In my role I have the ability to make change and speak for everyone here about their experiences. I work at a national level and my plan is to raise this issue broadly to further restrict fluoroquinolones as a last resort drug. No one and I mean no one understands the consequences of what happens to people who do experience these horrible effects.
Well, thank you to this group for all of the information that has been provided here. I don’t know how I would have survived these last few months without it. It’s very clear now that no one knows anything about this especially in smaller communities.
It has been an eye opening experience to say the least. I’m a pharmacist with many years of experience and I never ever would have guessed just how serious this adverse effect can be. The pain I endured brought me to tears and the isolation was devastating. I now understand what people mean by the trauma.
I was floxed in March 2026 and I’m now approaching the 12 week mark and seeing the very slow improvement that has been so often described but I’m still house bound and unable to walk normally. I’m remaining patient but it truly is hard. Unfortunately, last week I was also newly diagnosed with diverticulitis adding a new type of pain on top. Forcing me back to the bed and on a restricted diet on top of being celiac. Wondering if anyone ever received this diagnoses post flox. I found it odd as I have no risk factors.