understands and I’m sick of it. Let’s not even get into the misdiagnosis I’ve been getting my whole life because doctors don’t believe a young girl (“dramatic” or “it’s just anxiety). I CANT.