My ASD fixed at age 7 apparently is still haunting my life; Need moral support.
Yep, I've spent years being told my SpO2 was abnormally low, felt consistently like ass, and with my chaotic life I never stayed in one place to find the cause.
The last 2 years I changed that. Today I just went for a heart catheterization to find the root cause and well the papers says the following:
"There is a 4mmHg gradient from SVC-to-IVC across ASD device. Unable to advance catheter from IVC to RA. Catheter would always cross posteriorly into the RA. IVC angiogram demonstrates flow from the IVC to LA. Normal PA pressures. Therefore, right-to-left shunt not do to pulmonary hypertension but instead mechanical obstruction from ASD device at IVC level. Case to discussed at congenital rounds."
So if I understand this correct, the freaking Amplatzer closure is what's been messing with my entire life.
How do you folks go on with your symptoms knowing nobody will ever understand it? Knowing there's practically 0 support groups for us? What to do when you're feeling alone like this?