u/Only-Drawing-9212

I have med induced sfn and pssd (therefore I can't take any antidepressant).

I have cruel head pressure. Makes me insomnia and exhausted..it's torture! Bedridden.

I did an autoimmune brain panel and some markers were high. My docs tell the test us not reliable and refuse to test more antibodies as they tell I am depressed. I am brought in this agony by antidepressants!!

I still try to get ivig and/or rituximab. I wonder if these treatments can at least treat the horrible nerve pain and head pressure???

Wie blijft hier langdurig lijden aan zenuwpijn en hoofddruk. Ik ben 1,5 jaar ad vrij en 8 maanden benzo vrij en mijn zenuwen blijven vuren. Onmenselijke pijn en geen traan om uit te huilen. Wat kan ik doen?

I have full blown pssd, akathisia, insomnia, burning, brainfog...every bad symptom. Only worsening.

I did the pssd study testing and have done the Cunningham panel with borderline and strong elevated markers.

Which antibodies are also important to test?

Anybody knows?

I stopped ad's 1,5 y ago and off benzo's since 6 months.

My condition only gets worse to the point I am almost bedridden.

Total emotional and sexual dysfunction,,dysautonomia, nerve pain, head pressure, light sensitivity... The list goes on.

Currently more concerned about the physical agony..

Nothing improves, what can I do? I fear for my life honestly. Like I had a very hard concussion.