u/Objective_Ant_2107

▲ 8 r/Erythromelalgia+1 crossposts

Face/Ears EM

Please help. This came on so fast. I’ve had this underlying primary condition that no one can figure out that it left me bedbound for two years with systemic inflammation following two major infections that I had in 2024. It’s first affected my knees and then my SI joints and it just feels like I got ran over and I’ve been unable to be anywhere in my bed this month I begin to have the burning hot rash on my face came out of nowhere and now I cannot live without laying down with a fan on me at all times I feel like my head is in an oven and my face is burning off the heat radiating from me. It’s just so extreme to dermatologist agreed that it was em. but don’t have any experience treating it. I can’t take gabapentin or anything that affects serotonin due to me having serotonin syndrome in the past. I am in so much pain and suffering. I’m not a person and I just feel like my entire face is on fire. I don’t even know where to begin and I don’t even have my primary condition under control. No one believes me.

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u/Objective_Ant_2107 — 6 days ago