Fighting Biliary gastritis

I think the most frustrating part about bile reflux is that I can’t find a GI that gets it. After my gallbladder removal I became severely ill. Nausea that was other worldly horrible. My GI just put me on a ppi and nausea medication. It wasn’t until I did my own research I discovered what bile reflux was. At one point my GI had me on 40mg of omeprazole twice a day. To treat a problem I didn’t even have. I had to suggest bile binders and had to wean myself off the PPIs. The bile reflux went away after four months. Now several years later it’s back. I got an EGD and my stomach was full of bile reflux. What is their focus, again? PPIS!!! Well, maybe we should switch the ppi and anytime I mention the bile they switch the subject back to PPIs. It’s insane. That isn’t the predominant treatment for bile reflux. I did decide to try the PPIs because I’m like well maybe I do have an acid problem now, too because they diagnosed me with GERD after the EGD. I thought because they saw acid in my esophagus but, then, I asked if they could tell if it was acid or bile upsetting my esophagus I was told they can’t really tell a difference. My stomach was FULL of bile. I have horrible gastritis and I didn’t have this long last time. I tried ursodiol and it gave me stomach pains that were pretty brutal. Tried colestipol and now I’m trying welchol. I was on 40mg omeprazole and told my GI I want to go down to 20mg. My GI did order an MRCP to look at my bile ducts. This is just awful and I do take sucralafate in the morning and evening. I’m just so jaded, it feels like there is no end in sight-I’m sure some of you can relate.

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u/OkSuccotash7473 — 2 days ago

Feeling Jaded

I’m on so many medications and it’s extremely difficult to keep up with all of them and I’m just not getting better. I have to so much of my own research on my condition because these doctors just don’t seem to understand it very well. But, I didn’t go to medical school and I can only interpret all this information to a point. If it wasn’t for my own research, I wouldn’t have gotten through this the first time. I legit had to make most of the suggestions. Now, after several years of remission I see no end in sight. All the things I tried before aren’t enough and it makes me wonder if I’ve developed another condition that is causing this never ending flair. I work full time and I have a kid. Some days I can’t wait to get off work so I can just cry in my car.

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u/OkSuccotash7473 — 11 days ago

Issues with med host

Who else is using medhost at their healthcare job? I’m at my wits end with this awful bug this system has. Patients emergency contacts are not always saving! They will appear on the screen but won’t print out. Or, the emergency contacts will not be on the screen but the face sheet when printed out. Had a surgeon get extremely upset because they couldn’t get a hold of a patient’s family member but it never printed out their updated phone number. The company knows the issue and kept asking for examples. Legit there are hundreds. Fix your program. It’s a safety issue for patients.

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u/OkSuccotash7473 — 25 days ago