r/urticaria

When I first was diagnosed I had the naviety to believe it would go away soon and would just ignore it for the time being.. (didn't change my style at all)

Now it's been a few years I'm getting more long sleeve undershirts/longer dresses etc to have the most coverage possible.

Summer is the worst time for layering. Sigh.

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I asked my doctor and they didn’t give a clear answer

Hey everyone, first post here.

I finished an 18 day prednisone course about a week ago and instead of calming down I got hit with the worst rebound flare I've ever had. Hives everywhere, plaques spreading, angioedema in my face and lips a couple times. It's been getting worse almost every day since Wednesday.

Antihistamines aren't touching it anymore even doubled up. Cortisone cream on the hives does nothing either. I can't reach my doctor until Monday and I'm just hoping he finally prescribes Xolair once I do, but until then I have literally nothing that works.

Has anyone found something else that actually helped during a bad stretch like this while waiting on a prescription? Just trying to get through the next couple days.

just it has been so long since they applied for approval- 10 months in review now , seems like no big deal to people who are not waiting desperately for treatment. I’m on Dupixent instead but not sure if its working really ( up and down) , just think my god … they are probably weighing the cost ( its pricey). just venting - too slow and not transparent drug approval here

i finally got blood tests done for my chronic hives and while i didn’t want anything to necessarily be wrong with me, i was hoping to find some reason behind it. the allergist said the only thing she can think of is i have higher than normal estrogen. i’m just so tired.

It’s silly but for me it’s a huge win! I have autoimmune CIU and ever since it started the only fruit I could eat without a reaction was apples. It was so sad, I love fruit, especially Christmas oranges and I’ve been so sad I couldn’t have any. But I tried one today and no reaction! In a few weeks I might try some watermelon!

Hey y‘all. This is a follow up to my „one year with urticaria“ post roughly 90 days ago. My perception of this illness changed a lot. I changed a lot.

It all began on the 21st of March last year, at exactly 6pm, because this was the time I took the first picture of my first hive. I rushed to the hospital a few hours later, since it spread over my whole body. The doctor told me „Probably just an allergic reaction. Here, take this cortisone and it‘ll disappear soon“. And it actually did… until it reappeared the next day. I went to several doctors and dermatologists. None of them knew what it was or what was causing my condition. Several months of me not knowing what on earth was wrong with me. This summer was the worst time of my life so far. I developed a severe health anxiety (already diagnosed with an anxiety disorder, so I wasn’t surprised). I thought I‘d get a heart attack everyday. Checking and listening into my body 24/7. Last years summer months merged into a big blurry mess, my brain doesn’t want to remember.

The day everything got better, was the day I finally decided to visit a mental health clinic. I learned so much in my stay, even though I was only visiting for about a week and a half. Around that time I also finally found a dermatologist who actually listened to me. She was the one diagnosing me with spontaneous chronic urticaria. I managed to climb out of that hole around December last year. I think I reached that „Okay. I‘m finally accepting my illness. It no longer affects me.“ stage last week. I had my last check up for a potential reason behind it last Tuesday. Negative. I won’t ever know what exactly is causing it. I checked for a hidden sinus infection, a hidden infection in my teeth, I went to the gastrologist and rheumatologist. Nothing. And that’s fine. It’s actually good. It’s nothing worse that’s causing it.

I‘m on fexofenadinhydrochlorid 240mg daily. Two pills of 120mg. One after waking up, one before going to sleep. I‘m pretty much 90% hives free. My dermatologist told me I‘m super lucky to be hives free with such a low amount of medication. And I‘m unbelievably thankful for that. She also told me this one sentence „I promise you, no urticaria is lifelong. It will go away. And you are safe with your medication.“ This was the moment I finally realized it. I‘m okay.

