r/floxies

I just began taking creatine 3G a day and DUUUUUDEE it has increased my energy and strength a good amount this is awesome

As per the title. Ideas of groups that are active?

First of all: my english is really bad, i hope everybody cab understand what, i mean.

Which examinations did you have done? Were examinations such as bone scintigraphy, MRI, and capillary microscopy all unremarkable for you? At what point did you know that you were floxed

Quiero volver a mi vida normal

Disfrutar como antes

Fui con un urólogo y me diagnóstico epidimitis crónica con uretritis

Me recetó 20 pastillas de ciprofloxacino con doxiciclina,

Me da miedo los efectos secundarios pero no veo más opción

La primera pastilla me dió efectos secundarios tipo hormigueo y dolor en extremidades

Pero si no tomo el cipro, entonces que me podrá curar?

En el PCR me salió positivo Mycoplasma Hominis y Ureaplasma Parvum

CW for medical neglect, generally difficult subjects

Hiya! I only recently found out i was floxxed. I had sepsis abroad only at the time i was told it was a stomach bug, i only recently found out it was sepsis as i was clearing out old medical records. Anyway, turns out I was given Cipro for it along with a few other drugs. Post 2017 i had awful "IBS", joint dislocations, tendonitis in my wrists, general pain, fatigue, tinnitus, worse mental health etc.I found out i have hypermobility spectrum disorder maybe 5 years ago and thought ahh that explains that but it really feels like now what i know about cipro is the missing piece of the puzzle. I've had years of being dismissed by drs been called a hypercondriac and told its in my head.

In terms of treatments I've tried a lot. We went to a funtional gut medicine specialist who told me it was leaky gut and put me on a probiotic rich low inflammation diet, to be honest i cant remember if this helped but it did make me miserable as it was very restricted. I tried talk therapy and CBT. Then i tried the Low fodmap diet, then gut directed hypnotherapy, then veganism. Last year i added dairy, meat, eggs and beans back in as i had begun to tolerate things again and so far the gut problems have been much better.

I had to stop working as every job flared up my symtoms and i ended up sicker. I now have a carer and use mobility aids. I think this has helped me improve a bit as i have been able to rest much more. I've noticed magnisium has helped me a lot but only added that in the last 2 years or so. I am currently under investigation for Myalgic Encephalomyelitis and sleep apnea. I'm going to research the suppliments reccomended here and would appreciate hearing anyone experince who is also having long term effects like myself. I'm hopeful that now i know this piece of the puzzle things might change but worried that i could be that rare case where there is permanent damage especially considering my connective tissue disorder and the length of time I've struggled.

had a 500mg 10 days levaquin run from misdiagnosed uti. weird leg things tingling/burning started to happen a couple days ago so i kept a log in my notes app and i feel so hopeless cuz im scared of whatll happen in the future and if itll get so much worse and im so incredibly scared and i have no one to talk to about this. someone please talk to me about this. im just not doing too well

Previously my tendons and neuropathy recovered to a point of: able to cook, clean, move freely at home, and direct Uber to appointments and restaurants (door to door).

Recent new symptoms have left me housebound and unable to walk. Live in high-rise apartment, need assistance to leave. Can't use self propelling wheelchair as one shoulder not fully recovered. Sitting all day either in sofa or bed. Nearly considering electric wheelchair.

What hobbies or past-times helped keep you sane?

I usually go to antioxidants to prevent flares when I feel them coming on. This tike ive caused some kind of redox reaction. My tendon injury come back which jad mostly healed and I now suffer from chronic fatigue again after largely stabilising after 10 years.

Jesus christ there is no end to this for me. 11 years in August.

Im currently struggling badly with leg muscle pains mainly calves , I’m 3 years now and was starting to feel better so thought i would try and strengthen my leg muscles up , but after doing some foam rolling and other exercises I’m now in an awful flare and almost anything i do from cleaning car to gardening really make all leg muscles hurt like hell and is not easing at all, any advice to get back to baseline its been almost 2 months now .

Hello, I think I am at 3 years +, and my story is not like yours so please newbies you don't have to read this.

I was not floxed that badly, sure I did have my weeks of bad pain and inability to walk randomly during flares and stuff, but overall I just had weak tendons really prone to injury, so I thought I would recover fairly quickly(maybe 3 years i thought) even tho I had a delayed onset of symptoms so my tendons became weaker over the first year.

I remember thinking in beginning of this year that this might be the year I finally recover, I had real tendon injury only in my knees and elbows, however since the start of the year I made some serious mistakes and things got worse.

It started with injuring my left index finger with repetitive use of a lever over a couple of days.

Than I went fishing for a week and during this week i injured my right index finger which I was already confused by because I was fishing just alright last year.

