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Core body clinic in Reading and London Men's health physiotherapy are the only ones I can find.
Its mainly for hard flaccid like problems.
Anyone managed to find and solve these issues through physiotherapists, pls help me out
Hello everyone. I am 23 years old and have been debilitated with excruciating pain for 10 months now- with symptoms that were increasing throughout the years prior.
After endometriosis excision surgery failed to alleviate a large amount of my pain and symptoms continued to worsen, I went to see Dr. Andrea Vidali and his ESSI practice.
I received Botox into the uterus and pelvic muscles. 100 units in the uterus and 200 into the pelvic muscles.
I am two weeks post procedure. My pain has been largely nonexistent and has been knocked down from a level 7-10 to a 0-3. It’s mostly a 0-1. I am able to move now and walk without pain. I have now gone a week without any strong pain meds. My quality of life has GREATLY improved.
Prior to the procedure I was admitted to the hospital for intractable pain. I ended up in the ER monthly. I spent all my time in bed, battling horrific pain. I have been highly reliant on pain medications, strong ones too.
I know I am SO early into this process but with my pain being so low for the longest duration it has ever been in 10 months, I knew I needed to share this.
I absolutely will keep updates.
I know nothing in this area is a one size fits all solution but I hope this helps someone.
I can now start pelvic floor PT due to my greatly reduced pain. Between hyper mobility and years of increasing pelvic pain, my pelvic floor muscles obviously began to work improperly. Since I got Botox into the pelvic floor as well as the uterus, I thought this would be fitting to share to this page.
Hi everyone!
I joined this sub just today because I’ve had the most unusual symptoms start off this week and my doctors appointment isn’t until next week so in the meantime I’ve just been trying to figure out what is going on and if I can help myself at all.
As a background, I’ve never suffered from constipation, maybe the off chance once or twice in my life I’ve had a hard stool issue but it was always corrected quite quick with upping my healthy foods etc, doesn’t last. I have a BM everyday, if I eat too much the night before I can have maybe 2 in a day, but I’m regular with once a day for sure, in the morning hours.
So about 5 days ago, I came home from a road trip and tried to go poo as soon as I got home. It was about a 4 hour drive, and I think even during the 3 day trip my BMs maybe weren’t as consistent because it wasn’t my home toilet etc. I found when I got home that I was able to go but I didn’t feel like I emptied fully. I strained a bit more than usual to pass what was medium to soft stool and figured I was just a bit backed up thanks to the trip and eventually whatever was backed up would come out.
By the next day, I had another BM but again this was soft formed poop that took more straining that poop of that consistency should take and I still didnt feel emptied out, so as you can imagine that is quite the uncomfortable feeling. I had started taking prenatal the week before and I immediately clocked that the Iron in the prenatals might have created some hard stools as I’ve heard they can do that, I just didn’t put two and two together before. So I’m still not worried I just think I’ll eventually pass the harder stool out.
Next day, still no luck passing any of the stool that feels stuck right at the rectum, I have a BM but again it’s not hard and it doesn’t relieve the pressure I’m feeling but it’s a decent amount of poop but it’s semi soft and smallish pieces.
That night, I really start to get frustrated as I hate the feeling of having to go, I try to push pretty hard a few times and nothing. it feels like it’s at the end of the rectum. I eventually tried to digitally disimpact but I’m unable to feel anything up there in terms of stuck poop, so maybe it’s further up than it feels like. Rectum feels fairly tight i notice.
the next day, I end up wiping quite a bit because I’m trying to push out this stuck poop and instead keep pushing out regular soft poop and maybe poop that wasn’t even ready to come out. I think the vigorous pushing and wiping end up causing inflammation so I have to stop, apply Vaseline and let the burning stop. I ended up taking a Tylenol later that day to help with the painful burning and it provided great relief. I also note that the sensation of stuck poop was also decreased by almost 90-100% after taking the Tylenol.
