u/NotOsito

Are hot tubs a good idea

Friend wants to go to hot tub with me.. is the big temperature dif when I go in or out gonna cause condition to act up in some way? Is time a factor? If its not too cool out should be fine? I just got raynauds this year and don’t know what to expect

reddit.com
u/NotOsito — 2 days ago

Exercise for raynauds

I quit going to the gym when my raynauds first appeared because I thought I had a workout injury! I want to get back to it, but I’m a little wary! Will lifting weights cause blood flow to leave my fingers and or cause damage? My raynauds is kind of bad and I get pain and indents in my fingers from little things like squeezing my glasses too tight when I pick it up! Are there machines or routines you guys like? is the blood flow from exercise usually strong enough to make this a nonissue?

reddit.com
u/NotOsito — 24 days ago

Rewarming cool trick

I notice if I go to sleep and have the electric blanket on my stomach instead of my hands or feet, I don't get as numb at night! It doesn't stay on, or in position so i do wake up numb.. Do u guys deal with this?

reddit.com
u/NotOsito — 24 days ago

Topical Sildenafil- do we like it?

got prescribed topical Sildenafil 2% to put on my hands and feet at night. I’m hoping that it reduces the amount of times I wake up with cold and or dead-ish hands (difficulty moving fingers, low grip strength, can’t make a fist)- also does anyone else experience waking issues like this?

tested positive ANA, abnormal capillaries, autoimmune disease still unknown

low BP, can’t take oral vasodilators

reddit.com
u/NotOsito — 1 month ago

How to get nailfold capillaroscopy

I have raynauds that progressively spread from one hand to all my extremities, and am getting numbness triggered by touch, such as moving my hand across my steering wheel instead of just cold or stress. I would like to get a nailfold capillaroscopy to see if it may be some type of autoimmune disease (I did test positive for ANA), but it has been so difficult to find a place that does it. I live in chicago. Do I just keep cold-calling? I'm going to ask the rheumatologist I saw last if she knows a referral, but I'm really not sure if Dr.s will reply and help on such messages, I haven't done this before.

reddit.com
u/NotOsito — 2 months ago