u/OldLadyMagick

International Low Grade Glioma Registry

Hi all! I’m Michele Crawford and I am a Peer Advocate for the International Low Grade Glioma Registry. It is an effort to advance the study of low-grade/IDH-mutant glioma.  I highly recommend this research project as I too have a low-grade glioma.  Diagnosed in 2019.  It is a Diffuse Astrocytoma Grade 2 with IDH1 mutation.  I’m also currently stable. Little is known about our tumors and that is where you come in. Here are details to see if you qualify:
 
Must currently be 21-79 years old.  Age at diagnosis doesn’t matter!
 
Must have confirmed pathology (via surgery) for Grade 2/3 glioma. 
 
I’m sure you have all sorts of questions.  No worries, that is what I’m here for.  This is just a little post to garner some interest.  Anything you want to know, I’m your gal.  If I don’t know, I’ll find the answer.  For more information, feel free to respond to this post, go directly to https://gliomaregistry.org, or if you want to contact someone directly, email, glioma@yale.edu.
 
Thank you!!! 😊

reddit.com
u/OldLadyMagick — 2 days ago

International Low Grade Glioma Registry

Hi all! I’m Michele Crawford and I am a Peer Advocate for the International Low Grade Glioma Registry. It is an effort to advance the study of low-grade/IDH-mutant glioma.  I highly recommend this research project as I too have a low-grade glioma.  Diagnosed in 2019.  It is a Diffuse Astrocytoma Grade 2 with IDH1 mutation.  I’m also currently stable. Little is known about our tumors and that is where you come in. Here are details to see if you qualify:
 
Must currently be 21-79 years old.  Age at diagnosis doesn’t matter!
 
Must have confirmed pathology (via surgery) for Grade 2/3 glioma. 
 
I’m sure you have all sorts of questions.  No worries, that is what I’m here for.  This is just a little post to garner some interest.  Anything you want to know, I’m your gal.  If I don’t know, I’ll find the answer.  For more information, feel free to respond to this post, go directly to https://gliomaregistry.org, or if you want to contact someone directly, email, glioma@yale.edu.
 
Thank you!!! 😊

reddit.com
u/OldLadyMagick — 2 days ago

Help with genital area

Hi. My husband was recently diagnosed with Psoriasis. He’s had the Tremfya shot twice in and the next one is 5/22. All the spots seem to be clearing up except for his genitals and buttcrack. He’s tried all the things, including prep H.

Any recommendations? He’s desperate for relief.

Thsnks. 🥺

reddit.com
u/OldLadyMagick — 9 days ago

Where to find?

I have bewn searching all over for Transformation: An Audience with Dolores Cannon.

Anywhere Google suggested said, “not available.” What am I missing?

reddit.com
u/OldLadyMagick — 9 days ago
▲ 31 r/braintumor+1 crossposts

The end of June, (6/28/26) will mark seven years since I’ve been diagnosed with a brain tumor that subsequently turned out to be cancer. Diffuse Astrocytoma Grade 2, IDH1 mutant. I had chemo (allergic) barely lasted a month and radiation—which I did complete.

In 2021 I had a biopsy for possible recurrence. There were some abnormal cells but nothing to worry about. In 2025 I started having yearly scans.

How long would you keep doing yearly? I’m ready to go out 18 months but I’m not so sure my husband would agree. With insurance costs rising along with everything else, I feel as long as I don’t have symptoms, why go yearly?

Thanks for your time. ♥️

reddit.com
u/OldLadyMagick — 23 days ago