the next day (yesterday) I come to the conclusion that there probably isn’t any stuck stool at all. I feel like at least some hard pebbles would have come out by now, and I don’t feel anything when I’ve gloved up and tried to take some out. I just feel that there is a fullness and incomplete evactuation as I’m sitting/walkinf around etc. I at this point think I could have internal hemroids that are causing the sensation of fullness. again like I mentioned, my doctors appt is next week so I don’t know for sure, this can still be the culprit.
it was today that I read a little bit about tight rectal muscles and tight sphincter and right now I think my symptoms most feel like this. by yesterday, the feeling of fullness/tightness in the rectum was very very uncomfortable. Not painful necessarily but distractingly uncomfortabl, like I couldnt concrentrate on work or even watching TV. I felt like I was sitting on a hard ball of stool.
today, I realized that massaging around the anus and rectum opening really felt nice. it was a temporary relief but massage those areas made that pressure feeling subside a bit which was so great. It was then that I had the thought, are my ass muscles just really freaking tight? from the earlier attempts to digitally disimpact myself, I knew my sphincter is SUPER tight as well. I gloved up again and just sort of tried to massage it loose with a lubricated finger and that felt really good, relieved the pressure for a few minutes for sure, but it quickly came back once the massage stopped. I also took a really hot shower and that also relieved a lot of the pressure feeling/feeling like there was poop there. Finally, I remembered how nice the Tylenol worked for relieving the pressure feeling and took another one today and wow, it’s all gone. I feel back to normal completely. I don’t anticipate this to be a permanent solution, obviously, but wow, no feeling of impacted poop, no tightness of the anus when sitting on toilet even to pee (that had started to happen earlier today before the Tylenol, my pee was coming out a bit slowly for the first few seconds because I just felt TIGHT near my anus as soon as I sat down to pee). All those symptoms completely gone with Tylenol, I no longer feel constipated AT ALL. I don’t feel like I’m sitting on a hard piece of poop at my rectum.
also to note, this entire time I’ve had no other GI symptoms other than the feeling of hard to pass poop at the rectum. No bloating, gas, uncomfortable guts, anything that would accompany constipation, and I still had a BM everyday, although they have been soft and not as formed as my usual BM, but that could be due to the trip I took where I wasnt eating my usual homemade food.
My inkling is that because all feelings of constipation disappeared with Tylenol, hot showers and massage feeling good, and the fact that prior to Tylenol sneezing and coughing would create an unpleasant sensation at the rectum muscles, that this could be a tight muscle issue. I’ve never had anything lile this before but I will note I’ve been extra stressed this year and constantly feeling like I’m in fight or flight? i just hope whatever switched on 5 days ago and made my ass so tight will eventually switch off because passing even soft BMs is straining, which i think is creating a negative feedback loop of making my muscles even tighter because I’m afraid of the pain, peeing is slower and feels slightly strained to get it going, and the feeling of tightness and pressure on the rectum is distractingly uncomfy.
like I said, I still have a doctors appointment to get a professional opinion, but in the meantime, has anyone experienced something like this? Did anything at home help? stretching? I know a PFPT would be the next step if it turns out I’m right.
As of right now, I feel perfect and so relieved. the Tylenol has sorted me completely but I haven’t had a BM while on the Tylenol…since I already had one this morning, but I have no pressure or feeling of stuck poop at all. I’m thinking of taking a Tylenol tomorrow morning before my usual BM and see if it comes out nice and smooth and without strain.
I’m 28 years old, I was diagnosed with Primary Ovarian Insufficiency at 26 following a car accident where I broke my spine, pelvis and sacrum - my body stopped creating hormones, eggs were damaged and I can’t have children easily, etc to where I now need HRT to protect bone density.
