r/Raynauds

I was diagnosed with raynauds back in January. All of my blood tests looked normal with rheumatology so it was said that I have primary. I have been having a lot of other health issues that lead me to believe I may have secondary and my PCP thinks so as well, we talked about me maybe getting a second opinion and I have been keeping record of all my symptoms. Has anyone been diagnosed with secondary raynauds even though all of your blood tests came back normal?

Does anyone here get cold after eating a meal? I’ve had Raynaud’s for over a decade now. It has worsened in recent years and recently I’ve had some major health concerns and I’ve started to notice how I always feel cold after eating a meal. I’m wondering if this is common in those with Raynaud’s

So, something I’ve noticed over the years is that I tend to get cold easily, and one of the ways this usually manifests is my knees turning purple whenever I get vaguely cold usually followed by my hands. I’ll be hanging with friends in my apartment, and I’ll start to get cold, often after eating something cold, and then, I’ll start shivering. This doesn’t happen to my friends and I’ve found that people tend to assume that my knees are bruised. I also tend to use my knees as a party trick when their purple cuz if I push my fingers on my knees in the shape of a smiley face that spot on my skin will turn white for a second. If anyone has any insight of what else this could be besides Raynaud's disease pls let me know.

Hey everyone, I’m in my 40s, super active, and I’ve had Raynaud’s for probably 10 years, but it’s definitely gotten worse over the last couple years. I live in Northern California, so I deal with a lot of temperature swings, and I spend a ton of time outside biking, hiking, running, etc. Even a drop from like 70° to 55° can make my fingers go numb and turn white.

Last winter I was in Lake Placid during extremely cold weather, temps in the teens, and I had a cold so I took DayQuil before going snowshoeing. Weirdly, I had zero Raynaud’s symptoms. At one point I even took my gloves off because my hands felt so warm. This was extremely out of the ordinary. I normally bring extra gloves and hand warmers.

Since then I’ve experimented with DayQuil a few times before hikes or bike rides where I’d normally suffer badly, and again, the Raynaud’s symptoms were nonexistent. What’s confusing is when I Google it, or ask AI, it says DayQuil theoretically shouldn’t help and it might even make symptoms worse.

I’ve also tried calcium channel blockers prescribed by doctors and got no relief from them.

Has anyone else experienced this with DayQuil or found relief from any over the counter meds or unexpected things that helped?