Cyclical Cranial Neuralgia
Out of curiosity, would this community be supportive of a movement to formally change the name of Cluster Headaches to something more applicable, and quite honestly moving away from the name "Headache"?
I find it frustrating to describe my episodes to family, friends, coworkers, and most importantly medical professionals, and once the name is applied it instantly minimizes the severity.
In recent years, Manic Depression was shifted to Bipolar Disorder, and Chronic Fatigue Syndrome to ME/CFS (Myalgic Encephalomyelitis). This gave it some clinical weight, and removed, and reduced the stigma based solely on associated words with the name.
If so, is there a way we can begin to merge names, such as "Cluster Headaches/Clyclical Cranial Neuralgia (CNC?)" Or something similar? Even a small step here in this subreddit with the Mods making a note or update, and intention on use could spark some change. It's a very very small step, and some entity like the IHS and WHO would need to adopt it to formally make the medical community begin to apply it, but a grassroots effort may be a start.
Maybe I'm just rambling, but to me it's an important detail where rather than leading to confusion and apathy, it brings care and concern. Just a thought.