My problem, I don’t tolerate progesterone at all. It’s been a year and a half of trial and error with different timings (cyclical vs continual), different dosages (100mg - 200mg), and I still feel absolutely awful. Normally just deal with the insane bloating that adds 10 pounds, but this most recent cycle has landed me in the worst depressive episode I’ve experienced and it’s all tracking with progesterone.
My other problem however, from a result of the car accident, I have hypertonic pelvic floor syndrome (my pelvic muscles don’t relax - excruciating painful and exhausting), so vaginal progesterone goes out the window.
I’m nervous about the efficiency of progesterone cream, and so exhausted that I don’t want to try other progestins. The IUD also makes no sense to me as my body clearly does not like any form of progesterone (I did trial the vaginal).
I’ve been looking into Duavee and am interested, but feel like my doctor isn’t going to advocate because my body is actually producing no progesterone.
My overall dilemma: I am not producing progesterone naturally, but I’m also severely intolerant. I don’t want to be on it at all, but understand its purpose. I don’t know what to do.
I feel like giving up, it’s been years of suffering and I’m just exhausted.
So I’m waiting to start PFT after having laparoscopic surgery & excision of endometriosis, on my pelvic wall specifically. I also suspect that I have hEDS but can’t prioritize getting a diagnosis at this time because I have other medical concerns that need to get addressed first & it’s just a lot of appointments to juggle.
ANYWAYS! My neck, arms/elbows, and legs/knees are hyper mobile and I know that the neck & pelvic region are highly connected. I basically feel like my body cannot support itself and I’m folding in on myself at all times.
Do any of you with pelvic floor dysfunction also have hyper mobility? How has PFT helped your overall mobility/pain, if at all? Or did you find that you needed to focus on other areas aside from pelvic region to get relief (I’m assuming so?) basically I’m wondering if PFT alone is enough to make a slight change in my body overall, because I’m just concerned about needing another referral for “regular” PT for my neck, etc.
I’m honestly emotional writing this post. If my experience helps even one person, it will mean a lot to me.
Please forgive the long post, but I don’t want to leave out any details that could matter.
About two months ago, I was trying to stretch and massage my glutes using a cork roller. I made the mistake of sitting directly on the roller with my tailbone. My coccyx already sticks out a little naturally. I had put pressure on it before without issues, but this time something went wrong and it triggered horrible pain and discomfort that stayed with me for weeks.
As background information: I suffer from chronic pelvic pain because of a bladder condition, but it had never affected my tailbone before.
Three years ago, I had mild coccyx pain that was resolved with a manual internal traction performed rectally by a specialized doctor.
But this time was different.
The pain gradually became worse and worse. Sitting became difficult unless I curved my back or leaned onto one glute. Even doing a simple Kegel-type contraction hurt. Bending down, leaning forward, turning in bed… everything hurt. I couldn’t even lie on my back comfortably.
My physiotherapist performed manual traction again, but it didn’t solve the problem. I became obsessed with touching the area, using a TENS machine, constantly checking the pain… and honestly, I think all of that made it worse.
I also tried all the coccyx pain stretches I found on YouTube, but nothing improved.
Then things became even harder because in April I had breast implant removal surgery with a breast lift/reduction. Recovery required me to stay sitting and lying on my back for long periods — exactly the positions that aggravated my tailbone pain.
I remember lying on the operating table before surgery, unable to stay still because of the coccyx pain. The surgery lasted almost 6 hours, and when I woke up, my tailbone hurt badly.
The following days were a nightmare. I was recovering from major surgery while the only part of my body I could lean on was already inflamed and painful. I couldn’t push with my arms properly, and my glutes and pelvic area weren’t helping either. Sleeping was horrible. I had to sleep on my back with pillows behind me, but that increased pressure on the coccyx. I tried turning partially onto my side from the waist down. Honestly, it was awful. I wouldn’t wish that kind of post-op recovery on anyone.
Two weeks after surgery, I started taking 50 mg diclofenac once every night for about 5–6 days. It reduced the coccyx pain by about 90%, but I knew it wasn’t a good long-term solution. As soon as I stopped taking it, the pain returned.
