r/Raynauds

Friend wants to go to hot tub with me.. is the big temperature dif when I go in or out gonna cause condition to act up in some way? Is time a factor? If its not too cool out should be fine? I just got raynauds this year and don’t know what to expect

27F, I work at a desk and have my own office space. I have a heater under my desk that I keep on 24/7 while i’m here. Problem is, my raynauds is triggered multiple times a day. I’ve watched my raynauds get worse in the past couple years. When i’m home, i can heat up my feet and hands with warm/hot water. sometimes my nose/lips become affected and that ones even trickier to deal with. But this buildings water isn’t always hot, even when i turn the hot knob. No one else in the building gets as cold as I do.

I’ll go on break to lay on one of the couches in a room and be absolutely freezing. It makes me wonder how anyone else can deal with the temp. I already wear pants and a sweater. My raynauds triggers make me feel so sick sometimes.

What are things I can do/buy to help me with my hands? The heater helps my feet at times but sometimes they still get cold/numb. It’s so annoying. My rheumo left so i’m waiting until Dec for a new one. My cardiologist thinks i have orthostatic hypotension and not actually POTS, which drs have been saying i have for years. Drs use calcium channel blockers to treat raynauds, I cannot take them bc they will lower my blood pressure. I already deal with the blood pressure drop multiple times a day. I’ve actually gotten pretty good at dealing with that. I just squat, sit, stand holding something until it passes.

But i’m so tired of feeling so ill at work from these raynauds triggers. I feel so so cold. My heater is a blessing but it’s not helping me with these triggers. i’m so tired of shivering and feeling so cold all the time.

DOES ANYONE HAVE ANY SUGGESTIONS??

I have tried a few dosages of sildenafil but never noticed any warmth in my hands. Still get symptoms also. I have tried up to 50mg once a day. The research literature seems to support much higher doses where necessary so I'm curious.

What dosage do you all find works best for you?

If not sildenafil, which drug?

Thanks in advance.

I am 43f and got raynauds first round like 3-4 years ago. Just hands and feet so far.

I noticed recently that I’ve had nipple morphology changes, when aroused - its darker, smaller areola, slightly dipped nipple with increased sensitivity / slight irritation then the other one / than it used to be. Ive gone to my doctor and am awaiting imaging as of course a possible cause is breast cancer. I had an MRI screening mammo 6 months ago that was clear (family history precaution). My doctor asked me to read up on raynauds of the nipple and see if that sounds like what Im experiencing- a hunch she has given what she saw in her breast examination and given my recent clear MRI.

What I can find to read on it notes a white nipple or tons of pain but thats not been my experience. Curious if anyone here has raynauds of nipple and similar concerns. (Side note: dont worry im not here to find a reason to not be alarmed and ill be doing doing all the testing no matter what is said. ill definitely be getting imaged etc).

My LDL is 3.43 mmol/L and chol/HDL ratio is 3.56 mmol/L. But my doctor wasn't very concerned and said it isn't very high, when previously he has highlighted my LDL levels after bloods.

I started to get Raynaud's symptoms during the COVID times. I also wonder could vaccination or COVID cause it?

When I get in cold water my finger bones first start to ache then fingers start to lose colour and feel numb.