I don’t even know what’s wrong anymore
I’m tired of tests. I have “suspected” MCAS. Told my immunologist no more tests. I have severe episodes of flushing, hives, swelling, violent diarrhea, near fainting sweating though my clothes and tachycardia. I don’t wanna put myself through more flares for blood tests. My eyes were swollen for 3 months. I get intense chronic fatigue, brain fog and malaise. I’m tapering off prednisone and it’s horrible. Dr suspects I gave adrenal insufficiency bc I’ve been on so much prednisone. I’m on 4 Zyrtec a day 4 Pepcid a day 2 Rhapsido a day. I had a good couple days. Had some hives but they didn’t spread, had a dry sore throat that didn’t escalate. I’ve been eating strictly low histamine and it seemed to be helping. Then yesterday j started getting migratory joint pain again. Idk if that’s MCAS or what but I couldn’t walk last night because my knee was so bad. Now today it’s moved into my elbows and ankles. I ate a low histamine dinner and immediately was nauseous, sweating and stomach cramping, impending doom and racing heart, no severe diarrhea so maybe that means the meds are working. But the joint pain is debilitating and severe. Is the MCAS or adrenal insufficiency or what?