I am currently having the worst bubble hives caused by exposure to the sun (solar urticaria). I was prescribed fexofenadine to help with symptoms. Well it does not quite work. I still got severely burnt. At least the itching is slightly reduced.
I want to stop taking Benadryl. I remember my allergist mentioned xolair years ago.
Has it worked for everyone? Any symptoms? Any weight gain?
Anyone or their child with CSU recieve a live vaccine? My child has been battling daily urticaria for a year now. He is due for his varicella vaccine and I am low key panicking. They won't give him a medical exemption and without the exemption it is required for school. We are finally under control with only 2-3 hives each morning and I don't want the vaccine to exacerbate it. Curious what others have experienced with vaccines!
I really wish I had good news but some of you might have seen my last post that I was doing vitamins and probiotic gummies two a day to see if healing my gut would help and I did this for a month and I did not take Zyrtec for like 17 days but then on day 18 I got high blood pressure really bad had to spend the night in the hospital I don't normally have HBP not for like a year and a half not on any meds for HBP so it was really scary it was 198/101 they did every CT scan MRI EKG echo cardiogram blood work you can think of and I was told that they didn't know why this happened but I'm wondering if it had to do with me not taking Zyrtec considering the fact that I have been taking it for three and a half years and then all of a sudden stopping it. wondering if my body went into shock or something but the hospital said that that was impossible because Zyrtec has zero effects on blood pressure but Idk. I have had these damn hives for years like I said so idk. I'm back on Zyrtec again and my BP is up and down but not high like that 1 day. Wondering if BP will return completely normal once Zyrtec has been in my system for a few days. Has anyone else experienced this?
So i have been suffering from urticarias from past 5-6 months and with time it has just increased.
I have changed multiple doctors tried allopathy as well as homeopathy but it’s not getting any better.
Can someone suggest anything that worked for them.
I am just tired of scratching my body whole day.
Also they are increasing earlier it used to happen on legs not i they also appears on my face.
My lips gets swelled, my feet n fingers get swelled up i have joint pain and what not.
But i am still not able to figure out the trigger.
Can anyone help?
Hi guys, I posted a few days ago asking for advice on how to manage my hives until I see an allergist in 2 weeks. I got lots of good suggestions, some of which have sort of helped but not that much.
I have started taking 1 Allegra or Claritin and 1 Pepcid in the morning, and 1 Zyrtec and 1 Pepcid at night. It helped on the first day, although for some reason I got an upset stomach that night and vomited. However, since then, my hives have come back. It's only been a couple days, so maybe it will take a bit for the antihistamines to build up in my system and be more effective? I had to sleep with long sleeves and leggings last night because I was so itchy, and I ended up taking a cold bath with colloidal oatmeal at 1am because of how bad it was.
Anyways, on the 3rd day of this regimen I got a splitting headache and was super tired. I've been in bed most of the day. I assume it's a side effect of the antihistamines, so my question is, should I stop taking them? I can't imagine going 2 weeks unmedicated until I see the allergist but I'm worried I'm going to overdose or something. I honestly feel like I need to take more Allegra or Claritin in the afternoon to actually help with the hives but 3 pills a day seems like a lot.
I’m on 40 mg steroids a day it’s day 5 this started wednesday and started itching with welts/hives and then just spread and turned into rashes. Not sure what it could be, I’m also taking Zyrtec for this. I’m also taking Zyrtec, I was working out side prior so maybe heat rash or poison ivy or the week prior I tried a Chinese snack that had shrimp powder which I’m allergic to sea food and I spit out right away after find out. doctors think it’s an allergic reaction and that the steroids should help but today is my 4th day taking the medication. so maybe it takes a while to kick in or show improvement. started around the waist like then just spread every where. The pictures I post will be the progression after every day
I started Xolair for my CSU in March. Everything seemed fine. Around my April or May injection I started noticing horribly achy elbows. I also workout in gym so chalked it up to that. June I got a small patch of rash on my neck. Chalked it up to a normal break through. Elbow pain continued. Three days after July injection the small rash patch on my neck became much larger, my entire scalp itched, my ears itched everything from my neck up was highly activated. Did my August injection and 3-10 days after I was absolutely losing my mind. Had a swollen lymph node. The painful elbows. And massive rash covering my chest that not even cortisone, four antihistamines, Benadryl & hydroxyzine would touch. I never took their warnings regarding reactions to Xolair serous since my first injection seemed to work so well. Beware tho they are right reactions to the injection itself can start anytime and usually start after multiple injections. I’ve started Rhapsido in meantime. Xolair is still in my system but Rhapsido has completely knocked down my itch & rash in three days.
