u/Nova-MaluOnyx

I have kEDS, anyone else?

I've had a "unspecific but suspected Type 1/2" EDS diagnosis since I was two years old.

Last year I got genetically tested "with modern standards" i.e. 25 years later and they found the exact gene. I have kEDS with the mutations on FKBP14. One of my many doctors said it's "more likely finding a sandcorn twice on the beach" than finding another me.

I feel very lucky compared to hEDS and other subtypes. Because while yes I have insane issues in comparison to able bodied people but I'm doing relatively well compared to some of you guys.

I've obviously had surgery to fuse my spine relatively early I was 12, the surgery took 8 hours. I've had a bladder diverticulum that required 6 hours of surgery. I had my hip dysplasia corrected when I was in kindergarden. It required 6 weeks in bed while being in a cast.

I've had multiple benign skin tumors. I've had times I was on opioids to contain the pain. And my sleep apnea was kinda the worst. I've had a ventilator since 2014 but started to have issues with the therapy around 2020.

Years of fighting for a solution have lead me to being the only one in the whole world according to my doctors.

I have two pacemakers for breathing at night. One moves the tongue forward, the other sends impulses to the diaphragm. So one makes me breathe the other clears the way. I'm the first in at least Germany who had both implemented at the same time. Experts from Greece and the good old USA are coming over each time I need to have a setting changed. I am according to my doctor, who is a world leading specialist in that area the only one with my disability and that therapy.

I have several pairs of leg orthoses one pair specifically for the shower, hand/underarm orthoses, two wheelchairs, hearing aids, glasses and lots of other medical aids.

But currently I am relatively pain free and am expecting to be pain free most of my life. I work out twice/three times a week and have two double sessions of physical therapy on the other days. Being able to do that has stabilized my joints and my whole body. My heart is healthy as are my lungs if you discount the funnel chest.

I do feel kinda alone in the world so if you have kEDS and/or same-ish experiences, I would love to chat with you!

I've had a "unspecific but suspected Type 1/2" EDS diagnosis since I was two years old.

Last year I got genetically tested "with modern standards" i.e. 25 years later and they found the exact gene. I have kEDS with the mutations on FKBP14. One of my many doctors said it's "more likely than finding a sandcorn twice on the beach" than finding another me.

I feel very lucky compared to hEDS and other subtypes. Because while yes I have insane issues in comparison to able bodied people but I'm doing relatively well compared to some of you guys.

I've obviously had surgery to fuse my spine relatively early I was 12, the surgery took 8 hours. I've had a bladder diverticulum that required 6 hours of surgery. I had my hip dysplasia corrected when I was in kindergarden. It required 6 weeks in bed while being in a cast.

I've had multiple benign skin tumors. I've had times I was on opioids to contain the pain. And my sleep apnea was kinda the worst. I've had a ventilator since 2014 but started to have issues with the therapy around 2020.

Years of fighting for a solution have lead me to being the only one in the whole world according to my doctors.

I have two pacemakers for breathing at night. One moves the tongue forward, the other sends impulses to the diaphragm. So one makes me breathe the other clears the way. I'm the first in at least Germany who had both implemented at the same time. Experts from Greece and the good old USA are coming over each time I need to have a setting changed. I am according to my doctor, who is a world leading specialist in that area the only one with my disability and that therapy.

I have several pairs of leg orthoses one pair specifically for the shower, hand/underarm orthoses, two wheelchairs, hearing aids, glasses and lots of other medical aids.

But currently I am relatively pain free and am expecting to be pain free most of my life. I work out twice/three times a week and have two double sessions of physical therapy on the other days. Being able to do that has stabilized my joints and my whole body. My heart is healthy as are my lungs if you discount the funnel chest.

I do feel kinda alone in the world so if you have kEDS and/or same-ish experiences, I would love to chat with you!

Hello fine Folks of this Subreddit!

I´m gonna say it upfront, I´m no expert when it comes to Networks and stuff. Really good with the Hardware side, just decent on the software side.

After the latest Windows Update I was contacted by a colleague that thier Internetconnection wasn´t working. The computer was able to still connect to the network but not to the Internet.

I had the issue before with a different VPN Tool with two other colleagues and deinstalling that and switching to WireGuard helped them.

So I deinstalled WireGuard and voila Internetconnection was back. Then reinstalled and it worked. For a little while anyway. 30 Minutes ago she called me again. Same problem.

So again deinstalling WireGuard. This time also reseting the Network-Drivers of the computer. And (I should have done that sooner) chainging the company network to a private network in the settings.

While I seriously hope that it´s solved now i obviously first wouldn´t understand fully why. And secondly, I am worried that it´s actually not solved so maybe other people have the Issue and know another fix?

Can´t really afford to de-/reinstall Wireguard all the time.
Oh and with the other colleagues it was a one time thing. Deinstalled ShrewSoft that old piece of Junk and installed WireGuard, all was good with the world.

So yeah, basically the title.

Basically I hear they sound great to Insanely good (for that price range)

Biggest complaints I´ve heard is that the ANC is actually not the best and that some people dislike that the design is so same-ish to the Momentum 4.

Thing is, I basically never use Noice-Cancelling and I do like the Design of the Momentum 4 plus it never actually broke on my big ass head (Looking at you Urbanista)

How does the sound compare to the Momentum 4? I´m not an audiophile but I will use these EXCESSIVLY consider about 8 hours per day and more.