Mentally, I was becoming desperate. I searched forums constantly and only found stories from people who had suffered for months or even years. Some never improved.
At one point, I read a comment from someone saying they improved by lying face down and making a movement “like wagging a tail.” Obviously humans don’t have tails, but they meant activating those muscles as if you did.
During all this time, I was also constantly talking to ChatGPT looking for reassurance and trying to understand what was happening.
At some point, the pain stopped feeling like it was only in the bone itself. It felt more like the muscles and tissues around it. Even turning in bed hurt.
I’m attaching images showing exactly where I felt the pain most intensely. And every time I touched the area too much or sat directly on it for too long, the pain flared up again.
Now comes the important part.
I got tired of feeling hopeless. I thought: “I do NOT want this becoming chronic and disabling.” So I decided to experiment with something.
And surprisingly… it worked.
Day by day, it started pulling me out of that pain and disability.
I’ll try to explain it as clearly as possible.
While sitting in the car, with my feet firmly touching the floor, I leaned slightly forward and started doing a strong pelvic floor contraction — not just like stopping urine, but more like tightening your anus as if trying not to pass gas.
At first, the contraction triggered pain in the coccyx area. But if I kept contracting harder and harder, the pain actually started decreasing.
The goal was to hold that strong contraction for about 20 seconds.
After that, I did the opposite movement: pushing downward gently, like the motion of trying to have a bowel movement.
When I discussed my symptoms with ChatGPT, it suggested that the issue sounded muscular and related to inflammation or irritation around the pelvic floor muscle insertions near the coccyx.
And honestly, that explanation makes sense to me.
I believe these contractions and release movements were gradually stretching and relaxing those irritated muscles and attachments.
The key for me was:
Doing this 3–4 times in the morning and again in the afternoon/evening
Stopping myself from constantly touching the area
Avoiding direct pressure on the coccyx even when I started improving
Whenever I sat down and felt that familiar pulling pain while leaning forward or backward, I would do the strong 20-second contraction again, then relax and gently push downward afterward.
It sounds crazy, I know.
But this random discovery got me out of what I truly believed would become a chronic nightmare.
I really hope this helps someone else heal and get back to feeling 100% again.
Also: Walk as much as you can, and pay attention to posture even when you start feeling better.
Thank you for reading, and I sincerely hope this helps someone.
Hello everyone,
I thought I’d give you an update about my diagnositc workups and vascular diagnoses (pelvic congestion, reflux and more). I am trying to explain how I got there and how relevant the findings could be for HFS and CPPS. This will be a long post, but the length was necessary to understand the full picture and clear questions that might arise without it.
First I am going to give a quick rundown of my symptoms and the duration:
After many years of Hard Flaccid Syndrome (HFS ranging from mild at best to severe at worst) and chronic pelvic pain, I finally underwent extensive vascular imaging that revealed objective abnormalities which may be clinically relevant.
My main symptoms include:
My symptoms began abruptly at age 18.
I woke up one morning with severe localized pain in the penile shaft. Within 10 hours, I developed what is now commonly described as Hard Flaccid Syndrome. It’s really hard to say whether or not I injured my penis in some way the day before. I did do repeated masturbation the day before, but I went to bed fine and had no pain during the evening or at night. I only woke up with it, so the two situations might be unrelated and I always did doubt that I injured my penis somehow, as I was always rather cautios.
Over the following days and weeks, I experienced:
The acute penile pain gradually resolved over several months, and the major sensory loss eventually improved. However, the pelvic pain, perineal spasms, Hard Flaccid symptoms, and associated dysfunction persisted.
Before this event, I had years before occasionally experienced:
These symptoms were relatively infrequent and were not a significant problem at the time.
I underwent many MRIs over the years, including a pelvic MRI in 2022.
