u/One-Juggernaut6321

Hey guys. I’m writing this to see if these pain pumps may be the option to getting our meds verses taking them orally and getting our scripts from the pharmacies.

Need to ask if there has been anyone of the refit people on these type pumps and if they have what are the pros and cons. Like does the doctors office receive the meds each month for us to fill our pumps. Is there any procedures for breakthrough pain like an extra dose when needed or does it actually work better. I would think the dosage would be less since it’s I ravenously instead of orally right? Are they safe? Has there been bad reactions? Just all of the things all of us would be asking. I do t know of anyone that has ever had one installed.

So please guys if you have experience with the pumps please let us know. Man if this would release us from having to track down our own meds it would be a god send. If we didn’t have to depend on the pharmacies to get the meds and other doctors offices would get them. Imagine the stress alone it would take off of us you guys.

Please let us know what it’s like and do they work and how do the doctors office receive get the meds for the pumps or do we still have to get it and have the doctors put it in for us. Most of all does it work and is it the same meds just different form. It seems that it would work better because it’s going right into the bloodstream instead of our gut.

I don’t know if it would be like when they administer it in the hospital or what throgh an IV or not. Please guys I have tried to research these but there not many patients that say anything about it. It’s usually really good or really bad. So please let me know. I’m going to talk to my doctor about it so I can see what she thinks about them and how your body accepts it.

Thanks again guys you know I noticed the other day that my PM docs sign of her front door went from saying neurologist/ pain management to adding palliative care as well on it. I wonder if this is something that will help to get our scripts filled. I guess we will find out.

Thanks guys for taking the time to talk about these pain pumps. I’m going to research them a little more as well to find out all I can about them. Can’t wait to hear from you guys.

Thanks again.

Ok you guys. I’ve been a PM Patient as most of you know for a very long time now. I have a question for all of you if you don’t mind answering.

When someone decides that they have had enough of the jumping through hoops and putting up with all the bullshit that goes with just trying to get your meds these days and you decide to say fuck it I’m done and I’ve had enough!! How much of the withdrawals are mind oriented And how much are actual physical? I’ve heard that like when someone is going to jail or something and they know they have to turn themselves in that the withdrawals don’t affect them as much while they are in jail because they know that there is no way not a chance that they are going to be able to get their meds while in there. I’m just using that as an example because this happened to an acquaintance that I met through PM actually and he said that it didn’t hardly affect him at all.

I really don’t know what I’m going to do about the pain and I don’t even know that I’m to this point yet but I’m growing very close. I’m thinking about the pain pump or having another surgery would make the 6th one now. But I’m older now and I don’t know if my worn out body can handle another surgery that doesn’t work. I’m just getting tired you guys of it. It’s always something with the meds. I can believe that our Goverment can treat us like this and let these fuckers that are fraudulent just walk the streets. I’m just so fed up.

I’ve heard about this new drug now that your suppose to be able to take a shot or three and you have no withdrawals from the medication. If you take one shot it’s like an 88 percent chance of zero withdrawals and if you take 3 then it’s a 99 percent chance of zero withdrawals. That’s till leaves the pain issue of course. But it would be nice to be off of everything to get an actual idea on where I stand with my pain level.

Does the meds help my pain. Yes for sure. it’s gotten to the point of just maintaining and I have to believe that that’s where a lot of us are at this point in time. Does anyone have any thoughts or suggestions on this. I’m at a pretty high dose right now. I’m taking 4 30’s and was taking 2 60mg morphine ER a day. But for the last couple of months I have had the PM doc take me off the morphine because it was starting to mess with my kidneys. So now I’m just taking the IR meds.

You guys have always given me very good and sound suggestions be them good or bad. I like that about you guys. I’m very concerned about pain levels if I stop everything. I hear people say all the time that the withdrawals about kills them. I would try to do it right and whine myself off slowly. Do any of you guys have any input on this? I’m just to the point that I’m sick of everything and the hassles that we are all dealing with. I’ve always said that if you’re truly in pain then you will fight and do whatever it takes to get help for the pain no matter what. Well I’ve been doing that self advocating now for many years and guys I’m just so sick of it. I truly don’t think it’s going to get any better for any of us. So let me know what yall think ok.