u/OTF98121

Hello everyone! I just discovered SDAM and I really think this is what I’ve been dealing with all my life. I don’t really have many childhood memories. The memories I do have are either because I saw a photo, heard the story, or maybe it was because something out of the ordinary happened. I have a few examples:

1. I remember my cousin “won” a baby chick on Easter which was weird because my family lives in a big city and no one had backyard chickens in the 80’s (I’ve heard about it which triggers the memory), but I have no idea whatever happened to the baby chick, or if he even brought it home.

2): I have a resume, I can remember my former employers and the start/end period of employment, but I can’t remember details about the tasks I previously performed even when it was a long term employer. When I read my own resume I impress myself with my past work, even though I can’t remember how I did those things. I would never be able to recreate my resume if my old one suddenly disappeared.

3): For our mom’s 75th birthday, my two sisters and I bought a beautiful bowl and we each filled it with 25 memories (to total 75) written on paper, then we sat on my sister’s patio drinking wine, and having her draw a memory while we talk about how much fun that story was, etc. I couldn’t come up with 25 memories, and it took me forever to come up with them. My sisters were totally baffled about why it was so hard for me to do this simple task. It was a lot of fun going through all the memories though.

I have a couple of questions for the group:

1. I’ve always felt like people don’t really remember me. I’m always surprised when someone from 10-20 years ago remembers who I am. Perhaps, I’m surprised they remember me because I don’t always remember them? Is this part of it? I had a person I went to elementary school with tell me they adopted my first name as their own because I was so kind to them while they were always bullied. I remember her being a bully target, but I was kind to everyone, and I don’t remember doing anything out of ordinary to have that kind of impact on anyone.

2. Does this explain my imposter syndrome or a “fake it until you make it” kind of a feeling?

3. Is there any particular kind of therapist that can formally diagnose SDAM? Or is it something that a neurologist would confirm? I know there isn’t really any treatment for it. Just hoping I can be evaluated to confirm that I’m not crazy, this is a real thing and I really have it.

I’m sorry this became so long. I’ve only shared my suspicion that I have SDAM with one of my sisters and she says it totally describes me.

I’m here at OHSU for my second SCT. Just had it yesterday so today is day 1. I’d be down for a walking partner to chat with if any of you are here at OHSU Vista Pavillion, floor 5. My discharge date is 7/25, so anytime before then.

Hi everyone! I’m being admitted for my second SCT on 6/27. It’s coming up next week! I have a couple of questions:

1. For those of you who’ve had two SCT’s, was the second one harder than the first? It’s been about 18 months since my first one. My onc said this would be rougher. Just looking for personal experiences.

2. My conditioning regimen will be: Fludarabine on days -4 thru -2, melphalon on -1, then cyclophosphamide on days +3 thru +4. Anyone else have this same regimen? How tolerable/intolerable was it for you? Google says fludarabine doesn’t usually cause hair loss, but the other two are “maybe/likely”. Did anyone with this regimen lose their hair? I’d prefer if I didn’t - I just want a little normalcy.