Hey all. Some quick background: I’ve had Chronic Spontaneous Urticaria for 10 years. No idea what caused it, so I’m considered idiopathic (although I personally believe it was somehow triggered by having a test that used contrast dye since that was my first experience getting hives). I do not have reactions nearly as bad as so many of you who are covered in hives (I’m so sorry you go through that!) but enough that I started taking Zyrtec here and there years ago, first just once a month, then once a week, then daily as my need for it increased along with the hives occurrence…
I then recently read how it can be really hard to withdraw from Zyrtec with respect to that chronic itch reaction some people have, so I decided to taper myself off. Thankfully, I did not get the crazy itch! But, I expected my hives to come back at the level they had been showing up before and… they just haven’t. I do have some random itchiness and small hives (usually due to compression) and sometimes feel small little sections of my body are almost sunburned, but I haven’t gotten any of the large hives I was getting previously (I’ve been off Zyrtec fully for about 3 weeks now). So, diagnostically, I would say I am not fully in remission since I do still have some itchiness, but it really seems like my entire system has calmed down after stopping antihistamines altogether… My theory is that I had become too dependent, so when my body was expecting a pill and I hadn’t taken one, the reaction was a rebound/bigger than it would’ve been if I was fully off the pills…
Has anyone experienced something similar?? (I’m not a doctor and am not suggesting anyone else stop, but I’m just curious if anyone with a more mild case like myself has gone through a similar situation). At this point I do not plan to ever take any more antihistamines since they seem to suppress my body’s natural abilities to regulate — and if I do, I’ll take one that’s generally considered a little tamer, like Allegra… Would love to hear similar takes. Thanks!
ETA: The first 10 days or so I did have rebound itching and hives for sure and thought I was in for a rough time, especially at night, but I still stayed away from the antihistamines and luckily things calmed down.
Has anyone tried Dr. Rajesh Shah / Life Force Homeopathy for urticaria or an autoimmune condition?
The treatment is quite expensive, so I’d like to know if people who have actually taken it found it effective and worth the cost.
Please share your honest experience—how long you took it, whether it helped, and roughly how much you spent. Even if it didn’t work, I’d appreciate hearing about it.
Full body except the face.
I don't know how y'all manage. I'm miserable and depressed and I've only had this condition around 7 days so far. It's seriously one hell of a psychological battle/challenge. I've gone through all kinda stages ... denial, anger, despair... the relentless itching is enough to edge me toward psychosis. I can't believe I had never even heard of this before, now it's stealing my life. Socially, I feel like a leper. I can't go out without covering wrist to ankles - in August no less. I barely sleep and can't work (my job is in the sun and very physical, I can't take the constant abrasion and sweat between clothes and skin).
I seriously had no idea of the hell people w this condition go through daily.
Are all first break-outs this bad?
I’m terrified because I have side effects to everything. I couldn’t tolerate Rhapsido which everyone else seems to do so well with. Dupixent made my hives worse. I do have a high IgE level which supposedly makea me a good candidate for Xolair. But I’m still scared. I’m scared of anaphylaxis and not being able to tolerate it. This feels like my last hope and I will be devastated if it doesn’t work like I hope it does.
It’s on all the yellow of my tattoo (which is all over my leg)
It’s been present for about 2 weeks but has recently gotten more “angry”
While the picture is only of my thigh it is also present on the inner calf and butt cheek.
Basically all of this has been healed at least a month and the other yellow spots (like my inner calf) healed at least 2 months
It is itchy as fuck and I find myself waking up at 2/3 am scratching it like crazy .
I fear I am worried to the yellow in the tattoo but on my knee , and outer calf the yellow has no allergic reaction.
I’ve tried various steroid creams and one doctor prescribed ebastine 10mg twice a day , but not much help and another doctor prescribed acravastine 3 times a day but after starting it (today) it still isn’t doing much suppressing.
I also have the issue that this tattoo is for a competition (not completed yet) and this yellow is the base colour and the artist plans to go over the yellow with other colours and details . Obviously this worries me and I don’t want to let the artist down because we have spent so long on this tattoo already and I would hate to be the reason it can’t be completed.
Any advice ? Looking for an angel I guess .
I am a 30F and just got diagnosed with PCOS after I pushed my dr and said “I want to know why my periods are so bad. I googled and I feel it fits for stuff I have” and they asked a few questions and said “okay I’ll add it to your chart”
So I’m reading up on PCOS and people talk about being super itchy and irritated skin. I have been on xolair for years thinking I just have too much histamine and my body like doesn’t know how to work with it. I take large amounts of daily anti histamine pills too. At one point I took 3 Benadryl a night for a long period of time (6-12 months).
