u/NothingKitchen2391

PT is mild started 6 month ago improved a little but today I cant feel like i can cope with it please tell me i will habituate. I am tired and i cry alot and still can comprehend how this is my life. I already have T so pt is here to stay plus my pt doesn't stop or reduced with compression and no headaches.

its so hard to get used to because its not a pure tone my pt ranges between whooshing and hearbeart whooshing throbbing i can feel.

MRI head and neck came back clear ENt is ordering ct only mri i paid for ill pay for mrv and mra with contrast head and neck.

Today I feel i am going to go mad. Please tell me it gets better please tell me i wont always feel like this.

My Pt started 6months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 6months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

What would you do next

My Pt started 6months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 6months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 6months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 5 months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 5 months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be.

Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd. some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the hospital, and not by me.

I can see him privately at £300 and then ask him to refer my to my GP to see him on the NHS waiting time approx 4 month but run the risk of him not ordering the test I needs which are MrA and MrV etc and then would need to fork out another £600. Or do i spend just spend £600 on private test and not see him. I can also ask my GP to refer me to him and that would be a four month wait.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

Part of me thinks that I would also be wasting my money because I feel mine may not have a cause as I dont have headaches etc. I feel I would be able to come to terms better with it if I have done all options. I will be seeking at least 3 opinions before I give up.

My Pt started 5 months ago due to fluid in the ear after a cold now no fluid. My ear pops squelches. The inner ear sounds wet. Some ear fullness when I get daily episodes of whooshing PT. My PT reduces if i pinch my nose and keep the air behind my eardrum but jugular compression does not stop it. Overall my pt has gotten quieter and soften.

My PT ranges between fast paced whooshing and heartbeat throbbing pulsing which i can feel.

I have had an MRI head and neck came back with some issued unrelated to Pt. I paid private for this.

ENT told me to live with it but ordered a CT scan yet to have I doubt he will do further testing.

Next steps shall be. Do I book myself an MRV & MRA head and neck with contrast £620. Will be performed together. Or am I better of seeing Prof Simion loyd

some info on him

Professor Lloyd is a consultant Ear Nose and Throat (ENT) surgeon based in Manchester. He is also Honorary Professor of Otolaryngology at the University of Manchester. He works at the Manchester Royal Infirmary, Royal Manchester Children's Hospital and at Salford Royal Hospital. He runs a skull base surgery course which attracts delegates from around the world. He is ex-president of the British Society of Otology and is President of the Otology section of the Royal Society of Medicine. He is a trustee of the Skull Base Foundation, a charity providing support for research and training in skull base.

I emailed his secretary to see if he specialises in Pt his response was

Following your consultation you may need certain tests (such as blood tests or imaging, for example an

X-ray, MRI or CT scan) to help me diagnose your condition. Again, if the test is undertaken by the

hospital, and not by me.

I can see him privately at £300 and the ask him to refer my to my GP to see him on the NHS waiting time approx 4 month. I run the risk of him not ordering the test I needs which are MrA and MrV etc.

Or do i spend £600 punds on private test.

if nothing comes of these test I will send the scans to dr axon. He charges £500 to review scans.

What do you think I should do for my next steps. Pay for MRV and MrA with contrast head and neck or see prof Simon loyd. which may result in still needing to fork out and additional £600 on additional tests if he does not order what I need.

MRI of head and neck show no abnormaitlis. Mine started 6 months ago after a cold its improved and still a few bad days here and there. I try not to be too hopeful. I booked this MRI privalty I was hoping they find fluid in the inner ear but font think they checked this as there was no mention of ears.

I am left confused saw an ENT in March who said there is not fluid then in june saw a nurse practitioner who said my ears were still retracted. I am left ver confused.

My next step is to go for bloods.

I see the useless ENT again who told me to live with it to order a CT scan. Once I have the CT scan it will come back clear very likely he said. I will then book privately to see an ENT who is Honorary Professor of Otolaryngology with the hopes he knows what he is doing. If he doesn't then I will get my gp to book MRV/MRA head and neck with/without contract. How I am going to persuade them to do i dont know.

The Mri came back clear and its left me feeling hopeless.

Have have PT for 6 months now after a cold slow improvements have been made. I booked myself an MrI privately doubt anything will show though as you need the right person to look at it.

My ENT is only ordering a CT.

It feels everyone on here can stop or reduce the sound compression. They have headaches dizziness etc.

Mine started with a cold 6 months ago is mild but constant last month ENT said no fluid. Nurse practitioner this week said the eardrums are still retracted. My ears do still make some squelching sounds and sometimes feel full.