Few days after the fishing week my right pinky also started to hurt on maximum contraction of the finger, I doubt this is tendinopathy because its different from my index fingers, either way I have no idea yet what this injury is but it sure doesn't respond to rehab and sure is annoying.

I thought to myself ok I will just rehab it, however when you have this many injuries involved I think I feel something in all my fingers due to neural system activation.

I decided to start using HGH this year to rehab all these injuries since clearly this is not going well without help of drugs, at first I thought I was doing well, I managed to get my knees to 3 sets of 10 squats with 30 kg, then I adjusted to 35 kg 3 sets of 6-8 reps and this unfortunately really flared them this was not so long ago maybe couple of weeks, I also decided to use some multivitamin with minerals which really really seemed to have flared me along with some personal life issues I was stressed by.

Than I decided to go swimming and of course I am feeling pain in my shoulder 2 days later, just praying it goes away, and of course when I went swimming I seem to have developed Plantar fasciitis or similar injury on feet from the walking in swimming shoes I did.

I don't know what to do anymore. It seems that everyone heals before me even tho they were foxed much worse. I feel like my tendons are now made from more like collagen 3 instead of 1 I don't understand why this would happen, I try to rehab it sometimes goes well and than it fails, sometimes really not. The guide to get out of this on this sub seems to be to start slowly exercising thus strengthening your tendons, I started with 5kg holds strengthening my biceps but I got pain even from that day after I do some isometrics here and there on "healthy" tendons but they start cracking day after and it doesn't seem to strengthen them even if I am on 2IU hgh, please just tell me what to do, I am really lost, I feel pain everywhere I believe I have some degree of neuropathy as well even from hgh obviously but even without it. I really am lost and my tendons seem to weaken year by year. I just want to live normal life, but now tendinopathy in my index flares even from clicking on mouse.

Has anyone started antidepressants/ anxiety meds if so which works best after being floxed and having anxiety and depression please help

Hi all, it's been 1 year since being floxed and I feel like the whole year has been filled with either googling symptoms, going to appointments and tests or just dreading them.

I know I have more MRIs coming up which I think they will suggest gadolinium contrast which I have read the different experiences with that. I will most likely say no to the contrast if I am able to as I assume they will allow it without contrast but I hate having to sit there for hours worrying about if the next test/appointment or suggested medication may make things worse either mentally or physically.

I have had issues with other medication before whilst also struggling with anxiety surrounding health. Ironically I did read this sub before taking Ciprofloxacin and decided that the benefits outweigh the potential side effects. I really wish at this point I wasn't so anxious about anything health related as this experience has definitely made some aspects a lot worse.

At this stage, it feels like for me personally it would be better to just not have any more tests as I don't know how much more of them I can deal with, especially as 9/10 of times the results have been clear.

Has anyone had a flair that was worse than your original floxing? If so, what did you do to help your symptoms?

I was given steroids, epinephrine, ibuprofen, and some allergy medicine a couple months ago for a severe allergic reaction. My joint and tendon pain has been noticeably worse than my original floxing. I have started to slowly recover luckily. I’m looking for any similar experiences or advice.

I'm 19 and after taking Ciprofloxacin intravenously in March for an appendoctomy I immideatly developed severe insomnia, in the beginning (first month or up to two) there was psychosis (just without visual hallucinations, but i was out of myself, attacks of shaking and generally I know it was psychosis) anxiety/panic attacks and severe insomnia (48hrs without sleep every now and then, and 99% of the time very, very weird sleep where I wake up not even knowing if I slept, waking up every 20 mins etc.)

I do not have and didn't have physical issues (joint, tendon etc) thank God.

At around month 3,5-4 the daytime anxiety and attacks dissapeared. Actually, at the end of month 3 and beginning of month 4 I had high cortisol (proven via lab test) and I was feeling really bad but then after that it got better and now I don't feel or act depressed or anxious during daytime.

(It is now close to month 5)

However, my sleep is really bad and I think I might even have a heart issue. The palpitations are less common than before but for example in the beginning my heartrate would be very low then very high etc. Now sometimes I have "zaps" and pains in the chest, and palpitations, but it's not common or severe. My heart enyzme is fine but i don't know if that is connected to this. I had a few EKG readings and they were fine but I felt fine while I had them recorded, and in the ER they kept telling me I was just anxious.

The sleep is the problem. Most nights I have a sleep where I don't even know if I slept, I wake up every 20 minutes, or I can't fall asleep that night at all and then next night maybe I won't too, I drink Magnesium for Sleep (Magnesium Night, I think it's citrate). I tried Bisglycinate once and maybe it was a coincidence maybe not but I was feeling really anxious and like I had a relapse that day. So I stuck to the Magnesium that I've been using since beginning but it doesn't help if it's a no sleep night.