In late 2025, I underwent more specialized vascular imaging after a referral that specifically mentioned suspected pelvic congestion syndrome (“Pelvic Congestion” was explicitly stated in the referral indication). This included:
Because pelvic venous disease was already part of the clinical suspicion, these studies were explicitly performed with attention to pelvic venous congestion and venous outflow abnormalities.
I later sent all imaging studies to an interventional radiologist with experience in pelvic venous disorders.
After reviewing the CT scans and MR angiograms, he stated that the most notable finding was a dilated pelvic vein, consistent with a possible pelvic venous congestion disorder.
Importantly, the radiology team that performed the CT scans and MR angiograms also had access to my earlier pelvic MRI from 2022 and used it as a direct comparison study.
On re-evaluation, they noted that the same pelvic vein appeared significantly more dilated in 2022 compared to the current imaging, while on the more recent scans it appeared reduced in size and less prominent. They described it as having decreased over time, whereas in 2022 it had been clearly more enlarged.
Importantly, this same finding was already visible on the 2022 pelvic MRI but had been overlooked in the original radiology report.
This suggests that pelvic venous abnormalities may fluctuate over time, may partially regress, and may also be missed unless specifically assessed in context.
I was then referred to an interventional angiologist with experience in pelvic venous disorders predominantly in women.
Interestingly, he primarily had clinical experience in female patients with pelvic congestion syndrome. He explained that he also uses female pelvic venous hemodynamics as a reference framework when interpreting male pelvic venous flow patterns.
Standard ultrasound in the supine position showed little. However, because I explained that my symptoms are much worse while standing, he repeated the examination dynamically while standing.
During standing and Valsalva, he observed:
He noted that similar hemodynamic patterns are well known in female pelvic congestion syndrome, where reflux can extend toward the pelvic venous plexus and external genital region (labial venous drainage) during standing and straining.
In my case, he stated that a comparable reflux pattern could be followed into the penile structures.
Based on these findings, he recommended a super-selective pelvic venography/phlebography.
A super-selective venography/phlebography with a vein catheter through my right groin vein with contrast was performed a few weeks ago.
The venography confirmed:
A possible compression of the left common iliac vein (approximately 70%) was identified on duplex ultrasound and considered suspicious for May-Thurner syndrome. However, the invasive venography did not demonstrate a clearly hemodynamically significant compression, so May-Thurner remains a possible but unconfirmed contributing factor. An IVUS wasn’t done to further investigate it.
No convincing evidence of Nutcracker syndrome was found:
One of the most striking aspects of the procedure was that selective catheterization and contrast injection was purposfully done in a way to try to irritate and reproduce my symptoms. Some of my characteristic symptoms were reproduced.
These included:
In particular, selective catheterization of the varicose pudendal veins extending to the pelvic floor reproduced symptoms in the exact anatomical region where I frequently experience spontaneous perineal spasms in daily life.
The sensations were not identical to my complete Hard Flaccid state and didn’t really trigger it (though I already was severely flared through the stress of the procedure), but they were interestingly similar and occurred in the same anatomical location.
An Embolisation could be a potential treatment option, which would get done in phases, so each phase require another entrance trough my groin vein with a catheter. I have not had my follow up appointment with him yet to speak about the details and potential treatment avenues to follow.
I was also evaluated by a gynecologist/pain specialist with a neuropelveology background.
He diagnosed me right away with May Turner syndrome, Nut Cracker Syndrome and Dunbar syndrome. However me and a few other patients have doubts about the validity of these diagnosis as they were done rather quickly and based more on static images than the normal tests required.
However, he proposed that vascular abnormalities such as pelvic venous congestion could secondarily irritate the pudendal nerve and potentially autonomic pelvic nerves, resulting in a secondary pudendal neuropathy.
He also discussed that anatomical or biomechanical factors such as pelvic posture (including scoliosis and hyperlordosis) may influence venous compression dynamics in the pelvic/iliac region, although this remains a theoretical contribution rather than a definitive cause.
