PSA for neurodivergent folks
So hoping this helps other neurodivergent folks. The prep, which I had heard so much about, was actually totally fine. I did sutab, the guidelines said I could eat "up until noon" so I just went ahead and had an early lunch, then started prepping at 1630. Had to get up again at 0130 for the next dose, but no problem -- I was in my own house in my own clothes and I was like "great, this is easy". They said the prep was excellent btw.
For me, the part that was a huge challenge was being in the medical setting. I was expecting something way, way lower key. Kind of something like a regular doctors office, but with a few more machines. Instead it was all these bays, where you could hear everyone else and they could hear you, a TON of equipment, those scary wheely beds, curtains that didn't come down to the floor, a nurse who seemed like he needed me to reassure him, ecg leads and an oxygen meter, weird green trash bags for my clothes. They wanted to set up in one set of bays, iv and gown and all, then wheel me down the hallway past the elevators where anybody could walk by. I was clearly so upset that they offered to just do all that setup in the procedure recovery area (no hallway wheeling), which was a big relief and appreciated.
People wise: there were a lot. I think I met like seven people, five of them were in the actual procedure room. It was the doctor, the anaesthesiologist , a nurse, another nurse, and a medical student. They were really trying to be nice!! Everyone introduced themselves and explained their role, when I said " I need to know exactly what is going to happen" they tried to explain, and one even said " You seem extremely nervous. Is there anything I can do for you?" I appreciated that a lot. But it was still extremely overwhelming just being in that degree of medical setting. And they all seemed to want to make social chit chat. How the hell am I supposed to answer "how are you today?" with an IV and other tubes/leads all over me?? What do they want me to say?? I even said that, " I'm not sure how to manage this social interaction". I tried "please tell me exactly what you are going in as much technical detail as you can share" but I think they mostly did need to focus on what they were doing. Which I totally understand.
They were lovely and tried their best! I brought my comfort stuffed animal, and they all thought he was funny and gave him his own oxygen mask which I thought was a really sweet gesture. Technical wise, I think they did a great job. Zero pain, cramping, flatulence. Every felt totally normal afterwards and they explain the results carefully, answering all my nitpicky questions. I just wanted to share, be prepared for a setting that looks a lot more dramatic and intense than your normal doctors appointment. Honestly it felt like a set from ER. I do understand that if something goes wrong, they NEED to have that equipment, and I'm glad it's there. They need to keep everything clean and they need to monitor you to know you're doing ok with the sedation, they give everyone oxygen, an IV has to have a clear dressing to keep it clean, etc etc etc. It all makes sense. But without knowing exactly what everything was, it was just a shock.
In the end though that was a big positive takeaway for me. It's hard to get lower stakes than a colonoscopy, in terms of "quite highly instrumented settings". I'm so happy that if I ever do need a more serious procedure, I will NOT be seeing things for the first time then.