Questions I know you already expect me to ask but I want to know: Is this likely to fully recover? Is this dangerous? Will I be able to continue my life , say, will I be totally recovered in a year full (next March)?

The past couple of days I have the familiar aches and pains from two years ago. Not sure why. Didn’t take any meds, supplements, new foods, I’m not sick etc… sends my anxiety way up. Hoping it’s gone just as fast as it randomly came. Neuropathy hasn’t flared up, just the whole body ache. This happen to anyone else ever?

I used to be a huge roller coaster nut before this happened to me.
Is this something I’m going to have to skip for the rest of my life? Has anybody successfully been able to ride extreme rides again after being floxxed? Or similar things?
Even Spartan racing again seems out of reach for me.

Hi all, about 15 months out here from being floxed. Main symptoms are nerve related (twitching, burning pain, muscle cramping) and fatigue.

I thought I was gradually getting better and that most of my symptoms were becoming a lot less frequent, with the fatigue plateauing at a manageable level. But then earlier this year I got much worse muscle cramps, twitching, and fatigue. I also got a lot more depressed because I felt like all I could do was lie around watching TV for the whole month because of the fatigue, and I was afraid to even do light exercise because of the muscle issues. My sleep was terrible and I was feeling really anxious about it. At the end of the month my dr. put me back on sick leave. I asked to try an antidepressant for my mental health we went with duloxetine because it is also commonly prescribed off-label for generalized nerve pain (e.g., burning).

We started with a low dose of 30mg/day. Well, within a week, my twitching and muscle issues were 90% gone. Within a couple of weeks, I felt better mentally than I think I ever have in my life (having struggled on and off with depression for a long time). I had a huge burst of energy. After about 6 weeks on it, the improvement dipped a bit, but I still feel this dose is 80% effective and I still feel mentally better than ever despite the ongoing flox-related health issues (and some other, unrelated troublesome health issues too). I still struggle with some fatigue and need to rest for a couple hours in the afternoons - a full-day of activity is still off the table - but the relief is otherwise immense. I have very little twitching and almost no burning, and the muscle cramping was totally gone within days. I was just hoping for a good result for my mental health but all this other stuff is a pretty miraculous bonus. It's all allowed me to also focus on improving my sleep, which I have been able to since I have so much less anxiety.

Side effects (don't read the duloxetine sub, it's all horror stories!):
- First 3 days: lots of nausea and zero appetite
- First month: frequent headaches, maybe 3-4x/week
- If I took it with my dinner: feeling wired until 1-2 AM, so I take it with breakfast now
- Continuing side effects: Very little hunger signals. I deal with this by eating at regular times and making an effort to eat enough calories at each meal. I'm quite slim so this is important. Good news is, it stops me from eating unhealthy snacks mid morning or mid aft as I just don't feel hungry.

So if you are having a similar time as me...perhaps something to consider with your doc.

Hi all!
I wanted a little advice on when you guys got back to physical activity. I know it sounds crazy because I’m only 2 weeks post-flox.
I only took one dose of Cipro. It started with some leg pain and tingling, then a few days later I had a severe flare that sent me to the ER. I had nausea, full-body tendon and nerve pain, was bedridden for over a week, and needed help just to walk to the bathroom.
Since then, I’ve been following a lot of the advice here …taking magnesium, probiotics, electrolytes, and eating what my body seems to tolerate. I’m finally getting some of my energy back, but I still get random pains in my arms and legs (nothing close to the excruciating pain I felt during the bedridden phase but still painful). I haven’t even left the house yet because I’m honestly terrified of triggering another flare!
When did you guys feel comfortable doing something as simple as walking around the neighborhood? I miss being active, but I’m scared of making myself worse. Google says to avoid weight lifting for at least 6 months, which is heartbreaking after all the progress I made with my first chronic illness.
Any advice and personal experiences on easing back into physical activity would really mean a lot. Thanks in advance! 🤍

I was prescribed Cipro for a UTI almost a month ago now, and I took it for that week. 500 mg once a day for 7 days. I was made aware before even taking it that it was horrible and poses all these risks, and the urgent care that prescribed them basically made me seem hysterical. Well as of a few days ago now, the tendon in my left calf hurts when I walk. It hasn’t gone away, and I’m worried it’s building into something scary but I’m unsure what to even ask a doctor.

I went to a different urgent care just the other day for recurring kidney pain (no signs of a uti), and I just lied and said I’m allergic to Cipro so that I never have to take that again. It doesn’t hurt right above my heel, so I can walk. It just hurts when my foot bends at the toes. Whenever my toes tense or try to bend then that’s when my calf hurts. Has anyone else experienced this? What did you do? I just don’t know where to go from here.