In addition, therapeutic and diagnostic options were discussed, including:
He was very honest and said that a complete remission of symptoms was unlikely, though he was confident that he could improve my quality of life with these symptoms.
My current evidence-based interpretation is:
My goal moving forward will be to get more clearance on the compression diagnoses. I will have another appointment with a european specialist in may turner syndrome and hope that his expertise can shed light on which route I should follow when it comes to embolisation, stents and/or laproscopy.
I am not claiming that this is the universal cause of Hard Flaccid Syndrome, nor that these findings definitively explain all of my symptoms.
However, this is the first time in many years that objective structural abnormalities have been identified and closely correlated with symptom reproduction during invasive testing.
I am sharing this in case others with Hard Flaccid Syndrome, chronic pelvic pain, penile numbness, perineal spasms, or unexplained genital symptoms may have an overlooked vascular component that has not yet been investigated.
Hello everyone,
I’m currently stretching, breathing, and using rectal dilators for my tight pelvic floor. I had some urinary/penile issues early on, but most of my problems are localized to the rectal area.
At my PT’s suggestion, I’ve been doing rectal dilation with Intimate Rose dilators. My issues is uhhh…unique maybe. I have often in the past used butt plugs during sex and masturbation as well as enjoyed pegging with my wife.
Long story short, my mind and body associates the dilator with sex, but sex exacerbates my rectal tightness issues. Most times I’m able to redirect myself, but it is really difficult. Has anybody else ever retrained their brain to not associate rectal dilators with sex?
Help! I need a pelvic floor motility specialist.
I go on line and it seems there are only NYC doctors.
Has anyone gone to a NJ gastro that specializes in motility issues?
I’m super into lifting and started taking creatine but ever since I have my urinary frequency and leaking/not being able to fully empty my bladder symptoms have gotten worse.
Has anyone experienced similar? I wonder what the possible mechanism of action is as everyone online seems to be adamant the creatine is unlikely to cause frequent urination.
Will probably have to end up quitting taking it.
Frustrating.
About a year ago, I sought pelvic floor physical therapy for pelvic pain and sensitivity. I had only seen one doctor at that point, and they immediately referred me to a specific pelvic floor therapist. Originally, they recommended the owner of the practice, but she was not accepting new patients, so I was assigned to another therapist. I was told she was very experienced and highly recommended.
The first session involved what I understood to be an initial evaluation. Although I felt uncomfortable, I assumed it was necessary. During that exam, she used a Q-tip and slowly rubbed it over my clitoris, around my vaginal opening, and around my urethra. This made me extremely uncomfortable, especially because my primary pain and sensitivity had always been in my clitoris.
What concerns me is that this same Q-tip technique became the main focus of every session afterward. Typically, the sessions would begin with massage work on my stomach and legs. Then, for the majority of the appointment, she would use a Q-tip to slowly rub my clitoris and surrounding vaginal area. This occurred repeatedly throughout approximately 20 sessions.
There was very little internal work . The only internal work I can recall was on two occasions when she inserted the tips of two fingers slightly into my vagina and had me squeeze for about five seconds. Other than that, there was essentially no internal pelvic floor evaluation or treatment. The final ten minutes of each session were usually spent reviewing stretches to perform at home, which I followed consistently and diligently.
Over time, I actually felt worse. The repeated Q-tip stimulation would often trigger significant flares of my symptoms, and I frequently left appointments feeling upset. There were times when I would sit in my car and cry because I felt violated and uncomfortable with what had occurred during the sessions.
What has made me question this experience even more is that I have since seen multiple physicians and specialists for my pelvic pain. When I explain the treatment I received, many of them seem surprised or confused by it. More recently, I have undergone pelvic examinations where providers used a Q-tip to apply pressure to specific locations in order to identify pain points, which helped reveal significant areas of pain. Other providers have also performed internal examinations and discovered substantial pain within my pelvic floor muscles.