I want to spread hope with this post. You are able to get through there. Never ever give up. Go to your doctors. If you get rejected, try another one. Do some research. Try to eliminate potential causes. Talk to people. And most importantly.. ENJOY LIFE. SAY F YOU TO URTICARIA. Go after your hobbies. Chase your dreams, because that’s what I‘m doing. I want to be a filmmaker. Take risks.

I‘ve went through several nights full of panic attacks, breakdowns, self harm and suicidal thoughts. You are never alone in this fight. If you ever need someone to talk to, hit me up. At any time.

I made a YouTube video a few months back titled „ANXIETY - My story with Urticaria“, where I talk more about my story.

Excuse this messy post. Hope my English wasn’t too bad. I‘m from Germany an English isn’t my mothers language.

Much love to everyone❤️
- Marcel

I'm pretty new to this. About two months ago I got a dental implant and had to take an antibiotic (Amoxicillin) for five days. I started to get a few hives and got itchy about two days in but didn't make the connection that the antibiotic caused it. I finished the antibiotic after five days but the hives and the itching kept getting worse. At first my GP told me it was a common reaction to Amoxicillin and would go away within two weeks but instead it just kept getting worse. I took steroids for five days and three days after that had an absolutely horrible flare-up so never again!

I was referred to a dermatologist who put me on 4 x 10 mg Cetirizin and 120 mg of Fexofenadinhydrochlorid before going to bed. It seemed to kind of work, I still got hives but only a few every day and was doing pretty okay for about 2 1/2 weeks. Then we had an awful heatwave in Germany and the temperatures went up to 40 °C 🥵 and I experienced another flare-up. This was four days ago now and even though it's a bit better than last weekend I'm still very itchy and get lots of new hives every day. I was hoping I'd get back to the low level I've had for these blissful 2 1/2 weeks but it doesn't look like it right now.

My dermatologist already mentioned Xolair but I'm still wary because of the possible side effects and still have hope that things will get better again after the flare-up from the weekend. But at least I know that it's an option and the doctor promised me I'd get an appointment at short notice should I need it.

Is there anyone here who also got urticaria from Amoxicillin? Did it go away again on it's own at some point? All I found online is one person who said she had urticaria from Amoxicillin and it lasted for almost six months but since then she doesn't have any issues with it anymore.

I’ve been dealing with hives for 7 months now, no doctor can figure out the cause, the only relief is steroids, and I’ve been fighting to get in to see an allergist, but, has anyone ever done a fast to rule out food?

Hi everyone,
I’m posting here again because I’ve been dealing with chronic urticaria (chronic hives) since the beginning of April. Throughout May, I was taking prednisone, bilastine, and montelukast. The prednisone helped calm down the hives, but I was still getting some, and at the beginning I was having pretty bad flare-ups.
After that, I stopped prednisone for about 2 weeks, and it was honestly awful. Since I had to travel, I started taking prednisone again but at a lower dose (around 10 mg), and that helped too.
More recently, I started taking 20 mg of Xyzal (levocetirizine) along with 20 mg of Pepcid (famotidine). For about 2 days, I barely had any hives at all. However, I stopped prednisone on Sunday, and now both yesterday and today I woke up with swollen hands and hives all over my body again.
Does anyone have any remedies or suggestions? Anything that has helped you manage this?

Thank you

I don’t want to jump the gun and get my hopes up, but I took my first dose of Rhapsido this morning and was hive free for the first time in MONTHS within a few hours. Not even Xolair and prednisone have been able to get the hives to go away completely.

For some context, my CIU/CSU is autoimmune and I’ve been struggling every day for three and a half months. I went on Xolair in April and either got worse or plateaued. After my third dose my allergist said if I wasn’t improving in a week we’d switch me to dupixent. I saw great things about Rhapsido and was wanting faster relief than another biologic shot since my wedding is in October. My drs were fine with that and got Rhapsido approved with my insurance today as well!

Again, trying not to get my hopes up since the nature of hives is to come and go, but this is the first time I’ve felt hopeful in months! Will update if things get better/worse