International Low Grade Glioma Registry
Hi all! I’m Michele Crawford and I am a Peer Advocate for the International Low Grade Glioma Registry. It is an effort to advance the study of low-grade/IDH-mutant glioma. I highly recommend this research project as I too have a low-grade glioma. Diagnosed in 2019. It is a Diffuse Astrocytoma Grade 2 with IDH1 mutation. I’m also currently stable. Little is known about our tumors and that is where you come in. Here are details to see if you qualify:
Must currently be 21-79 years old. Age at diagnosis doesn’t matter!
Must have confirmed pathology (via surgery) for Grade 2/3 glioma.
I’m sure you have all sorts of questions. No worries, that is what I’m here for. This is just a little post to garner some interest. Anything you want to know, I’m your gal. If I don’t know, I’ll find the answer. For more information, feel free to respond to this post, go directly to https://gliomaregistry.org, or if you want to contact someone directly, email, glioma@yale.edu.
Thank you!!! 😊