Is there any other females with PCOS and is this the type of itchy irritates skin that they mean? I’m mainly trying to piece together the best ways to help myself feel as best as possible. Having the PCOS diagnosis just gives me a good place to look for help.
I have very severe cold urticaria (went into anaphylaxis after diving into the lake this summer). Does it get better? Will I ever be able to swim again?
I live in Canada so I’m very nervous for the winter and I love being outside. What do you all do? My allergist appointment isn’t until November.
I am currently on Bilastine, 20mg every day. But I’ve been needing to take more to control the hives- will get them if my hair is cold after a shower or washing veggies in cool water on my hands.
Severe breakthrough hives after switching to Xolair injections at home?
Has anyone else with chronic idiopathic/spontaneous urticaria noticed their breakthrough hives getting significantly worse after switching from getting Xolair at the doctor’s office to doing the injections at home?
I started giving myself my Xolair injections at home about two months ago, and since then I feel like my breakthrough hives have been really bad. I’m starting to wonder if I’m somehow not administering the injections correctly or if there could be another reason they don’t seem to be working as well.
Before switching to at-home injections, Xolair generally controlled my hives pretty well, so the timing has me questioning whether there’s a connection.
Has anyone experienced anything similar? Did you ever find out that you were doing the injection incorrectly, or did switching back to having it administered in-office make any difference? Would love to hear other people’s experiences.
not sure what this can be, it started as welts then transitioned to some kind of rashes. doctors don’t know what it may be it’s been 3 days. started noticing itching about 5 days ago. just seems to spread and it’s no where on my legs just groin area, stomach, armpits and face
Is this urticaria?
Anyone knows what this is and why I get it?
It's driving me insane.
PS: It's not insect bites or something like that. My husband never gets those and we share the same spaces.
Please, does anyone have any advice? I have dealt with unexplainable hives for a few years now, but it used to only be in the evening and always went away with 1 Zyrtec and some cortisone cream, and the last time I got them was early 2026.
However, last week I started to get them again, and now I have them from about 2pm all the way until the following morning (so like 5am). They are all over my arms and legs and nothing I try makes them go away. I've taken 2 Zyrtec every day, I've tried benadryl at night, and cortisone cream doesn't work anymore. I am barely sleeping from how itchy I am and even though it's hot in my apartment I have to sleep with long sleeve shirts to keep myself from itching my arms.
I have never seen an allergist before because my hives never used to be this bad. My dad reached out to my family allergist to see if they will see me, because otherwise I will have to go through the process of seeing a PCP to get me a referral. I am losing my mind from itchiness and my classes start back up in 2 weeks, there is no way I can go on like this during the semester.
Please help :(((
Update: I started taking 1 Allegra and 1 Pepcid in the morning, and 1 Zyrtec and 1 Pepcid at night. So far it seems to be moderately helping.
Last week, I had one of the worst allergic reactions of my life—and it was to my own body.
To give you some context: I’ve always had allergies, but the ones I had during childhood were mild—pretty standard stuff.
When I turned 13, my allergies skyrocketed. The doctor explained that it was due to hormonal changes.
Here’s a fact hardly anyone mentions:
We women—both adolescents and adults—are more prone to allergies and autoimmune issues because of hormonal changes.
This happens because estrogen stimulates histamine production.
For most people, it’s something that can be managed quite well with antihistamines or similar treatments.
But then there are girls like me who become allergic to our own hormones.
To make a long story short... It’s not that I’m allergic to myself all the time, but mainly during my period.
And it’s not like I get hives or severe allergic reactions every single period—no. It’s usually linked to my mood and physical activity.
Last week, I wasn't doing well emotionally... Then my period started, and since I wanted to relieve some stress, I went for a run.
Anyway, I spent the whole morning with hives—the typical kind: itchy welts that don't go beyond that.
I’ve attached photos.
I was like that all day... I actually used Xolair, and it helped.
The next day, everything got worse... I woke up completely swollen.
My neck was bright red, I was congested, and my face was inflamed.
I felt nauseous, and things went downhill from there.
My blood pressure dropped, and I was struggling to breathe.
It had never happened to me before... but it was clearly an anaphylactic reaction.
We wondered if I’d eaten something... or if it was the stress... but everything pointed to my period. I usually get hives during it, but it never goes beyond welts or inflammation.
In short, my conclusion is that hives can get much worse during a hormonal spike; it is important to be emotionally healthy, as that also has a major impact... And we shouldn't exercise when we are stressed.