u/OkDocument8755

Hi everyone,

I’ve already posted a few times in this group, but I wanted to ask something a bit different this time.

I have hypertonic pelvic floor dysfunction, and I’m also a biomedical engineering student, so lately I’ve been thinking a lot about what kinds of tools, technologies, or support systems might currently be missing for people with this condition.

For example, one thing I personally struggle with is that I often don’t realize in the moment how tense or contracted I am until much later. Sometimes I wish there were better ways to monitor or become aware of that in real time with some portable device I guess.

I’ve also felt like this condition is often minimized or not properly recognized, especially by some gynecologists.

So I was curious: do any of you feel like there are specific tools, devices, apps, technologies, or even aspects of care/support that are currently lacking for people with pelvic floor dysfunction? Or things you wish existed?

I’d really love to hear other people’s experiences and perspectives :)

Hi everyone, I already made another post about this, but I wanted to ask for some advice and see if anyone has had a similar experience.

How do you deal with stress?
Also, does anyone else experience urinary urgency related to pelvic floor hypertonicity, especially when standing or walking?

I also often deal with intimate itching, which I think might be caused by the dryness related to hypertonicity.

How did you manage it? Were you able to improve it or fully resolve it?

Thanks to anyone who replies :)

Hi everyone. I’m 23F and I’ve been struggling again with hypertonic pelvic floor issues that I first had when I was 16. They recently came back after months of digestive problems/IBS symptoms that started last October during a very stressful period of my life. Around the same time, my pelvic floor symptoms returned too.

It’s been almost 7 months now and I feel completely exhausted mentally and emotionally because I’m not seeing major improvements. I’m doing pelvic floor physiotherapy with a midwife/physio in my town: manual therapy, exercises, breathing work, and recently she gave me a vibrator/wand to work on painful trigger points internally. I’m trying to do everything correctly.

My main symptoms are not even pain most of the time. The worst one is urinary urgency. I also have vaginal dryness and pain during sex, but the urgency is what completely controls my life. Sometimes I go to the bathroom and then 10 minutes later I feel like I need to go again just for a few drops, but if I don’t go, I panic. The panic becomes unbearable. It feels like my whole nervous system goes into crisis mode.

I know I’m a very sensitive person and I tend to somatize stress and emotions a lot. I also constantly hold tension in my stomach and thighs without realizing it, so I’m sure that doesn’t help. I’m seeing a psychologist too, because honestly this condition is destroying my mental health. I barely leave the house anymore because I’m scared of the urgency feeling starting when I’m outside.

Another thing that affects me is that I moved back to my hometown after university, and my family situation is complicated. I don’t really feel happy or comfortable living here, but right now I can’t leave, so I know I need to somehow learn how to feel safe and okay here for the moment.

I guess I’m posting because I feel really alone and overwhelmed. I would really appreciate hearing from people who got better, because right now I feel completely broken and stuck.

Thank you for reading.