I feel my chances of finding out what is it is much lower due to not having any other symptoms.

I am due for an MRI on Tuesday I know it wont show anything as I will have to send to a specilaist. I aim on getting a few scans to send to Dr Axon in london.

But please tell me it gets easier.

6 months in with PT ENT is only ordering a CT scan. I have now booked myself an MrI of head and neck. I will peruse other test like MRV and MrA with contrast of head and neck don't know how I am going to get my ENT to do that because he doesn't care. If I ask for another opinion then its another few months wait.

How many test did you have and what revealed your cause.

Whats your cause?

I am from the UK where PT is very misunderstood. I understand I will need to send these scans to a specilist. My PT is constant but mild but i can feel my hearbeat and thats the annoying bit.

I am doing better since the onset after a cold. I have some ear fullness and PT does not stop with compression I don't have much hope of finding a cause because i dont have headaches, etc I have not habituated fully yet as I still get upset and cry about it.

Today I went to the GP to ask for bloods just my luck the labs were on strike.

The nurse practitioner looked into my ear and said the eardrums were still retracted however, last month I saw the ENT my ear drums were healthy.

I do get popping crackling and squelching but i am so fed up. I am due to seen the same stupid ENT who said live with it he is going to do a CT scan only.

I am going to go private and do my own scans will head and neck MRI and head and neck MRA and MRV be enough?

I will then send to Dr Axon and Prof saeed to see if they can see anything.

I have had PT for nearly 6 months the ENT last month said the fluid has gone but the NP said they are still bulging. I do get popping crackling and squelching but this is confusing.

I am now getting CT scan only thats what the ENT is doing.

But is adamant nothing will be found.

She even said I could not choose a specialist which is wrong. I wanted to transfer my EnT from the one i have now to another one in the city. She said this was not allowed.

I am so confused and annoyed at this point I am just thinking of going private for a head and neck MRI with and without contrast.

My PT started nearly 6 months ago after a cold. The fluid has drained. PT remains only improved a little. Its constant and varies in sound and volume 3/10 and 5/10 its never one constant.

I saw an ENT who said live with it and was not even going to order a CT scan. Until I said. I am going back to my GP to ask for blood work and a new ENT. I aim to get MrI and CT at least on NHS and MrA and MrA with contrast privately head and neck. Then send these to at least 3 different specialist.

I am unsure anything will come up as I only have PT, some ear fullness. Does not stop with compression. No headaches etc. Everyone on here has something else along PT.

Please tell me it gets better i am 29 and already deal with PT and T. My ears do pop and Pt ear squelches sometimes. I have also crackling at every swallow.

Very worried for my future

My PT started nearly 6 months ago after a cold. The fluid has drained. PT remains only improved a little. Its constant and varies in sound and volume 3/10 and 5/10 its never one constant.

I saw an ENT who said live with it and was not even going to order a CT scan. Until I said. I am going back to my GP to ask for blood work and a new ENT. I aim to get MrI and CT at least on NHS and MrA and MrA with contrast privately head and neck. Then send these to at least 3 different specialist.

I am unsure anything will come up as I only have PT, some ear fullness. Does not stop with compression. No headaches etc. Everyone on here has something else along PT.

Please tell me it gets better i am 29 and already deal with PT and T. My ears do pop and Pt ear squelches sometimes. I have also crackling at every swallow.

Very worried for my future

5 months in from PT. Its mild but constant yet to have scans. I already have T. Mine is a whooshing changes sound and speed too.

29 and I am worried about having to live with PT and T. Pt is much harder than regular T. Both are constant.

Need some hope it gets better. It has improved a bit. No headaches etc. Just PT and a little ear fullness get some popping and squelching in the PT ear.

Most days I feel so hopeless.

Feeling sad at the idea that I may have to live with PT for the rest of my life.

I already have mild T and now constant mild PT bit have bad days I am 29 and scared for my future.

I am yet to have scans need to go back to my GP to change my ENT and this one was reluctant to send me for even a CT.

Mine has improved nearly 6 months on from starting with a cold and fluid behind the ear drum.

What makes me think its permenat is i do not have headaches, compression does not stop it, i dont feel tired dizzy. Nothing but PT and mild ear fullness some popping.

I need some hope it gets better and some stories of how you found the cure to yours.

Mine started after a cold. Doesn't stop with compression neck positions do not change it. PT and mild inner ear heaviness and is constant.

If yours didn't stop with compression did you manage to find out why?

Have you made peace with it?

Curious to find others like me whose only symtomps is constant pt that changes in sounds and intensity makes tour ear feel full and feels like you can feel it.