For the first time, I felt validated because these examinations identified actual physical sources of my pain. Throughout my treatment with the pelvic floor therapist, I was repeatedly told that my symptoms were essentially "all in my head." However, subsequent evaluations have demonstrated that I do, in fact, have significant pain and dysfunction that can be reproduced during examination.
I am now working with new providers who have recommended a different pelvic floor physical therapist, and I am hopeful that I will finally receive treatment that is more appropriate for my condition. Looking back, I still question whether the treatment I received was standard pelvic floor therapy, as the repeated Q-tip stimulation seemed to be the primary intervention despite causing worsening symptoms and providing no meaningful improvement.
Help! Idk what to do.. please read all:
Today I went in for a consult on my Adenomyosis and Pelvic Congestion Syndrome. Due to having a grade 1 cystocele prolapse, she wants me to get a Uterine Artery Embolization first - she believes my symptoms could be because of the blood pooling in the veins outside my uterus. And that if I got a hysterectomy, it could shift my prolapse and make it worse.
I was hoping for the hysterectomy altogether and be done with this all. But she scared me enough I’m thinking of doing the Uterine Artery Embolization first… lol
INPUT/ADVICE PLEASE 🙃🙃🙃
40 M
I use an intimate rose dilator but have read that some people can put dilators into the anus and just leave them there?
This is a physical impossibility for me and I thought it was normal.
The second I let go it begins to squeeze out, and if I didnt intervene it would be out within 4-5 seconds.
This is a natural reflex and it is impossible for me to stop this so during sessions I have to hold it in constantly.
Is this normal or do other people find they can be left in?
I have tried breathing and relaxing the muscles but nothing works.
Thanks.
I feel like such a joke of a person. About 3-4 weeks ago I posted here anxious that my masturbation habits caused some sort of nerve damage due to peeing issues, but thankfully those issues seem to have gone away on their own, I didn’t really do anything to fix it. And I feel like my life generally resumed back to my baseline more or less.
But of course, it just had to be ruined. And it all came fucking back last night when I fucking jacked off because I thought I was fine doing it again, and now I’m dealing with the same goddamn peeing/pooping difficulties and urethra burning sensation that I DEALT WITH FUCKING WEEKS AGO.
This legitimately made me cry like several times today. I don’t typically cry when something distressing happens or my anxiety flares up, but this specifically made me cry at least 2 or 3 separate times. I’ve been going to my school’s health center for weekly check ins for various reasons, and when I brought it up to the person I see I just felt so dejected and felt like shit leaving afterwards. I’m not going back to the fucking urologist, I went to them, they got a urine sample that came back fucking PERFECT and did an ultrasound where they found like, 50ish MLs of urine still in my bladder and told me they weren’t worried and said I could either do PT which I probably don’t have the time for since I’m moving in a few weeks to another state or take medication that’ll make me dizzy and all other types of bullshit, so if all I’ll be told is that they don’t see anything wrong with me then I guess I won’t fucking go.
And I was having a generally stress free week/weekend before this, and I didn’t have any real anxiety flare ups or anything. And because of all of this, I’ve gotten legitimately suicidal over it. Like I legitimately can’t do shit that I like anymore if all I’ll ever feel or focus on is my goddamn urethra feeling like it’s constantly got pee in it, and I know my masturbating habits were shit but I still had hope I could work on them without having to suffer like this. Eventually if I turn into those people who spend decades of their lives with peeing issues or pelvic floor dysfunction, then quite frankly I don’t wanna fucking live like this anymore if I can never make it better or find solutions. I tried doing diaphragmatic breathing after classes but that sure as hell didn’t help, so I don’t know. If yall wanna say anything to try and dissuade me from dying then I guess you can do that, but quite frankly this ruined my entire goddamn week and I don’t want to suffer like this at all for the rest of my life.
Hi everyone,
I’ve already posted a few times in this group, but I wanted to ask something a bit different this time.
I have hypertonic pelvic floor dysfunction, and I’m also a biomedical engineering student, so lately I’ve been thinking a lot about what kinds of tools, technologies, or support systems might currently be missing for people with this condition.
For example, one thing I personally struggle with is that I often don’t realize in the moment how tense or contracted I am until much later. Sometimes I wish there were better ways to monitor or become aware of that in real time with some portable device I guess.
I’ve also felt like this condition is often minimized or not properly recognized, especially by some gynecologists.
So I was curious: do any of you feel like there are specific tools, devices, apps, technologies, or even aspects of care/support that are currently lacking for people with pelvic floor dysfunction? Or things you wish existed?
I’d really love to hear other people’s experiences and perspectives :)
Hi, I recently discovered I have pelvic floor dysfunction, been having sudden cramps and discomfort in my pelvic floor for a while which has resulted in weak erections, premature ejaculation and loss of penile size, which has destroyed my life.
Started doing some physical therapy sessions but still haven’t seen any improvements yet which made me think has anyone healed completely? Maybe you can share some positive stories with us please.
I’ve had confirmed endometriosis since a surgery in 2024 but I’ve had constant pelvic pain since so I finally have a diagnosis of hypertonic pelvic floor. Where I’m at there’s a 6 month waiting list for PT which I’m on but I’m trying to start on some stuff at home. My issue is every stretch I find online that says it should help relax my pelvic floor ends up giving me more pain afterward. I’ve done multiple stretches like happy baby, child’s pose, butterfly, and a deep squat I feel the same while doing them and as soon as I get out of it the pain flares up worse for a few minutes. I’ve done some diaphragmatic breathing but I don’t feel the “drop” in the pelvic floor that I should be feeling so I know must be super tight. I know the answer is to stop and deal with it till a PT can examine me but I really need something to help if it doesn’t take the pain away at least make it better so has anyone had this happen to them and if so what stretches actually help?
No urge to pee for almost seven months now. My pelvic floor had tension in it thanks to my mental health tanking last summer and it made my bladder overactive for a month. Awful urgency and pelvic pain. Even dealt with painful orgasming at some point and urge incontinence. Not so much anymore as the tension lessened, especially as I took pelvic floor therapy for a few months. Still kept working hard as hell on stretches and relaxation exercises afterwards.
But my bladder wasn't the same anymore after what went on with my PF. I've ran out of options, especially since a urologist told me I could still be holding underlying tension somewhere to be still causing sensory problems there, but I wouldn't know for sure. Has anyone ever tried dealt with a similar issue with a lack of urgency and used a tens machine to help stimulate that? If so, what frequency?
I’m male Had protected sex with a female
- 24 hour later testicles felt heavier
-It’s been 2 months now
-Had 5 Sti checks all negative for all infections
-Bloods fine
-Prostate check fine
- nuts felt by 3 doctors no issues found
Symptoms ongoing ever since
-Urethra looks slight red and agitated
-Testicles ache all day
- symptoms see to not be present at night when laying down.
- testicle feel worse after standing all day
- I feel like I have a drip from the tip but so far no discharge has been present and if I touch it when I think it’s wet it’s dry.
Drugs given by doctors
Cefixime and azithromycin
Doxycycline 14 days
naproxen 7 days
ciprofloxaci 7 days
2 months and all this treatment. Yet I still feel symptoms of urethra exit agitation and testicles ache
Anyone else had this? Know how to fix it?
-constant perineum pressure/discomfort
-Worse after a history of excessive masturbation/clenching
**-**No major urinary red flags.... can pee normally, no retention, no very weak stream, went to get a testicle ultrasound and there was no issues
-tried cannabis and the discomfort got even worse
-it kinda flares up and leaves sometimes
-been going on for years at this point
kind of going crazy here, went to the doctor and they look at me like im crazy, saying im healthy and all.